An agenda-setting paper on data sharing platforms: euCanSHare workshop [version 2; peer review: 2 approved]

Various data sharing platforms are being developed to enhance the sharing of cohort data by addressing the fragmented state of data storage and access systems. However, policy challenges in several domains remain unresolved. The euCanSHare workshop was organized to identify and discuss these challen...

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Autores principales:	Thijs Devriendt, Clemens Ammann, Folkert W. Asselbergs, Alexander Bernier, Rodrigo Costas, Matthias G. Friedrich, Josep L. Gelpi, Marjo-Riitta Jarvelin, Kari Kuulasmaa, Karim Lekadir, Michaela Th. Mayrhofer, Vaclav Papez, Gerard Pasterkamp, Steffen E. Petersen, Carsten Oliver Schmidt, Jeanette Schulz-Menger, Stefan Söderberg, Mahsa Shabani, Giovanni Veronesi, Darian Steven Viezzer, Pascal Borry
Formato:	article
Lenguaje:	EN
Publicado:	F1000 Research Limited 2021
Materias:	Science Q Social Sciences H
Acceso en línea:	https://doaj.org/article/4e0a73b2dc8240bbb2c1deae52ecd943
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spelling	oai:doaj.org-article:4e0a73b2dc8240bbb2c1deae52ecd9432021-11-29T14:03:47ZAn agenda-setting paper on data sharing platforms: euCanSHare workshop [version 2; peer review: 2 approved]2732-512110.12688/openreseurope.13860.2https://doaj.org/article/4e0a73b2dc8240bbb2c1deae52ecd9432021-11-01T00:00:00Zhttps://open-research-europe.ec.europa.eu/articles/1-80/v2https://doaj.org/toc/2732-5121Various data sharing platforms are being developed to enhance the sharing of cohort data by addressing the fragmented state of data storage and access systems. However, policy challenges in several domains remain unresolved. The euCanSHare workshop was organized to identify and discuss these challenges and to set the future research agenda. Concerns over the multiplicity and long-term sustainability of platforms, lack of resources, access of commercial parties to medical data, credit and recognition mechanisms in academia and the organization of data access committees are outlined. Within these areas, solutions need to be devised to ensure an optimal functioning of platforms.Thijs DevriendtClemens AmmannFolkert W. AsselbergsAlexander BernierRodrigo CostasMatthias G. FriedrichJosep L. GelpiMarjo-Riitta JarvelinKari KuulasmaaKarim LekadirMichaela Th. MayrhoferVaclav PapezGerard PasterkampSteffen E. PetersenCarsten Oliver SchmidtJeanette Schulz-MengerStefan SöderbergMahsa ShabaniGiovanni VeronesiDarian Steven ViezzerPascal BorryF1000 Research LimitedarticleScienceQSocial SciencesHENOpen Research Europe, Vol 1 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Science Q Social Sciences H
spellingShingle	Science Q Social Sciences H Thijs Devriendt Clemens Ammann Folkert W. Asselbergs Alexander Bernier Rodrigo Costas Matthias G. Friedrich Josep L. Gelpi Marjo-Riitta Jarvelin Kari Kuulasmaa Karim Lekadir Michaela Th. Mayrhofer Vaclav Papez Gerard Pasterkamp Steffen E. Petersen Carsten Oliver Schmidt Jeanette Schulz-Menger Stefan Söderberg Mahsa Shabani Giovanni Veronesi Darian Steven Viezzer Pascal Borry An agenda-setting paper on data sharing platforms: euCanSHare workshop [version 2; peer review: 2 approved]
description	Various data sharing platforms are being developed to enhance the sharing of cohort data by addressing the fragmented state of data storage and access systems. However, policy challenges in several domains remain unresolved. The euCanSHare workshop was organized to identify and discuss these challenges and to set the future research agenda. Concerns over the multiplicity and long-term sustainability of platforms, lack of resources, access of commercial parties to medical data, credit and recognition mechanisms in academia and the organization of data access committees are outlined. Within these areas, solutions need to be devised to ensure an optimal functioning of platforms.
format	article
author	Thijs Devriendt Clemens Ammann Folkert W. Asselbergs Alexander Bernier Rodrigo Costas Matthias G. Friedrich Josep L. Gelpi Marjo-Riitta Jarvelin Kari Kuulasmaa Karim Lekadir Michaela Th. Mayrhofer Vaclav Papez Gerard Pasterkamp Steffen E. Petersen Carsten Oliver Schmidt Jeanette Schulz-Menger Stefan Söderberg Mahsa Shabani Giovanni Veronesi Darian Steven Viezzer Pascal Borry
author_facet	Thijs Devriendt Clemens Ammann Folkert W. Asselbergs Alexander Bernier Rodrigo Costas Matthias G. Friedrich Josep L. Gelpi Marjo-Riitta Jarvelin Kari Kuulasmaa Karim Lekadir Michaela Th. Mayrhofer Vaclav Papez Gerard Pasterkamp Steffen E. Petersen Carsten Oliver Schmidt Jeanette Schulz-Menger Stefan Söderberg Mahsa Shabani Giovanni Veronesi Darian Steven Viezzer Pascal Borry
author_sort	Thijs Devriendt
title	An agenda-setting paper on data sharing platforms: euCanSHare workshop [version 2; peer review: 2 approved]
title_short	An agenda-setting paper on data sharing platforms: euCanSHare workshop [version 2; peer review: 2 approved]
title_full	An agenda-setting paper on data sharing platforms: euCanSHare workshop [version 2; peer review: 2 approved]
title_fullStr	An agenda-setting paper on data sharing platforms: euCanSHare workshop [version 2; peer review: 2 approved]
title_full_unstemmed	An agenda-setting paper on data sharing platforms: euCanSHare workshop [version 2; peer review: 2 approved]
title_sort	agenda-setting paper on data sharing platforms: eucanshare workshop [version 2; peer review: 2 approved]
publisher	F1000 Research Limited
publishDate	2021
url	https://doaj.org/article/4e0a73b2dc8240bbb2c1deae52ecd943
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An agenda-setting paper on data sharing platforms: euCanSHare workshop [version 2; peer review: 2 approved]

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