Barriers to advance care planning in cancer, heart failure and dementia patients: a focus group study on general practitioners' views and experiences.

<h4>Background</h4>The long-term and often lifelong relationship of general practitioners (GPs) with their patients is considered to make them the ideal initiators of advance care planning (ACP). However, in general the incidence of ACP discussions is low and ACP seems to occur more ofte...

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Autores principales: Aline De Vleminck, Koen Pardon, Kim Beernaert, Reginald Deschepper, Dirk Houttekier, Chantal Van Audenhove, Luc Deliens, Robert Vander Stichele
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Publicado: Public Library of Science (PLoS) 2014
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spelling oai:doaj.org-article:43a3674cc2f841a8b9920954df8e83aa2021-11-18T08:37:07ZBarriers to advance care planning in cancer, heart failure and dementia patients: a focus group study on general practitioners' views and experiences.1932-620310.1371/journal.pone.0084905https://doaj.org/article/43a3674cc2f841a8b9920954df8e83aa2014-01-01T00:00:00Zhttps://www.ncbi.nlm.nih.gov/pmc/articles/pmid/24465450/?tool=EBIhttps://doaj.org/toc/1932-6203<h4>Background</h4>The long-term and often lifelong relationship of general practitioners (GPs) with their patients is considered to make them the ideal initiators of advance care planning (ACP). However, in general the incidence of ACP discussions is low and ACP seems to occur more often for cancer patients than for those with dementia or heart failure.<h4>Objective</h4>To identify the barriers, from GPs' perspective, to initiating ACP and to gain insight into any differences in barriers between the trajectories of patients with cancer, heart failure and dementia.<h4>Method</h4>Five focus groups were held with GPs (n = 36) in Flanders, Belgium. The focus group discussions were transcribed verbatim and analyzed using the method of constant comparative analysis.<h4>Results</h4>THREE TYPES OF BARRIERS WERE DISTINGUISHED: barriers relating to the GP, to the patient and family and to the health care system. In cancer patients, a GP's lack of knowledge about treatment options and the lack of structural collaboration between the GP and specialist were expressed as barriers. Barriers that occured more often with heart failure and dementia were the lack of GP familiarity with the terminal phase, the lack of key moments to initiate ACP, the patient's lack of awareness of their diagnosis and prognosis and the fact that patients did not often initiate such discussions themselves. The future lack of decision-making capacity of dementia patients was reported by the GPs as a specific barrier for the initiation of ACP.<h4>Conclusion</h4>The results of our study contribute to a better understanding of the factors hindering GPs in initiating ACP. Multiple barriers need to be overcome, of which many can be addressed through the development of practical guidelines and educational interventions.Aline De VleminckKoen PardonKim BeernaertReginald DeschepperDirk HouttekierChantal Van AudenhoveLuc DeliensRobert Vander StichelePublic Library of Science (PLoS)articleMedicineRScienceQENPLoS ONE, Vol 9, Iss 1, p e84905 (2014)
institution DOAJ
collection DOAJ
language EN
topic Medicine
R
Science
Q
spellingShingle Medicine
R
Science
Q
Aline De Vleminck
Koen Pardon
Kim Beernaert
Reginald Deschepper
Dirk Houttekier
Chantal Van Audenhove
Luc Deliens
Robert Vander Stichele
Barriers to advance care planning in cancer, heart failure and dementia patients: a focus group study on general practitioners' views and experiences.
description <h4>Background</h4>The long-term and often lifelong relationship of general practitioners (GPs) with their patients is considered to make them the ideal initiators of advance care planning (ACP). However, in general the incidence of ACP discussions is low and ACP seems to occur more often for cancer patients than for those with dementia or heart failure.<h4>Objective</h4>To identify the barriers, from GPs' perspective, to initiating ACP and to gain insight into any differences in barriers between the trajectories of patients with cancer, heart failure and dementia.<h4>Method</h4>Five focus groups were held with GPs (n = 36) in Flanders, Belgium. The focus group discussions were transcribed verbatim and analyzed using the method of constant comparative analysis.<h4>Results</h4>THREE TYPES OF BARRIERS WERE DISTINGUISHED: barriers relating to the GP, to the patient and family and to the health care system. In cancer patients, a GP's lack of knowledge about treatment options and the lack of structural collaboration between the GP and specialist were expressed as barriers. Barriers that occured more often with heart failure and dementia were the lack of GP familiarity with the terminal phase, the lack of key moments to initiate ACP, the patient's lack of awareness of their diagnosis and prognosis and the fact that patients did not often initiate such discussions themselves. The future lack of decision-making capacity of dementia patients was reported by the GPs as a specific barrier for the initiation of ACP.<h4>Conclusion</h4>The results of our study contribute to a better understanding of the factors hindering GPs in initiating ACP. Multiple barriers need to be overcome, of which many can be addressed through the development of practical guidelines and educational interventions.
format article
author Aline De Vleminck
Koen Pardon
Kim Beernaert
Reginald Deschepper
Dirk Houttekier
Chantal Van Audenhove
Luc Deliens
Robert Vander Stichele
author_facet Aline De Vleminck
Koen Pardon
Kim Beernaert
Reginald Deschepper
Dirk Houttekier
Chantal Van Audenhove
Luc Deliens
Robert Vander Stichele
author_sort Aline De Vleminck
title Barriers to advance care planning in cancer, heart failure and dementia patients: a focus group study on general practitioners' views and experiences.
title_short Barriers to advance care planning in cancer, heart failure and dementia patients: a focus group study on general practitioners' views and experiences.
title_full Barriers to advance care planning in cancer, heart failure and dementia patients: a focus group study on general practitioners' views and experiences.
title_fullStr Barriers to advance care planning in cancer, heart failure and dementia patients: a focus group study on general practitioners' views and experiences.
title_full_unstemmed Barriers to advance care planning in cancer, heart failure and dementia patients: a focus group study on general practitioners' views and experiences.
title_sort barriers to advance care planning in cancer, heart failure and dementia patients: a focus group study on general practitioners' views and experiences.
publisher Public Library of Science (PLoS)
publishDate 2014
url https://doaj.org/article/43a3674cc2f841a8b9920954df8e83aa
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