Paths of Emergency Department Care: Development of a Decision Aid to Facilitate Shared Decision Making in Goals of Care Discussions in the Acute Setting

Background Goals of care (GOC) conversations in the emergency department (ED) are often a brief discussion of code status rather than a patient-oriented dialogue. We aimed to develop a guide to facilitate conversations between ED clinicians and patients to elicit patient values and establish goals f...

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Autores principales: Laura E. Walker, M. Fernanda Bellolio, Claudia C. Dobler, Ian G. Hargraves, Robert J. Pignolo, Kevin Shaw, Jacob J. Strand, Bjorg Thorsteinsdottir, Michael E. Wilson, Erik P. Hess
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Publicado: SAGE Publishing 2021
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Acceso en línea:https://doaj.org/article/5418e36f851a40ed84e7d33460c57523
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spelling oai:doaj.org-article:5418e36f851a40ed84e7d33460c575232021-11-15T04:03:30ZPaths of Emergency Department Care: Development of a Decision Aid to Facilitate Shared Decision Making in Goals of Care Discussions in the Acute Setting2381-468310.1177/23814683211058082https://doaj.org/article/5418e36f851a40ed84e7d33460c575232021-11-01T00:00:00Zhttps://doi.org/10.1177/23814683211058082https://doaj.org/toc/2381-4683Background Goals of care (GOC) conversations in the emergency department (ED) are often a brief discussion of code status rather than a patient-oriented dialogue. We aimed to develop a guide to facilitate conversations between ED clinicians and patients to elicit patient values and establish goals for end-of-life care, while maintaining ED efficiency. Paths of ED Care , a conversation guide, is the product of this work. Design A multidisciplinary/multispecialty group used recommended practices to adapt a GOC conversation guide for ED patients. ED clinicians used the guide and provided feedback on content, design, and usability. Patient-clinician interactions were recorded for discussion analysis, and both were surveyed to inform iterative refinement. A series of discussions with patient representatives, multidisciplinary clinicians, bioethicists, and health care designers yielded feedback. We used a process similar to the International Patient Decision Aid Standards and provide comparison to these. Results A conversation guide, eight pages with each page 6 by 6 inches in dimension, uses patient-oriented prompts and includes seven sections: 1) evaluation of patient/family understanding of disease, 2) explanation of possible trajectories, 3) introduction to different pathways of care, 4) explanation of pathways, 5) assessment of understanding and concerns, 6) code status, and 7) personalized summary. Limitations Recruitment of sufficient number of patients/providers to the project was the primary limitation. Methods are limited to qualitative analysis of guide creation and feasibility without quantitative analysis. Conclusions Paths of ED Care is a guide to facilitate patient-centered shared decision making for ED patients, families, and clinicians regarding GOC. This may ensure care concordant with patients’ values and preferences. Use of the guide was well-received and facilitated meaningful conversations between patients and providers.Laura E. WalkerM. Fernanda BellolioClaudia C. DoblerIan G. HargravesRobert J. PignoloKevin ShawJacob J. StrandBjorg ThorsteinsdottirMichael E. WilsonErik P. HessSAGE PublishingarticleMedicine (General)R5-920ENMDM Policy & Practice, Vol 6 (2021)
institution DOAJ
collection DOAJ
language EN
topic Medicine (General)
R5-920
spellingShingle Medicine (General)
R5-920
Laura E. Walker
M. Fernanda Bellolio
Claudia C. Dobler
Ian G. Hargraves
Robert J. Pignolo
Kevin Shaw
Jacob J. Strand
Bjorg Thorsteinsdottir
Michael E. Wilson
Erik P. Hess
Paths of Emergency Department Care: Development of a Decision Aid to Facilitate Shared Decision Making in Goals of Care Discussions in the Acute Setting
description Background Goals of care (GOC) conversations in the emergency department (ED) are often a brief discussion of code status rather than a patient-oriented dialogue. We aimed to develop a guide to facilitate conversations between ED clinicians and patients to elicit patient values and establish goals for end-of-life care, while maintaining ED efficiency. Paths of ED Care , a conversation guide, is the product of this work. Design A multidisciplinary/multispecialty group used recommended practices to adapt a GOC conversation guide for ED patients. ED clinicians used the guide and provided feedback on content, design, and usability. Patient-clinician interactions were recorded for discussion analysis, and both were surveyed to inform iterative refinement. A series of discussions with patient representatives, multidisciplinary clinicians, bioethicists, and health care designers yielded feedback. We used a process similar to the International Patient Decision Aid Standards and provide comparison to these. Results A conversation guide, eight pages with each page 6 by 6 inches in dimension, uses patient-oriented prompts and includes seven sections: 1) evaluation of patient/family understanding of disease, 2) explanation of possible trajectories, 3) introduction to different pathways of care, 4) explanation of pathways, 5) assessment of understanding and concerns, 6) code status, and 7) personalized summary. Limitations Recruitment of sufficient number of patients/providers to the project was the primary limitation. Methods are limited to qualitative analysis of guide creation and feasibility without quantitative analysis. Conclusions Paths of ED Care is a guide to facilitate patient-centered shared decision making for ED patients, families, and clinicians regarding GOC. This may ensure care concordant with patients’ values and preferences. Use of the guide was well-received and facilitated meaningful conversations between patients and providers.
format article
author Laura E. Walker
M. Fernanda Bellolio
Claudia C. Dobler
Ian G. Hargraves
Robert J. Pignolo
Kevin Shaw
Jacob J. Strand
Bjorg Thorsteinsdottir
Michael E. Wilson
Erik P. Hess
author_facet Laura E. Walker
M. Fernanda Bellolio
Claudia C. Dobler
Ian G. Hargraves
Robert J. Pignolo
Kevin Shaw
Jacob J. Strand
Bjorg Thorsteinsdottir
Michael E. Wilson
Erik P. Hess
author_sort Laura E. Walker
title Paths of Emergency Department Care: Development of a Decision Aid to Facilitate Shared Decision Making in Goals of Care Discussions in the Acute Setting
title_short Paths of Emergency Department Care: Development of a Decision Aid to Facilitate Shared Decision Making in Goals of Care Discussions in the Acute Setting
title_full Paths of Emergency Department Care: Development of a Decision Aid to Facilitate Shared Decision Making in Goals of Care Discussions in the Acute Setting
title_fullStr Paths of Emergency Department Care: Development of a Decision Aid to Facilitate Shared Decision Making in Goals of Care Discussions in the Acute Setting
title_full_unstemmed Paths of Emergency Department Care: Development of a Decision Aid to Facilitate Shared Decision Making in Goals of Care Discussions in the Acute Setting
title_sort paths of emergency department care: development of a decision aid to facilitate shared decision making in goals of care discussions in the acute setting
publisher SAGE Publishing
publishDate 2021
url https://doaj.org/article/5418e36f851a40ed84e7d33460c57523
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