Data Linkage in Australia: The First 50 Years

Population-based data linkage has a long history in Australia from its beginnings in Western Australia in the 1970s to the coordinated national data linkage infrastructure that exists today. This article describes the journey from an idea to a national data linkage network which has impacts on the h...

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Autores principales:	Merran Smith, Felicity Flack
Formato:	article
Lenguaje:	EN
Publicado:	MDPI AG 2021
Materias:	data linkage Australia cross-jurisdiction Medicine R
Acceso en línea:	https://doaj.org/article/42c415f3742c40388ba701adf1ac89a4
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spelling	oai:doaj.org-article:42c415f3742c40388ba701adf1ac89a42021-11-11T16:28:24ZData Linkage in Australia: The First 50 Years10.3390/ijerph1821113391660-46011661-7827https://doaj.org/article/42c415f3742c40388ba701adf1ac89a42021-10-01T00:00:00Zhttps://www.mdpi.com/1660-4601/18/21/11339https://doaj.org/toc/1661-7827https://doaj.org/toc/1660-4601Population-based data linkage has a long history in Australia from its beginnings in Western Australia in the 1970s to the coordinated national data linkage infrastructure that exists today. This article describes the journey from an idea to a national data linkage network which has impacts on the health and well-being of Australians from preventing developmental anomalies to responding to the COVID-19 pandemic. Many enthusiastic and dedicated people have contributed to Australia’s data linkage capability over the last 50 years. They have managed to overcome a number of challenges including gaining stakeholder and community support; navigating complex legal and ethical environments; establishing cross-jurisdictional collaborations, and gaining ongoing financial support. The future is bright for linked data in Australia as the infrastructure built over the last 50 years provides a firm foundation for further expansion and development, ensuring that Australia’s linked health and human services data continues to be available to address the evolving challenges of the next half century.Merran SmithFelicity FlackMDPI AGarticledata linkageAustraliacross-jurisdictionMedicineRENInternational Journal of Environmental Research and Public Health, Vol 18, Iss 11339, p 11339 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	data linkage Australia cross-jurisdiction Medicine R
spellingShingle	data linkage Australia cross-jurisdiction Medicine R Merran Smith Felicity Flack Data Linkage in Australia: The First 50 Years
description	Population-based data linkage has a long history in Australia from its beginnings in Western Australia in the 1970s to the coordinated national data linkage infrastructure that exists today. This article describes the journey from an idea to a national data linkage network which has impacts on the health and well-being of Australians from preventing developmental anomalies to responding to the COVID-19 pandemic. Many enthusiastic and dedicated people have contributed to Australia’s data linkage capability over the last 50 years. They have managed to overcome a number of challenges including gaining stakeholder and community support; navigating complex legal and ethical environments; establishing cross-jurisdictional collaborations, and gaining ongoing financial support. The future is bright for linked data in Australia as the infrastructure built over the last 50 years provides a firm foundation for further expansion and development, ensuring that Australia’s linked health and human services data continues to be available to address the evolving challenges of the next half century.
format	article
author	Merran Smith Felicity Flack
author_facet	Merran Smith Felicity Flack
author_sort	Merran Smith
title	Data Linkage in Australia: The First 50 Years
title_short	Data Linkage in Australia: The First 50 Years
title_full	Data Linkage in Australia: The First 50 Years
title_fullStr	Data Linkage in Australia: The First 50 Years
title_full_unstemmed	Data Linkage in Australia: The First 50 Years
title_sort	data linkage in australia: the first 50 years
publisher	MDPI AG
publishDate	2021
url	https://doaj.org/article/42c415f3742c40388ba701adf1ac89a4
work_keys_str_mv	AT merransmith datalinkageinaustraliathefirst50years AT felicityflack datalinkageinaustraliathefirst50years
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Data Linkage in Australia: The First 50 Years

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