Breast cancer patient experiences through a journey map: A qualitative study.

<h4>Background</h4>Breast cancer is one of the most prevalent diseases in women. Prevention and treatments have lowered mortality; nevertheless, the impact of the diagnosis and treatment continue to impact all aspects of patients' lives (physical, emotional, cognitive, social, and s...

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Autores principales:	Laura Ciria-Suarez, Paula Jiménez-Fonseca, María Palacín-Lois, Mónica Antoñanzas-Basa, Ana Fernández-Montes, Aranzazu Manzano-Fernández, Beatriz Castelo, Elena Asensio-Martínez, Susana Hernando-Polo, Caterina Calderon
Formato:	article
Lenguaje:	EN
Publicado:	Public Library of Science (PLoS) 2021
Materias:	Medicine R Science Q
Acceso en línea:	https://doaj.org/article/39d1feed018b4de9b2b8431619620337
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spelling	oai:doaj.org-article:39d1feed018b4de9b2b84316196203372021-12-02T20:08:07ZBreast cancer patient experiences through a journey map: A qualitative study.1932-620310.1371/journal.pone.0257680https://doaj.org/article/39d1feed018b4de9b2b84316196203372021-01-01T00:00:00Zhttps://doi.org/10.1371/journal.pone.0257680https://doaj.org/toc/1932-6203<h4>Background</h4>Breast cancer is one of the most prevalent diseases in women. Prevention and treatments have lowered mortality; nevertheless, the impact of the diagnosis and treatment continue to impact all aspects of patients' lives (physical, emotional, cognitive, social, and spiritual).<h4>Objective</h4>This study seeks to explore the experiences of the different stages women with breast cancer go through by means of a patient journey.<h4>Methods</h4>This is a qualitative study in which 21 women with breast cancer or survivors were interviewed. Participants were recruited at 9 large hospitals in Spain and intentional sampling methods were applied. Data were collected using a semi-structured interview that was elaborated with the help of medical oncologists, nurses, and psycho-oncologists. Data were processed by adopting a thematic analysis approach.<h4>Results</h4>The diagnosis and treatment of breast cancer entails a radical change in patients' day-to-day that linger in the mid-term. Seven stages have been defined that correspond to the different medical processes: diagnosis/unmasking stage, surgery/cleaning out, chemotherapy/loss of identity, radiotherapy/transition to normality, follow-up care/the "new" day-to-day, relapse/starting over, and metastatic/time-limited chronic breast cancer. The most relevant aspects of each are highlighted, as are the various cross-sectional aspects that manifest throughout the entire patient journey.<h4>Conclusions</h4>Comprehending patients' experiences in depth facilitates the detection of situations of risk and helps to identify key moments when more precise information should be offered. Similarly, preparing the women for the process they must confront and for the sequelae of medical treatments would contribute to decreasing their uncertainty and concern, and to improving their quality-of-life.Laura Ciria-SuarezPaula Jiménez-FonsecaMaría Palacín-LoisMónica Antoñanzas-BasaAna Fernández-MontesAranzazu Manzano-FernándezBeatriz CasteloElena Asensio-MartínezSusana Hernando-PoloCaterina CalderonPublic Library of Science (PLoS)articleMedicineRScienceQENPLoS ONE, Vol 16, Iss 9, p e0257680 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Medicine R Science Q
spellingShingle	Medicine R Science Q Laura Ciria-Suarez Paula Jiménez-Fonseca María Palacín-Lois Mónica Antoñanzas-Basa Ana Fernández-Montes Aranzazu Manzano-Fernández Beatriz Castelo Elena Asensio-Martínez Susana Hernando-Polo Caterina Calderon Breast cancer patient experiences through a journey map: A qualitative study.
description	<h4>Background</h4>Breast cancer is one of the most prevalent diseases in women. Prevention and treatments have lowered mortality; nevertheless, the impact of the diagnosis and treatment continue to impact all aspects of patients' lives (physical, emotional, cognitive, social, and spiritual).<h4>Objective</h4>This study seeks to explore the experiences of the different stages women with breast cancer go through by means of a patient journey.<h4>Methods</h4>This is a qualitative study in which 21 women with breast cancer or survivors were interviewed. Participants were recruited at 9 large hospitals in Spain and intentional sampling methods were applied. Data were collected using a semi-structured interview that was elaborated with the help of medical oncologists, nurses, and psycho-oncologists. Data were processed by adopting a thematic analysis approach.<h4>Results</h4>The diagnosis and treatment of breast cancer entails a radical change in patients' day-to-day that linger in the mid-term. Seven stages have been defined that correspond to the different medical processes: diagnosis/unmasking stage, surgery/cleaning out, chemotherapy/loss of identity, radiotherapy/transition to normality, follow-up care/the "new" day-to-day, relapse/starting over, and metastatic/time-limited chronic breast cancer. The most relevant aspects of each are highlighted, as are the various cross-sectional aspects that manifest throughout the entire patient journey.<h4>Conclusions</h4>Comprehending patients' experiences in depth facilitates the detection of situations of risk and helps to identify key moments when more precise information should be offered. Similarly, preparing the women for the process they must confront and for the sequelae of medical treatments would contribute to decreasing their uncertainty and concern, and to improving their quality-of-life.
format	article
author	Laura Ciria-Suarez Paula Jiménez-Fonseca María Palacín-Lois Mónica Antoñanzas-Basa Ana Fernández-Montes Aranzazu Manzano-Fernández Beatriz Castelo Elena Asensio-Martínez Susana Hernando-Polo Caterina Calderon
author_facet	Laura Ciria-Suarez Paula Jiménez-Fonseca María Palacín-Lois Mónica Antoñanzas-Basa Ana Fernández-Montes Aranzazu Manzano-Fernández Beatriz Castelo Elena Asensio-Martínez Susana Hernando-Polo Caterina Calderon
author_sort	Laura Ciria-Suarez
title	Breast cancer patient experiences through a journey map: A qualitative study.
title_short	Breast cancer patient experiences through a journey map: A qualitative study.
title_full	Breast cancer patient experiences through a journey map: A qualitative study.
title_fullStr	Breast cancer patient experiences through a journey map: A qualitative study.
title_full_unstemmed	Breast cancer patient experiences through a journey map: A qualitative study.
title_sort	breast cancer patient experiences through a journey map: a qualitative study.
publisher	Public Library of Science (PLoS)
publishDate	2021
url	https://doaj.org/article/39d1feed018b4de9b2b8431619620337
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Breast cancer patient experiences through a journey map: A qualitative study.

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