Barriers to adoption of a personal health record in an ophthalmic setting: lessons from implementation of a Glaucoma Patient Passport

Imad Badran,1,2 Alice Bruynseels,1,3 Salim Khan,2 Freda Sii,1,3 Peter Shah1,3–51Ophthalmology Department, Queen Elizabeth Hospital Birmingham, Birmingham, UK; 2Department for Therapies and Public Health, Birmingham City University, Birmingham, UK; 3Birmingham Ins...

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Autores principales:	Badran I, Bruynseels A, Khan S, Sii F, Shah P
Formato:	article
Lenguaje:	EN
Publicado:	Dove Medical Press 2019
Materias:	Chronic disease self-care patient passport ophthalmology Ophthalmology RE1-994
Acceso en línea:	https://doaj.org/article/4ba73ada80bd45b49c632f2686c61186
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spelling	oai:doaj.org-article:4ba73ada80bd45b49c632f2686c611862021-12-02T04:21:40ZBarriers to adoption of a personal health record in an ophthalmic setting: lessons from implementation of a Glaucoma Patient Passport1177-5483https://doaj.org/article/4ba73ada80bd45b49c632f2686c611862019-07-01T00:00:00Zhttps://www.dovepress.com/barriers-to-adoption-of-a-personal-health-record-in-an-ophthalmic-sett-peer-reviewed-article-OPTHhttps://doaj.org/toc/1177-5483Imad Badran,1,2 Alice Bruynseels,1,3 Salim Khan,2 Freda Sii,1,3 Peter Shah1,3–51Ophthalmology Department, Queen Elizabeth Hospital Birmingham, Birmingham, UK; 2Department for Therapies and Public Health, Birmingham City University, Birmingham, UK; 3Birmingham Institute for Glaucoma Research, Institute for Translational Medicine, Birmingham, UK; 4Institute of Ophthalmology, University College London, London, UK; 5Centre for Health and Social Care Improvement, School of Health and Wellbeing, University of Wolverhampton, Wolverhampton, UKPurpose: Self-care in chronic disease is increasingly important. In glaucoma services, there is an unmet need for a self-care tool such as a patient passport. This study aims to evaluate adoption of a new self-care tool, the Glaucoma Patient Passport (GPP) within a tertiary hospital glaucoma service.Patients and methods: The GPP was designed following consultation exercises between patients and clinicians at the first and second UK National Glaucoma Think Tanks. A patient questionnaire, comprising a mixed methods quantitative and qualitative research approach was used to explore the utility of GPP, patient attitude to GPP and barriers to adoption, 6 months after GPP receipt.Results: GPP feedback was received from 62 patients. On-going utilization of the GPP after receipt was high, at 84%, with patients most commonly using the GPP at home, to “look for information.” Seventy-three percent reported improved knowledge of glaucoma care since using the GPP, with two-thirds (63%) reporting that the GPP had improved their glaucoma care. Three main themes were identified in exploring barriers to GPP adoption; clinician involvement in GPP use, GPP size, and GPP use in visual impairment.Conclusion: Implementation and adoption of the world’s first GPP were a success. GPP utility was high and patient attitudes were predominantly positive, with improved self-care. However, several areas were identified for future GPP improvement. The GPP has the potential to improve patient self-care in glaucoma, bridging the care gap created by the increased workload in glaucoma services.Keywords: chronic disease, self-care, patient passport, ophthalmologyBadran IBruynseels AKhan SSii FShah PDove Medical PressarticleChronic diseaseself-carepatient passportophthalmologyOphthalmologyRE1-994ENClinical Ophthalmology, Vol Volume 13, Pp 1369-1375 (2019)
institution	DOAJ
collection	DOAJ
language	EN
topic	Chronic disease self-care patient passport ophthalmology Ophthalmology RE1-994
spellingShingle	Chronic disease self-care patient passport ophthalmology Ophthalmology RE1-994 Badran I Bruynseels A Khan S Sii F Shah P Barriers to adoption of a personal health record in an ophthalmic setting: lessons from implementation of a Glaucoma Patient Passport
description	Imad Badran,1,2 Alice Bruynseels,1,3 Salim Khan,2 Freda Sii,1,3 Peter Shah1,3–51Ophthalmology Department, Queen Elizabeth Hospital Birmingham, Birmingham, UK; 2Department for Therapies and Public Health, Birmingham City University, Birmingham, UK; 3Birmingham Institute for Glaucoma Research, Institute for Translational Medicine, Birmingham, UK; 4Institute of Ophthalmology, University College London, London, UK; 5Centre for Health and Social Care Improvement, School of Health and Wellbeing, University of Wolverhampton, Wolverhampton, UKPurpose: Self-care in chronic disease is increasingly important. In glaucoma services, there is an unmet need for a self-care tool such as a patient passport. This study aims to evaluate adoption of a new self-care tool, the Glaucoma Patient Passport (GPP) within a tertiary hospital glaucoma service.Patients and methods: The GPP was designed following consultation exercises between patients and clinicians at the first and second UK National Glaucoma Think Tanks. A patient questionnaire, comprising a mixed methods quantitative and qualitative research approach was used to explore the utility of GPP, patient attitude to GPP and barriers to adoption, 6 months after GPP receipt.Results: GPP feedback was received from 62 patients. On-going utilization of the GPP after receipt was high, at 84%, with patients most commonly using the GPP at home, to “look for information.” Seventy-three percent reported improved knowledge of glaucoma care since using the GPP, with two-thirds (63%) reporting that the GPP had improved their glaucoma care. Three main themes were identified in exploring barriers to GPP adoption; clinician involvement in GPP use, GPP size, and GPP use in visual impairment.Conclusion: Implementation and adoption of the world’s first GPP were a success. GPP utility was high and patient attitudes were predominantly positive, with improved self-care. However, several areas were identified for future GPP improvement. The GPP has the potential to improve patient self-care in glaucoma, bridging the care gap created by the increased workload in glaucoma services.Keywords: chronic disease, self-care, patient passport, ophthalmology
format	article
author	Badran I Bruynseels A Khan S Sii F Shah P
author_facet	Badran I Bruynseels A Khan S Sii F Shah P
author_sort	Badran I
title	Barriers to adoption of a personal health record in an ophthalmic setting: lessons from implementation of a Glaucoma Patient Passport
title_short	Barriers to adoption of a personal health record in an ophthalmic setting: lessons from implementation of a Glaucoma Patient Passport
title_full	Barriers to adoption of a personal health record in an ophthalmic setting: lessons from implementation of a Glaucoma Patient Passport
title_fullStr	Barriers to adoption of a personal health record in an ophthalmic setting: lessons from implementation of a Glaucoma Patient Passport
title_full_unstemmed	Barriers to adoption of a personal health record in an ophthalmic setting: lessons from implementation of a Glaucoma Patient Passport
title_sort	barriers to adoption of a personal health record in an ophthalmic setting: lessons from implementation of a glaucoma patient passport
publisher	Dove Medical Press
publishDate	2019
url	https://doaj.org/article/4ba73ada80bd45b49c632f2686c61186
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Barriers to adoption of a personal health record in an ophthalmic setting: lessons from implementation of a Glaucoma Patient Passport

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