The patient experience with shared decision-making in lung cancer: A survey of patients, significant others or care givers

A survey (via SurveyMonkey) was sent to lung cancer patients, their caregivers or significant others asking about their experience in making difficult treatment decisions. Of the 198 respondents, 118 (69%) indicated that they had faced a difficult decision with respect to their lung cancer treatment...

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Autores principales:	Laurie Gaspar, Howard West, Bonnie Addario, D Camidge
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2018
Materias:	patient experience patient decision aids shared decision-making lung cancer Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/4452d30f9c7e404895b791cf3b553908
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spelling	oai:doaj.org-article:4452d30f9c7e404895b791cf3b5539082021-11-15T04:25:45ZThe patient experience with shared decision-making in lung cancer: A survey of patients, significant others or care givers2372-0247https://doaj.org/article/4452d30f9c7e404895b791cf3b5539082018-04-01T00:00:00Zhttps://pxjournal.org/journal/vol5/iss1/8https://doaj.org/toc/2372-0247A survey (via SurveyMonkey) was sent to lung cancer patients, their caregivers or significant others asking about their experience in making difficult treatment decisions. Of the 198 respondents, 118 (69%) indicated that they had faced a difficult decision with respect to their lung cancer treatment. Of those, 73% indicated that they would have desired that the decision be made with their physician using a shared decision-making process, and 58% perceived that such a process had occurred. In addition, only 23% of respondents indicated that they had had the right amount of information when making the decision. Fortunately, only 9% of respondents expressed regret regarding the decision they ultimately made. A Patient Decision Aid (PDA) was made available to the respondents to view, and opinions were sought regarding the usefulness of this type of format for presenting information. This format was perceived as helpful, unsure if helpful, or not helpful by 62%, 36%, and 2% of respondents, respectively. In summary, the majority of lung cancer patients want to make difficult decisions using a shared decision-making process. The patient perception is that this is not occurring often enough. Even in this fairly well-educated group of respondents, many report that they are not sure that they have all the information necessary to make that difficult decision. Physicians may need help developing their communication and shared decision-making skills. Introducing PDAs into the oncology clinic may represent a way to present complex information and improve the patient experience.Laurie GasparHoward WestBonnie AddarioD CamidgeThe Beryl Institutearticlepatient experiencepatient decision aidsshared decision-makinglung cancerMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2018)
institution	DOAJ
collection	DOAJ
language	EN
topic	patient experience patient decision aids shared decision-making lung cancer Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	patient experience patient decision aids shared decision-making lung cancer Medicine (General) R5-920 Public aspects of medicine RA1-1270 Laurie Gaspar Howard West Bonnie Addario D Camidge The patient experience with shared decision-making in lung cancer: A survey of patients, significant others or care givers
description	A survey (via SurveyMonkey) was sent to lung cancer patients, their caregivers or significant others asking about their experience in making difficult treatment decisions. Of the 198 respondents, 118 (69%) indicated that they had faced a difficult decision with respect to their lung cancer treatment. Of those, 73% indicated that they would have desired that the decision be made with their physician using a shared decision-making process, and 58% perceived that such a process had occurred. In addition, only 23% of respondents indicated that they had had the right amount of information when making the decision. Fortunately, only 9% of respondents expressed regret regarding the decision they ultimately made. A Patient Decision Aid (PDA) was made available to the respondents to view, and opinions were sought regarding the usefulness of this type of format for presenting information. This format was perceived as helpful, unsure if helpful, or not helpful by 62%, 36%, and 2% of respondents, respectively. In summary, the majority of lung cancer patients want to make difficult decisions using a shared decision-making process. The patient perception is that this is not occurring often enough. Even in this fairly well-educated group of respondents, many report that they are not sure that they have all the information necessary to make that difficult decision. Physicians may need help developing their communication and shared decision-making skills. Introducing PDAs into the oncology clinic may represent a way to present complex information and improve the patient experience.
format	article
author	Laurie Gaspar Howard West Bonnie Addario D Camidge
author_facet	Laurie Gaspar Howard West Bonnie Addario D Camidge
author_sort	Laurie Gaspar
title	The patient experience with shared decision-making in lung cancer: A survey of patients, significant others or care givers
title_short	The patient experience with shared decision-making in lung cancer: A survey of patients, significant others or care givers
title_full	The patient experience with shared decision-making in lung cancer: A survey of patients, significant others or care givers
title_fullStr	The patient experience with shared decision-making in lung cancer: A survey of patients, significant others or care givers
title_full_unstemmed	The patient experience with shared decision-making in lung cancer: A survey of patients, significant others or care givers
title_sort	patient experience with shared decision-making in lung cancer: a survey of patients, significant others or care givers
publisher	The Beryl Institute
publishDate	2018
url	https://doaj.org/article/4452d30f9c7e404895b791cf3b553908
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The patient experience with shared decision-making in lung cancer: A survey of patients, significant others or care givers

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