Journeying through Dementia Randomised Controlled Trial of a Psychosocial Intervention for People Living with Early Dementia: Embedded Qualitative Study with Participants, Carers and Interventionists

Kirsty Sprange,1 Jules Beresford-Dent,2 Gail Mountain,2 Ben Thomas,3 Jessica Wright,3 Clare Mason,2 Cindy L Cooper3 1Nottingham Clinical Trials Unit, Faculty of Medicine, University of Nottingham, Nottingham, NG7 2RD, UK; 2University of Bradford, Bradford West Yorkshire, BD7 1DP, UK; 3Clinical Trial...

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Autores principales:	Sprange K, Beresford-Dent J, Mountain G, Thomas B, Wright J, Mason C, Cooper CL
Formato:	article
Lenguaje:	EN
Publicado:	Dove Medical Press 2021
Materias:	psychosocial self-management dementia wellbeing occupational therapy qualitative Geriatrics RC952-954.6
Acceso en línea:	https://doaj.org/article/478643a4d8914e8aa004d2cb1e0273cd
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spelling	oai:doaj.org-article:478643a4d8914e8aa004d2cb1e0273cd2021-12-02T12:14:53ZJourneying through Dementia Randomised Controlled Trial of a Psychosocial Intervention for People Living with Early Dementia: Embedded Qualitative Study with Participants, Carers and Interventionists1178-1998https://doaj.org/article/478643a4d8914e8aa004d2cb1e0273cd2021-02-01T00:00:00Zhttps://www.dovepress.com/journeying-through-dementia-randomised-controlled-trial-of-a-psychosoc-peer-reviewed-article-CIAhttps://doaj.org/toc/1178-1998Kirsty Sprange,1 Jules Beresford-Dent,2 Gail Mountain,2 Ben Thomas,3 Jessica Wright,3 Clare Mason,2 Cindy L Cooper3 1Nottingham Clinical Trials Unit, Faculty of Medicine, University of Nottingham, Nottingham, NG7 2RD, UK; 2University of Bradford, Bradford West Yorkshire, BD7 1DP, UK; 3Clinical Trials Research Unit, ScHARR, University of Sheffield, Sheffield, S1 4DP, UKCorrespondence: Kirsty SprangeNottingham Clinical Trials Unit, Building 42, Room A05, University of Nottingham, University Park, Nottingham, NG7 2RD, UKTel +44 0115 82 31574Email Kirsty.sprange@nottingham.ac.ukObjective: To identify the barriers and facilitators to the implementation of a complex psychosocial intervention though a study exploring the experiences of participants, carers and interventionists during a trial.Methods: Individual semi-structured interviews were conducted with participants, their carers, and interventionists from a sample of recruiting sites that took part in the Journeying through Dementia randomized controlled trial (RCT). Interview data were transcribed and analysed using framework analysis. Co-researcher data analysis workshops were also conducted to explore researcher interpretations of the data through the lens of those with lived experience of dementia. Triangulation enabled comparison of findings from the interviews with findings from the co-researcher workshops.Results: Three main themes emerged from the interview data: being prepared; intervention engagement; and participation and outcomes from engagement. From these themes, a number of factors that can moderate delivery and receipt of the intervention as intended were identified. These were context and environment; readiness, training, skills and competencies of the workforce; identifying meaningful participation and relationships.Conclusion: This study highlighted that the observed benefit of the intervention was nuanced for each individual. Mechanisms of change were influenced by a range of individual, social and contextual factors. Future research should therefore consider how best to identify and measure the multifaceted interplay of mechanisms of change in complex interventions.Trial Registration: ISRCTN17993825.Keywords: psychosocial, self-management, dementia, wellbeing, occupational therapy, qualitativeSprange KBeresford-Dent JMountain GThomas BWright JMason CCooper CLDove Medical Pressarticlepsychosocialself-managementdementiawellbeingoccupational therapyqualitativeGeriatricsRC952-954.6ENClinical Interventions in Aging, Vol Volume 16, Pp 231-244 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	psychosocial self-management dementia wellbeing occupational therapy qualitative Geriatrics RC952-954.6
spellingShingle	psychosocial self-management dementia wellbeing occupational therapy qualitative Geriatrics RC952-954.6 Sprange K Beresford-Dent J Mountain G Thomas B Wright J Mason C Cooper CL Journeying through Dementia Randomised Controlled Trial of a Psychosocial Intervention for People Living with Early Dementia: Embedded Qualitative Study with Participants, Carers and Interventionists
