Mothers Caring for a Child at End of Life: A Systematic Review

Background: A mother feels complete when she fulfills her role in protecting her child from harm. If a child is diagnosed with a terminal illness and reaches End of Life (EOL), the mother’s life is affected negatively. The mother is affected mentally, psychologically, and physically because her ch...

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Autores principales:	Shahad Hafez, Julia Snethen, Julie Ellis, Murad Taani, Emmanuel Ngui, Abdullah A. Baothman
Formato:	article
Lenguaje:	EN
Publicado:	Institut Ilmu Kesehatan STRADA Indonesia 2021
Materias:	end of life end of life care mothers children parents Nursing RT1-120
Acceso en línea:	https://doaj.org/article/47a54f4a3f6e40be81036f5a4e4143e2
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spelling	oai:doaj.org-article:47a54f4a3f6e40be81036f5a4e4143e22021-11-15T05:23:15ZMothers Caring for a Child at End of Life: A Systematic Review2614-34882614-349610.30994/jnp.v5i1.143https://doaj.org/article/47a54f4a3f6e40be81036f5a4e4143e22021-10-01T00:00:00Zhttp://thejnp.org/index.php/jnp/article/view/143https://doaj.org/toc/2614-3488https://doaj.org/toc/2614-3496Background: A mother feels complete when she fulfills her role in protecting her child from harm. If a child is diagnosed with a terminal illness and reaches End of Life (EOL), the mother’s life is affected negatively. The mother is affected mentally, psychologically, and physically because her child is dying. Purpose: Explore the recent studies that focused on experiences of mothers caring for a child receiving End of Life Care (EOLC) at home or a healthcare facility. Methods: An electronic search was done in multiple databases, including the University of Wisconsin-Milwaukee Library, PsycINFO, PubMed, CINAHL, and Academic Search Complete. The included studies were published within the past five years, studies about EOL/ EOLC, hospice care, pediatric care, quantitative, qualitative, and mixed methods studies. Thematic synthesis following PRISMA guidelines. Results: Four themes emerged from the thematic synthesis. The main themes included decision making challenges, communication with healthcare professionals, parents’ support system, and grief. Parents were included in most studies. However, the number of mothers exceeded the number of fathers. Some researchers mentioned that there was no difference between their participants (most participants were Caucasian). Conclusion: There is limited information available about children and their family members’ experiences at EOL/ EOLC in Saudi Arabia as has been studied in other countries. Based on this systematic review, more studies are needed related to children at EOL in Saudi Arabia.Shahad HafezJulia SnethenJulie EllisMurad TaaniEmmanuel NguiAbdullah A. BaothmanInstitut Ilmu Kesehatan STRADA Indonesiaarticleend of lifeend of life caremotherschildrenparentsNursingRT1-120ENJournal of Nursing Practice, Vol 5, Iss 1, Pp 36-54 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	end of life end of life care mothers children parents Nursing RT1-120
spellingShingle	end of life end of life care mothers children parents Nursing RT1-120 Shahad Hafez Julia Snethen Julie Ellis Murad Taani Emmanuel Ngui Abdullah A. Baothman Mothers Caring for a Child at End of Life: A Systematic Review
description	Background: A mother feels complete when she fulfills her role in protecting her child from harm. If a child is diagnosed with a terminal illness and reaches End of Life (EOL), the mother’s life is affected negatively. The mother is affected mentally, psychologically, and physically because her child is dying. Purpose: Explore the recent studies that focused on experiences of mothers caring for a child receiving End of Life Care (EOLC) at home or a healthcare facility. Methods: An electronic search was done in multiple databases, including the University of Wisconsin-Milwaukee Library, PsycINFO, PubMed, CINAHL, and Academic Search Complete. The included studies were published within the past five years, studies about EOL/ EOLC, hospice care, pediatric care, quantitative, qualitative, and mixed methods studies. Thematic synthesis following PRISMA guidelines. Results: Four themes emerged from the thematic synthesis. The main themes included decision making challenges, communication with healthcare professionals, parents’ support system, and grief. Parents were included in most studies. However, the number of mothers exceeded the number of fathers. Some researchers mentioned that there was no difference between their participants (most participants were Caucasian). Conclusion: There is limited information available about children and their family members’ experiences at EOL/ EOLC in Saudi Arabia as has been studied in other countries. Based on this systematic review, more studies are needed related to children at EOL in Saudi Arabia.
format	article
author	Shahad Hafez Julia Snethen Julie Ellis Murad Taani Emmanuel Ngui Abdullah A. Baothman
author_facet	Shahad Hafez Julia Snethen Julie Ellis Murad Taani Emmanuel Ngui Abdullah A. Baothman
author_sort	Shahad Hafez
title	Mothers Caring for a Child at End of Life: A Systematic Review
title_short	Mothers Caring for a Child at End of Life: A Systematic Review
title_full	Mothers Caring for a Child at End of Life: A Systematic Review
title_fullStr	Mothers Caring for a Child at End of Life: A Systematic Review
title_full_unstemmed	Mothers Caring for a Child at End of Life: A Systematic Review
title_sort	mothers caring for a child at end of life: a systematic review
publisher	Institut Ilmu Kesehatan STRADA Indonesia
publishDate	2021
url	https://doaj.org/article/47a54f4a3f6e40be81036f5a4e4143e2
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Mothers Caring for a Child at End of Life: A Systematic Review

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