Why parents agree or disagree for minimally invasive tissue sampling (MITS) to identify causes of death in under-five children and stillbirth in North India: a qualitative study

Plain English summary Information about exact cause of death and stillbirth are essential for appropriate care of children and pregnant women. Autopsy assists in establishing exact cause of death, but not preferred by the parents/families. Minimally invasive tissue sampling (MITS) is a suitable alte...

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Autores principales:	Manoja Kumar Das, Narendra Kumar Arora, Pradeep Debata, Harish Chellani, Reeta Rasaily, Harsha Gaikwad, K. R. Meena, Gurkirat Kaur, Prikanksha Malik, Shipra Joshi, Mahisha Kumari
Formato:	article
Lenguaje:	EN
Publicado:	BMC 2021
Materias:	Minimal invasive tissue sampling MITS Counselling Informed consent Children Stillbirth, formative research, qualitative Pediatrics RJ1-570
Acceso en línea:	https://doaj.org/article/46a201bb2cd148a1b4654ea80000f993
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spelling	oai:doaj.org-article:46a201bb2cd148a1b4654ea80000f9932021-11-21T12:33:29ZWhy parents agree or disagree for minimally invasive tissue sampling (MITS) to identify causes of death in under-five children and stillbirth in North India: a qualitative study10.1186/s12887-021-02993-61471-2431https://doaj.org/article/46a201bb2cd148a1b4654ea80000f9932021-11-01T00:00:00Zhttps://doi.org/10.1186/s12887-021-02993-6https://doaj.org/toc/1471-2431Plain English summary Information about exact cause of death and stillbirth are essential for appropriate care of children and pregnant women. Autopsy assists in establishing exact cause of death, but not preferred by the parents/families. Minimally invasive tissue sampling (MITS) is a suitable alternate to autopsy for establishing causes of death and stillbirth. A pilot project on MITS was initiated at a tertiary care hospital in north India (New Delhi). An exploratory formative research was conducted to document the experiences of counselling and consenting for MITS. Under this study, observation of the counselling and consenting process for conduct of MITS in under-five children (including neonates) and stillbirths were done. Additionally, in-depth interviews with MITS team members were also conducted. Counselling for MITS was done in one corner of the ward or adjacent corridor and mostly targeted at the father and family members present. Counselling was primarily verbal explanation in local language. The key concerns from parents/family were disfigurement, time needed and possible benefits. Most of the parents consulted family members before decision. Benefit during next pregnancy, past previous pregnancy or neonatal loss and senior treating doctor’s involvement were key factors for consent. Poor quality of care and comprehension were the reasons for refusal.Manoja Kumar DasNarendra Kumar AroraPradeep DebataHarish ChellaniReeta RasailyHarsha GaikwadK. R. MeenaGurkirat KaurPrikanksha MalikShipra JoshiMahisha KumariBMCarticleMinimal invasive tissue samplingMITSCounsellingInformed consentChildrenStillbirth, formative research, qualitativePediatricsRJ1-570ENBMC Pediatrics, Vol 21, Iss 1, Pp 1-9 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Minimal invasive tissue sampling MITS Counselling Informed consent Children Stillbirth, formative research, qualitative Pediatrics RJ1-570
spellingShingle	Minimal invasive tissue sampling MITS Counselling Informed consent Children Stillbirth, formative research, qualitative Pediatrics RJ1-570 Manoja Kumar Das Narendra Kumar Arora Pradeep Debata Harish Chellani Reeta Rasaily Harsha Gaikwad K. R. Meena Gurkirat Kaur Prikanksha Malik Shipra Joshi Mahisha Kumari Why parents agree or disagree for minimally invasive tissue sampling (MITS) to identify causes of death in under-five children and stillbirth in North India: a qualitative study
description	Plain English summary Information about exact cause of death and stillbirth are essential for appropriate care of children and pregnant women. Autopsy assists in establishing exact cause of death, but not preferred by the parents/families. Minimally invasive tissue sampling (MITS) is a suitable alternate to autopsy for establishing causes of death and stillbirth. A pilot project on MITS was initiated at a tertiary care hospital in north India (New Delhi). An exploratory formative research was conducted to document the experiences of counselling and consenting for MITS. Under this study, observation of the counselling and consenting process for conduct of MITS in under-five children (including neonates) and stillbirths were done. Additionally, in-depth interviews with MITS team members were also conducted. Counselling for MITS was done in one corner of the ward or adjacent corridor and mostly targeted at the father and family members present. Counselling was primarily verbal explanation in local language. The key concerns from parents/family were disfigurement, time needed and possible benefits. Most of the parents consulted family members before decision. Benefit during next pregnancy, past previous pregnancy or neonatal loss and senior treating doctor’s involvement were key factors for consent. Poor quality of care and comprehension were the reasons for refusal.
format	article
author	Manoja Kumar Das Narendra Kumar Arora Pradeep Debata Harish Chellani Reeta Rasaily Harsha Gaikwad K. R. Meena Gurkirat Kaur Prikanksha Malik Shipra Joshi Mahisha Kumari
author_facet	Manoja Kumar Das Narendra Kumar Arora Pradeep Debata Harish Chellani Reeta Rasaily Harsha Gaikwad K. R. Meena Gurkirat Kaur Prikanksha Malik Shipra Joshi Mahisha Kumari
author_sort	Manoja Kumar Das
title	Why parents agree or disagree for minimally invasive tissue sampling (MITS) to identify causes of death in under-five children and stillbirth in North India: a qualitative study
title_short	Why parents agree or disagree for minimally invasive tissue sampling (MITS) to identify causes of death in under-five children and stillbirth in North India: a qualitative study
title_full	Why parents agree or disagree for minimally invasive tissue sampling (MITS) to identify causes of death in under-five children and stillbirth in North India: a qualitative study
title_fullStr	Why parents agree or disagree for minimally invasive tissue sampling (MITS) to identify causes of death in under-five children and stillbirth in North India: a qualitative study
title_full_unstemmed	Why parents agree or disagree for minimally invasive tissue sampling (MITS) to identify causes of death in under-five children and stillbirth in North India: a qualitative study
title_sort	why parents agree or disagree for minimally invasive tissue sampling (mits) to identify causes of death in under-five children and stillbirth in north india: a qualitative study
publisher	BMC
publishDate	2021
url	https://doaj.org/article/46a201bb2cd148a1b4654ea80000f993
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Why parents agree or disagree for minimally invasive tissue sampling (MITS) to identify causes of death in under-five children and stillbirth in North India: a qualitative study

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