Psychosocial factors that shape patient and carer experiences of dementia diagnosis and treatment: a systematic review of qualitative studies.
<h4>Background</h4>Early diagnosis and intervention for people with dementia is increasingly considered a priority, but practitioners are concerned with the effects of earlier diagnosis and interventions on patients and caregivers. This systematic review evaluates the qualitative evidenc...
Guardado en:
| Autores principales: | , , , , , , , |
|---|---|
| Formato: | article |
| Lenguaje: | EN |
| Publicado: |
Public Library of Science (PLoS)
2012
|
| Materias: | |
| Acceso en línea: | https://doaj.org/article/520a330978114af6ac75862b9793ebbe |
| Etiquetas: |
Agregar Etiqueta
Sin Etiquetas, Sea el primero en etiquetar este registro!
|
| id |
oai:doaj.org-article:520a330978114af6ac75862b9793ebbe |
|---|---|
| record_format |
dspace |
| spelling |
oai:doaj.org-article:520a330978114af6ac75862b9793ebbe2021-11-18T05:42:50ZPsychosocial factors that shape patient and carer experiences of dementia diagnosis and treatment: a systematic review of qualitative studies.1549-12771549-167610.1371/journal.pmed.1001331https://doaj.org/article/520a330978114af6ac75862b9793ebbe2012-10-01T00:00:00Zhttps://www.ncbi.nlm.nih.gov/pmc/articles/pmid/23118618/pdf/?tool=EBIhttps://doaj.org/toc/1549-1277https://doaj.org/toc/1549-1676<h4>Background</h4>Early diagnosis and intervention for people with dementia is increasingly considered a priority, but practitioners are concerned with the effects of earlier diagnosis and interventions on patients and caregivers. This systematic review evaluates the qualitative evidence about how people accommodate and adapt to the diagnosis of dementia and its immediate consequences, to guide practice.<h4>Methods and findings</h4>We systematically reviewed qualitative studies exploring experiences of community-dwelling individuals with dementia, and their carers, around diagnosis and the transition to becoming a person with dementia. We searched PubMed, PsychINFO, Embase, CINAHL, and the British Nursing Index (all searched in May 2010 with no date restrictions; PubMed search updated in February 2012), checked reference lists, and undertook citation searches in PubMed and Google Scholar (ongoing to September 2011). We used thematic synthesis to identify key themes, commonalities, barriers to earlier diagnosis, and support identified as helpful. We identified 126 papers reporting 102 studies including a total of 3,095 participants. Three overarching themes emerged from our analysis: (1) pathways through diagnosis, including its impact on identity, roles, and relationships; (2) resolving conflicts to accommodate a diagnosis, including the acceptability of support, focusing on the present or the future, and the use or avoidance of knowledge; and (3) strategies and support to minimise the impact of dementia. Consistent barriers to diagnosis include stigma, normalisation of symptoms, and lack of knowledge. Studies report a lack of specialist support particularly post-diagnosis.<h4>Conclusions</h4>There is an extensive body of qualitative literature on the experiences of community-dwelling individuals with dementia on receiving and adapting to a diagnosis of dementia. We present a thematic analysis that could be useful to professionals working with people with dementia. We suggest that research emphasis should shift towards the development and evaluation of interventions, particularly those providing support after diagnosis.Frances BunnClaire GoodmanKatie SwornGreta RaitCarol BrayneLouise RobinsonElaine McNeillySteve IliffePublic Library of Science (PLoS)articleMedicineRENPLoS Medicine, Vol 9, Iss 10, p e1001331 (2012) |
| institution |
DOAJ |
| collection |
DOAJ |
| language |
EN |
| topic |
Medicine R |
| spellingShingle |
Medicine R Frances Bunn Claire Goodman Katie Sworn Greta Rait Carol Brayne Louise Robinson Elaine McNeilly Steve Iliffe Psychosocial factors that shape patient and carer experiences of dementia diagnosis and treatment: a systematic review of qualitative studies. |
| description |
