Meaningful and effective patient engagement: What matters most to stakeholders

To determine what resources, preparation, and support are needed for patients, providers, and leaders to meaningfully and appropriately engage in patient-centred health system redesign, researchers sought to learn what really matters to these three stakeholder groups. A qualitative descriptive desig...

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Autores principales:	Mandy Bellows, Katharina Kovacs Burns, Karen Jackson, Brae Surgeoner, Jennifer Gallivan
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2015
Materias:	patient engagement patient experience qualitative thematic analysis Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/44c4982677134d5c90b366a2485d9946
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spelling	oai:doaj.org-article:44c4982677134d5c90b366a2485d99462021-11-15T03:55:59ZMeaningful and effective patient engagement: What matters most to stakeholders2372-0247https://doaj.org/article/44c4982677134d5c90b366a2485d99462015-04-01T00:00:00Zhttps://pxjournal.org/journal/vol2/iss1/5https://doaj.org/toc/2372-0247To determine what resources, preparation, and support are needed for patients, providers, and leaders to meaningfully and appropriately engage in patient-centred health system redesign, researchers sought to learn what really matters to these three stakeholder groups. A qualitative descriptive design was selected using purposive participant sampling, focusing on ‘who’, ‘what’ and ‘why’ questions pertaining to stakeholder perceptions about patient engagement in their specific context as patients, providers or leaders. Four project groups were selected; each group was responsible for a strategic initiative within Alberta Health Services and represented one of three different levels of the healthcare system (i.e. program, site or governance). Semi-structured question guides were used to collect data. Thematic analysis of the transcribed participant responses revealed eleven major themes: understanding patient engagement; language, communication, information; level and timing of engagement; recruitment and retention; roles, responsibilities and expectations; reason for being; expense; time commitment; governance and structure; knowing who’s who; and evaluation. Patients, providers and leaders agreed to the importance of communication around the reasons for patient engagement including building trust through collaboration and clearly identifying goals, along with their roles and responsibilities. These stakeholder perspectives are needed to inform the development of tools, resources and education materials required to support patient engagement activities tailored to the needs, understandings and perspectives of stakeholders.Mandy BellowsKatharina Kovacs BurnsKaren JacksonBrae SurgeonerJennifer GallivanThe Beryl Institutearticlepatient engagementpatient experiencequalitativethematic analysisMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2015)
institution	DOAJ
collection	DOAJ
language	EN
topic	patient engagement patient experience qualitative thematic analysis Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	patient engagement patient experience qualitative thematic analysis Medicine (General) R5-920 Public aspects of medicine RA1-1270 Mandy Bellows Katharina Kovacs Burns Karen Jackson Brae Surgeoner Jennifer Gallivan Meaningful and effective patient engagement: What matters most to stakeholders
description	To determine what resources, preparation, and support are needed for patients, providers, and leaders to meaningfully and appropriately engage in patient-centred health system redesign, researchers sought to learn what really matters to these three stakeholder groups. A qualitative descriptive design was selected using purposive participant sampling, focusing on ‘who’, ‘what’ and ‘why’ questions pertaining to stakeholder perceptions about patient engagement in their specific context as patients, providers or leaders. Four project groups were selected; each group was responsible for a strategic initiative within Alberta Health Services and represented one of three different levels of the healthcare system (i.e. program, site or governance). Semi-structured question guides were used to collect data. Thematic analysis of the transcribed participant responses revealed eleven major themes: understanding patient engagement; language, communication, information; level and timing of engagement; recruitment and retention; roles, responsibilities and expectations; reason for being; expense; time commitment; governance and structure; knowing who’s who; and evaluation. Patients, providers and leaders agreed to the importance of communication around the reasons for patient engagement including building trust through collaboration and clearly identifying goals, along with their roles and responsibilities. These stakeholder perspectives are needed to inform the development of tools, resources and education materials required to support patient engagement activities tailored to the needs, understandings and perspectives of stakeholders.
format	article
author	Mandy Bellows Katharina Kovacs Burns Karen Jackson Brae Surgeoner Jennifer Gallivan
author_facet	Mandy Bellows Katharina Kovacs Burns Karen Jackson Brae Surgeoner Jennifer Gallivan
author_sort	Mandy Bellows
title	Meaningful and effective patient engagement: What matters most to stakeholders
title_short	Meaningful and effective patient engagement: What matters most to stakeholders
title_full	Meaningful and effective patient engagement: What matters most to stakeholders
title_fullStr	Meaningful and effective patient engagement: What matters most to stakeholders
title_full_unstemmed	Meaningful and effective patient engagement: What matters most to stakeholders
title_sort	meaningful and effective patient engagement: what matters most to stakeholders
publisher	The Beryl Institute
publishDate	2015
url	https://doaj.org/article/44c4982677134d5c90b366a2485d9946
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Meaningful and effective patient engagement: What matters most to stakeholders

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