Principles of Researching Health Disparities in Longitudinal Cohort Studies Enrolling Children

Health disparities are defined on the basis of specific populations that, when compared to the general population, have a significant disparity on the rate of disease incidence, prevalence, morbidity, mortality, or survival. People that experience health disparities can be defined by multiple criter...

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Autores principales:	Carl V. Hill, Steven Hirschfeld, Nathaniel S. Stinson
Formato:	article
Lenguaje:	EN
Publicado:	Frontiers Media S.A. 2021
Materias:	disparities health longitudinal studies child health epidemiology health justice Pediatrics RJ1-570
Acceso en línea:	https://doaj.org/article/45a431a4a80447b18a7debb41367c5f3
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spelling	oai:doaj.org-article:45a431a4a80447b18a7debb41367c5f32021-11-19T06:51:29ZPrinciples of Researching Health Disparities in Longitudinal Cohort Studies Enrolling Children2296-236010.3389/fped.2021.627298https://doaj.org/article/45a431a4a80447b18a7debb41367c5f32021-11-01T00:00:00Zhttps://www.frontiersin.org/articles/10.3389/fped.2021.627298/fullhttps://doaj.org/toc/2296-2360Health disparities are defined on the basis of specific populations that, when compared to the general population, have a significant disparity on the rate of disease incidence, prevalence, morbidity, mortality, or survival. People that experience health disparities can be defined by multiple criteria. As the diversity of the United States broadens and increases, research on the origins and causes of health disparities becomes more important to support a healthy general population. Children are particularly sensitive to and vulnerable to health disparities due to the potentially life long consequences of events during periods of critical organ, intellectual and social development. The concept of health justice whereby each individual has the opportunity to realize their full health potential can only be realized with proper understanding and relevant data to frame practice, policy and actions. The National Children's Study (NCS) was a longitudinal birth cohort study designed to incorporate the principles of the Federal Collaboration on Health Disparities Research in consultation with subject matter experts, community representatives, and ongoing evaluation to ensure high quality and relevant data on factors that impact health outcomes. The NCS developed and tested a model of enrolling a diverse population, capturing and integrating data using a life course framework, constructing individual profiles, then aggregating individuals into groups based on profiles and outcomes. This approach is applicable to other longitudinal cohort studies.Carl V. HillSteven HirschfeldNathaniel S. StinsonFrontiers Media S.A.articledisparities healthlongitudinal studieschild healthepidemiologyhealth justicePediatricsRJ1-570ENFrontiers in Pediatrics, Vol 9 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	disparities health longitudinal studies child health epidemiology health justice Pediatrics RJ1-570
spellingShingle	disparities health longitudinal studies child health epidemiology health justice Pediatrics RJ1-570 Carl V. Hill Steven Hirschfeld Nathaniel S. Stinson Principles of Researching Health Disparities in Longitudinal Cohort Studies Enrolling Children
description	Health disparities are defined on the basis of specific populations that, when compared to the general population, have a significant disparity on the rate of disease incidence, prevalence, morbidity, mortality, or survival. People that experience health disparities can be defined by multiple criteria. As the diversity of the United States broadens and increases, research on the origins and causes of health disparities becomes more important to support a healthy general population. Children are particularly sensitive to and vulnerable to health disparities due to the potentially life long consequences of events during periods of critical organ, intellectual and social development. The concept of health justice whereby each individual has the opportunity to realize their full health potential can only be realized with proper understanding and relevant data to frame practice, policy and actions. The National Children's Study (NCS) was a longitudinal birth cohort study designed to incorporate the principles of the Federal Collaboration on Health Disparities Research in consultation with subject matter experts, community representatives, and ongoing evaluation to ensure high quality and relevant data on factors that impact health outcomes. The NCS developed and tested a model of enrolling a diverse population, capturing and integrating data using a life course framework, constructing individual profiles, then aggregating individuals into groups based on profiles and outcomes. This approach is applicable to other longitudinal cohort studies.
format	article
author	Carl V. Hill Steven Hirschfeld Nathaniel S. Stinson
author_facet	Carl V. Hill Steven Hirschfeld Nathaniel S. Stinson
author_sort	Carl V. Hill
title	Principles of Researching Health Disparities in Longitudinal Cohort Studies Enrolling Children
title_short	Principles of Researching Health Disparities in Longitudinal Cohort Studies Enrolling Children
title_full	Principles of Researching Health Disparities in Longitudinal Cohort Studies Enrolling Children
title_fullStr	Principles of Researching Health Disparities in Longitudinal Cohort Studies Enrolling Children
title_full_unstemmed	Principles of Researching Health Disparities in Longitudinal Cohort Studies Enrolling Children
title_sort	principles of researching health disparities in longitudinal cohort studies enrolling children
publisher	Frontiers Media S.A.
publishDate	2021
url	https://doaj.org/article/45a431a4a80447b18a7debb41367c5f3
work_keys_str_mv	AT carlvhill principlesofresearchinghealthdisparitiesinlongitudinalcohortstudiesenrollingchildren AT stevenhirschfeld principlesofresearchinghealthdisparitiesinlongitudinalcohortstudiesenrollingchildren AT nathanielsstinson principlesofresearchinghealthdisparitiesinlongitudinalcohortstudiesenrollingchildren
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Principles of Researching Health Disparities in Longitudinal Cohort Studies Enrolling Children

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