Challenges of paediatric palliative care in Romania: a focus groups study

Abstract Background The availability of palliative care facilities for children vary considerably among the European member states. In Romania, a country where health expenditure is among the lowest in Europe, palliative care has been mainly provided by charitable organizations. Despite the high num...

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Autores principales:	Nadia Pacurari, Eva De Clercq, Monica Dragomir, Anca Colita, Tenzin Wangmo, Bernice S. Elger
Formato:	article
Lenguaje:	EN
Publicado:	BMC 2021
Materias:	Palliative care paediatric oncology barriers Romania qualitative research Special situations and conditions RC952-1245
Acceso en línea:	https://doaj.org/article/38534abfdf2740cdb2fc366fa8c81615
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spelling	oai:doaj.org-article:38534abfdf2740cdb2fc366fa8c816152021-11-21T12:08:06ZChallenges of paediatric palliative care in Romania: a focus groups study10.1186/s12904-021-00871-71472-684Xhttps://doaj.org/article/38534abfdf2740cdb2fc366fa8c816152021-11-01T00:00:00Zhttps://doi.org/10.1186/s12904-021-00871-7https://doaj.org/toc/1472-684XAbstract Background The availability of palliative care facilities for children vary considerably among the European member states. In Romania, a country where health expenditure is among the lowest in Europe, palliative care has been mainly provided by charitable organizations. Despite the high number of children needing palliative care, there is scant literature and research available on paediatric palliative care in Romania. The study explores the viewpoints of various paediatric oncology providers with regard to paediatric palliative care provision in Romania. Methods Four mixed focus groups were conducted at four university-affiliated paediatric oncology centres located in three distinct Romanian regions (Bucuresti-llfov, Nord-Est and Nord-Vest). The focus groups were analyzed using thematic coding. Results For many healthcare professionals, emotional burden inherent to the profession; unhealthy work-life balance and understaffing were among the biggest barriers to the successful integration of pediatric palliative care. The lack of staff was attributed to a shortage of financial resources, and to the persisting cultural stigma surrounding palliative care and oncology. Also political turmoil was identified as an important obstacle to palliative care implementation. Conclusion Significant barriers persist limiting the broader implementation of pediatric palliative care in Romania. In order to render palliative care in pediatric oncology more sustainable, more attention should be paid to the mental health care of healthcare professionals working in this field, to the development of mobile palliative care services and to the emigration of skilled medical staff.Nadia PacurariEva De ClercqMonica DragomirAnca ColitaTenzin WangmoBernice S. ElgerBMCarticlePalliative carepaediatric oncologybarriersRomaniaqualitative researchSpecial situations and conditionsRC952-1245ENBMC Palliative Care, Vol 20, Iss 1, Pp 1-8 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Palliative care paediatric oncology barriers Romania qualitative research Special situations and conditions RC952-1245
spellingShingle	Palliative care paediatric oncology barriers Romania qualitative research Special situations and conditions RC952-1245 Nadia Pacurari Eva De Clercq Monica Dragomir Anca Colita Tenzin Wangmo Bernice S. Elger Challenges of paediatric palliative care in Romania: a focus groups study
description	Abstract Background The availability of palliative care facilities for children vary considerably among the European member states. In Romania, a country where health expenditure is among the lowest in Europe, palliative care has been mainly provided by charitable organizations. Despite the high number of children needing palliative care, there is scant literature and research available on paediatric palliative care in Romania. The study explores the viewpoints of various paediatric oncology providers with regard to paediatric palliative care provision in Romania. Methods Four mixed focus groups were conducted at four university-affiliated paediatric oncology centres located in three distinct Romanian regions (Bucuresti-llfov, Nord-Est and Nord-Vest). The focus groups were analyzed using thematic coding. Results For many healthcare professionals, emotional burden inherent to the profession; unhealthy work-life balance and understaffing were among the biggest barriers to the successful integration of pediatric palliative care. The lack of staff was attributed to a shortage of financial resources, and to the persisting cultural stigma surrounding palliative care and oncology. Also political turmoil was identified as an important obstacle to palliative care implementation. Conclusion Significant barriers persist limiting the broader implementation of pediatric palliative care in Romania. In order to render palliative care in pediatric oncology more sustainable, more attention should be paid to the mental health care of healthcare professionals working in this field, to the development of mobile palliative care services and to the emigration of skilled medical staff.
format	article
author	Nadia Pacurari Eva De Clercq Monica Dragomir Anca Colita Tenzin Wangmo Bernice S. Elger
author_facet	Nadia Pacurari Eva De Clercq Monica Dragomir Anca Colita Tenzin Wangmo Bernice S. Elger
author_sort	Nadia Pacurari
title	Challenges of paediatric palliative care in Romania: a focus groups study
title_short	Challenges of paediatric palliative care in Romania: a focus groups study
title_full	Challenges of paediatric palliative care in Romania: a focus groups study
title_fullStr	Challenges of paediatric palliative care in Romania: a focus groups study
title_full_unstemmed	Challenges of paediatric palliative care in Romania: a focus groups study
title_sort	challenges of paediatric palliative care in romania: a focus groups study
publisher	BMC
publishDate	2021
url	https://doaj.org/article/38534abfdf2740cdb2fc366fa8c81615
work_keys_str_mv	AT nadiapacurari challengesofpaediatricpalliativecareinromaniaafocusgroupsstudy AT evadeclercq challengesofpaediatricpalliativecareinromaniaafocusgroupsstudy AT monicadragomir challengesofpaediatricpalliativecareinromaniaafocusgroupsstudy AT ancacolita challengesofpaediatricpalliativecareinromaniaafocusgroupsstudy AT tenzinwangmo challengesofpaediatricpalliativecareinromaniaafocusgroupsstudy AT berniceselger challengesofpaediatricpalliativecareinromaniaafocusgroupsstudy
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Challenges of paediatric palliative care in Romania: a focus groups study

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