description	Kirsty Sprange,1 Jules Beresford-Dent,2 Gail Mountain,2 Ben Thomas,3 Jessica Wright,3 Clare Mason,2 Cindy L Cooper3 1Nottingham Clinical Trials Unit, Faculty of Medicine, University of Nottingham, Nottingham, NG7 2RD, UK; 2University of Bradford, Bradford West Yorkshire, BD7 1DP, UK; 3Clinical Trials Research Unit, ScHARR, University of Sheffield, Sheffield, S1 4DP, UKCorrespondence: Kirsty SprangeNottingham Clinical Trials Unit, Building 42, Room A05, University of Nottingham, University Park, Nottingham, NG7 2RD, UKTel +44 0115 82 31574Email Kirsty.sprange@nottingham.ac.ukObjective: To identify the barriers and facilitators to the implementation of a complex psychosocial intervention though a study exploring the experiences of participants, carers and interventionists during a trial.Methods: Individual semi-structured interviews were conducted with participants, their carers, and interventionists from a sample of recruiting sites that took part in the Journeying through Dementia randomized controlled trial (RCT). Interview data were transcribed and analysed using framework analysis. Co-researcher data analysis workshops were also conducted to explore researcher interpretations of the data through the lens of those with lived experience of dementia. Triangulation enabled comparison of findings from the interviews with findings from the co-researcher workshops.Results: Three main themes emerged from the interview data: being prepared; intervention engagement; and participation and outcomes from engagement. From these themes, a number of factors that can moderate delivery and receipt of the intervention as intended were identified. These were context and environment; readiness, training, skills and competencies of the workforce; identifying meaningful participation and relationships.Conclusion: This study highlighted that the observed benefit of the intervention was nuanced for each individual. Mechanisms of change were influenced by a range of individual, social and contextual factors. Future research should therefore consider how best to identify and measure the multifaceted interplay of mechanisms of change in complex interventions.Trial Registration: ISRCTN17993825.Keywords: psychosocial, self-management, dementia, wellbeing, occupational therapy, qualitative
format	article
author	Sprange K Beresford-Dent J Mountain G Thomas B Wright J Mason C Cooper CL
author_facet	Sprange K Beresford-Dent J Mountain G Thomas B Wright J Mason C Cooper CL
author_sort	Sprange K
title	Journeying through Dementia Randomised Controlled Trial of a Psychosocial Intervention for People Living with Early Dementia: Embedded Qualitative Study with Participants, Carers and Interventionists
title_short	Journeying through Dementia Randomised Controlled Trial of a Psychosocial Intervention for People Living with Early Dementia: Embedded Qualitative Study with Participants, Carers and Interventionists
title_full	Journeying through Dementia Randomised Controlled Trial of a Psychosocial Intervention for People Living with Early Dementia: Embedded Qualitative Study with Participants, Carers and Interventionists
title_fullStr	Journeying through Dementia Randomised Controlled Trial of a Psychosocial Intervention for People Living with Early Dementia: Embedded Qualitative Study with Participants, Carers and Interventionists
title_full_unstemmed	Journeying through Dementia Randomised Controlled Trial of a Psychosocial Intervention for People Living with Early Dementia: Embedded Qualitative Study with Participants, Carers and Interventionists
title_sort	journeying through dementia randomised controlled trial of a psychosocial intervention for people living with early dementia: embedded qualitative study with participants, carers and interventionists
publisher	Dove Medical Press
publishDate	2021
url	https://doaj.org/article/478643a4d8914e8aa004d2cb1e0273cd
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Journeying through Dementia Randomised Controlled Trial of a Psychosocial Intervention for People Living with Early Dementia: Embedded Qualitative Study with Participants, Carers and Interventionists

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