<h4>Background</h4>Early diagnosis and intervention for people with dementia is increasingly considered a priority, but practitioners are concerned with the effects of earlier diagnosis and interventions on patients and caregivers. This systematic review evaluates the qualitative evidence about how people accommodate and adapt to the diagnosis of dementia and its immediate consequences, to guide practice.<h4>Methods and findings</h4>We systematically reviewed qualitative studies exploring experiences of community-dwelling individuals with dementia, and their carers, around diagnosis and the transition to becoming a person with dementia. We searched PubMed, PsychINFO, Embase, CINAHL, and the British Nursing Index (all searched in May 2010 with no date restrictions; PubMed search updated in February 2012), checked reference lists, and undertook citation searches in PubMed and Google Scholar (ongoing to September 2011). We used thematic synthesis to identify key themes, commonalities, barriers to earlier diagnosis, and support identified as helpful. We identified 126 papers reporting 102 studies including a total of 3,095 participants. Three overarching themes emerged from our analysis: (1) pathways through diagnosis, including its impact on identity, roles, and relationships; (2) resolving conflicts to accommodate a diagnosis, including the acceptability of support, focusing on the present or the future, and the use or avoidance of knowledge; and (3) strategies and support to minimise the impact of dementia. Consistent barriers to diagnosis include stigma, normalisation of symptoms, and lack of knowledge. Studies report a lack of specialist support particularly post-diagnosis.<h4>Conclusions</h4>There is an extensive body of qualitative literature on the experiences of community-dwelling individuals with dementia on receiving and adapting to a diagnosis of dementia. We present a thematic analysis that could be useful to professionals working with people with dementia. We suggest that research emphasis should shift towards the development and evaluation of interventions, particularly those providing support after diagnosis. |
| format |
article |
| author |
Frances Bunn Claire Goodman Katie Sworn Greta Rait Carol Brayne Louise Robinson Elaine McNeilly Steve Iliffe |
| author_facet |
Frances Bunn Claire Goodman Katie Sworn Greta Rait Carol Brayne Louise Robinson Elaine McNeilly Steve Iliffe |
| author_sort |
Frances Bunn |
| title |
Psychosocial factors that shape patient and carer experiences of dementia diagnosis and treatment: a systematic review of qualitative studies. |
| title_short |
Psychosocial factors that shape patient and carer experiences of dementia diagnosis and treatment: a systematic review of qualitative studies. |
| title_full |
Psychosocial factors that shape patient and carer experiences of dementia diagnosis and treatment: a systematic review of qualitative studies. |
| title_fullStr |
Psychosocial factors that shape patient and carer experiences of dementia diagnosis and treatment: a systematic review of qualitative studies. |
| title_full_unstemmed |
Psychosocial factors that shape patient and carer experiences of dementia diagnosis and treatment: a systematic review of qualitative studies. |
| title_sort |
psychosocial factors that shape patient and carer experiences of dementia diagnosis and treatment: a systematic review of qualitative studies. |
| publisher |
Public Library of Science (PLoS) |
| publishDate |
2012 |
| url |
https://doaj.org/article/520a330978114af6ac75862b9793ebbe |
| work_keys_str_mv |
AT francesbunn psychosocialfactorsthatshapepatientandcarerexperiencesofdementiadiagnosisandtreatmentasystematicreviewofqualitativestudies AT clairegoodman psychosocialfactorsthatshapepatientandcarerexperiencesofdementiadiagnosisandtreatmentasystematicreviewofqualitativestudies AT katiesworn psychosocialfactorsthatshapepatientandcarerexperiencesofdementiadiagnosisandtreatmentasystematicreviewofqualitativestudies AT gretarait psychosocialfactorsthatshapepatientandcarerexperiencesofdementiadiagnosisandtreatmentasystematicreviewofqualitativestudies AT carolbrayne psychosocialfactorsthatshapepatientandcarerexperiencesofdementiadiagnosisandtreatmentasystematicreviewofqualitativestudies AT louiserobinson psychosocialfactorsthatshapepatientandcarerexperiencesofdementiadiagnosisandtreatmentasystematicreviewofqualitativestudies AT elainemcneilly psychosocialfactorsthatshapepatientandcarerexperiencesofdementiadiagnosisandtreatmentasystematicreviewofqualitativestudies AT steveiliffe psychosocialfactorsthatshapepatientandcarerexperiencesofdementiadiagnosisandtreatmentasystematicreviewofqualitativestudies |
| _version_ |
1718424784498327552 |