Pediatric palliative care for youth with HIV/AIDS: systematic review of the literature

Megan L Wilkins,1 Ronald H Dallas,1 Kathleen E Fanone,2 Maureen E Lyon3,4 1St Jude Children's Research Hospital, Department of Infectious Diseases, Memphis, TN, USA; 2Johns Hopkins Medical Center, Department of Pediatric Medicine, Baltimore, MD, USA; 3Children's National Medical Cent...

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Autores principales:	Wilkins ML, Dallas RH, Fanone KE, Lyon ME
Formato:	article
Lenguaje:	EN
Publicado:	Dove Medical Press 2013
Materias:	Immunologic diseases. Allergy RC581-607
Acceso en línea:	https://doaj.org/article/37d108bc42f543e4be83f2a4410eabfe
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spelling	oai:doaj.org-article:37d108bc42f543e4be83f2a4410eabfe2021-12-02T07:34:27ZPediatric palliative care for youth with HIV/AIDS: systematic review of the literature1179-1373https://doaj.org/article/37d108bc42f543e4be83f2a4410eabfe2013-07-01T00:00:00Zhttp://www.dovepress.com/pediatric-palliative-care-for-youth-with-hivaids-systematic-review-of--a13827https://doaj.org/toc/1179-1373Megan L Wilkins,1 Ronald H Dallas,1 Kathleen E Fanone,2 Maureen E Lyon3,4 1St Jude Children's Research Hospital, Department of Infectious Diseases, Memphis, TN, USA; 2Johns Hopkins Medical Center, Department of Pediatric Medicine, Baltimore, MD, USA; 3Children's National Medical Center, 4George Washington University School of Medicine and Health Sciences, Washington, DC, USA Abstract: Improvement in treatment has led to decreased death in youth with human immunodeficiency virus (HIV) in developed countries. Despite this, youth with HIV are still at risk for increased mortality and morbidity compared with their uninfected counterparts. In developing countries, high numbers of youth die from acquired immune deficiency syndrome (AIDS)-related illnesses due to lack of access to consistent antiretroviral treatment. As a result, pediatric palliative care is a relevant topic for those providing care to youth with HIV. A systematic review was conducted to gather information regarding the status of the literature related to pediatric palliative care and medical decision-making for youth with HIV. The relevant literature published between January 2002 and June 2012 was identified through searches conducted using PubMed, CINAHL, Scopus, and PSYCInfo databases and a series of key words. Articles were reviewed by thematic analysis using the pillars of palliative care set out by the National Consensus Project. Twenty-one articles were retained after review and are summarized by theme. In general, few empirically based studies evaluating palliative care and medical decision-making in youth with HIV were identified. Articles identified focused primarily on physical aspects of care, with less attention paid to psychological, social, ethical, and cultural aspects of care. We recommend that future research focuses on broadening the evaluation of pediatric palliative care among youth with HIV by directly evaluating the psychological, social, ethical, and cultural aspects of care and investigating the needs of all involved stakeholders. Keywords: pediatric palliative care, human immunodeficiency virus, acquired immune deficiency syndrome, advance care planning, medical decision-makingWilkins MLDallas RHFanone KELyon MEDove Medical PressarticleImmunologic diseases. AllergyRC581-607ENHIV/AIDS: Research and Palliative Care, Vol 2013, Iss default, Pp 165-179 (2013)
institution	DOAJ
collection	DOAJ
language	EN
topic	Immunologic diseases. Allergy RC581-607
spellingShingle	Immunologic diseases. Allergy RC581-607 Wilkins ML Dallas RH Fanone KE Lyon ME Pediatric palliative care for youth with HIV/AIDS: systematic review of the literature
description	Megan L Wilkins,1 Ronald H Dallas,1 Kathleen E Fanone,2 Maureen E Lyon3,4 1St Jude Children's Research Hospital, Department of Infectious Diseases, Memphis, TN, USA; 2Johns Hopkins Medical Center, Department of Pediatric Medicine, Baltimore, MD, USA; 3Children's National Medical Center, 4George Washington University School of Medicine and Health Sciences, Washington, DC, USA Abstract: Improvement in treatment has led to decreased death in youth with human immunodeficiency virus (HIV) in developed countries. Despite this, youth with HIV are still at risk for increased mortality and morbidity compared with their uninfected counterparts. In developing countries, high numbers of youth die from acquired immune deficiency syndrome (AIDS)-related illnesses due to lack of access to consistent antiretroviral treatment. As a result, pediatric palliative care is a relevant topic for those providing care to youth with HIV. A systematic review was conducted to gather information regarding the status of the literature related to pediatric palliative care and medical decision-making for youth with HIV. The relevant literature published between January 2002 and June 2012 was identified through searches conducted using PubMed, CINAHL, Scopus, and PSYCInfo databases and a series of key words. Articles were reviewed by thematic analysis using the pillars of palliative care set out by the National Consensus Project. Twenty-one articles were retained after review and are summarized by theme. In general, few empirically based studies evaluating palliative care and medical decision-making in youth with HIV were identified. Articles identified focused primarily on physical aspects of care, with less attention paid to psychological, social, ethical, and cultural aspects of care. We recommend that future research focuses on broadening the evaluation of pediatric palliative care among youth with HIV by directly evaluating the psychological, social, ethical, and cultural aspects of care and investigating the needs of all involved stakeholders. Keywords: pediatric palliative care, human immunodeficiency virus, acquired immune deficiency syndrome, advance care planning, medical decision-making
format	article
author	Wilkins ML Dallas RH Fanone KE Lyon ME
author_facet	Wilkins ML Dallas RH Fanone KE Lyon ME
author_sort	Wilkins ML
title	Pediatric palliative care for youth with HIV/AIDS: systematic review of the literature
title_short	Pediatric palliative care for youth with HIV/AIDS: systematic review of the literature
title_full	Pediatric palliative care for youth with HIV/AIDS: systematic review of the literature
title_fullStr	Pediatric palliative care for youth with HIV/AIDS: systematic review of the literature
title_full_unstemmed	Pediatric palliative care for youth with HIV/AIDS: systematic review of the literature
title_sort	pediatric palliative care for youth with hiv/aids: systematic review of the literature
publisher	Dove Medical Press
publishDate	2013
url	https://doaj.org/article/37d108bc42f543e4be83f2a4410eabfe
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Pediatric palliative care for youth with HIV/AIDS: systematic review of the literature

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