Promoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an Italian consensus statement

Abstract Background Inflammatory bowel diseases (IBD) are remitting and relapsing diseases that mainly interest the gastrointestinal tract. IBD is associated with a condition of psycho-social discomfort that deeply compromises the quality of life and the competence of patient to be fully engaged in...

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Autores principales:	Guendalina Graffigna, Caterina Bosio, Francesco Pagnini, Eleonora Volpato, Enrica Previtali, Salvatore Leone, Ferdinando D’Amico, Alessandro Armuzzi, Silvio Danese
Formato:	article
Lenguaje:	EN
Publicado:	BMC 2021
Materias:	Patient engagement IBD Psychological needs Quality of life Psychological support Psychology BF1-990
Acceso en línea:	https://doaj.org/article/54e1078ca94d4ace8fbe35921587e5c9
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spelling	oai:doaj.org-article:54e1078ca94d4ace8fbe35921587e5c92021-12-05T12:18:07ZPromoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an Italian consensus statement10.1186/s40359-021-00692-62050-7283https://doaj.org/article/54e1078ca94d4ace8fbe35921587e5c92021-11-01T00:00:00Zhttps://doi.org/10.1186/s40359-021-00692-6https://doaj.org/toc/2050-7283Abstract Background Inflammatory bowel diseases (IBD) are remitting and relapsing diseases that mainly interest the gastrointestinal tract. IBD is associated with a condition of psycho-social discomfort that deeply compromises the quality of life and the competence of patient to be fully engaged in their self-management. As a consequence, effective care of IBD patients should include not only medical but also psychological support in order to improve patients' wellbeing. Although this, to date there is no standardized approach to promote psychological wellbeing of IBD patients in order to improve the perception of the quality of the care. To fill this gap, a consensus conference has been organized in order to define the psychosocial needs of IBD patients and to promote their engagement in daily clinical practice. This paper describes the process implemented and illustrates the recommendations deriving from it, which focus on the importance of a multidisciplinary approach in IBD management. Results The consensus conference has been organized in three phases: (1) literature review about life experiences, engagement, and psychosocial needs of IBD patients; (2) workshops with IBD experts and patients’ representatives; (3) drafting of statements and voting. Seventy-three participants were involved in the consensus conference, and sixteen statements have been voted and approved during the consensus process. Conclusions The main conclusion is the necessity of the early detection of – and, in case of need, intervention on- psycho-social needs of patients in order to achieve patient involvement in IBD care.Guendalina GraffignaCaterina BosioFrancesco PagniniEleonora VolpatoEnrica PrevitaliSalvatore LeoneFerdinando D’AmicoAlessandro ArmuzziSilvio DaneseBMCarticlePatient engagementIBDPsychological needsQuality of lifePsychological supportPsychologyBF1-990ENBMC Psychology, Vol 9, Iss 1, Pp 1-14 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Patient engagement IBD Psychological needs Quality of life Psychological support Psychology BF1-990
spellingShingle	Patient engagement IBD Psychological needs Quality of life Psychological support Psychology BF1-990 Guendalina Graffigna Caterina Bosio Francesco Pagnini Eleonora Volpato Enrica Previtali Salvatore Leone Ferdinando D’Amico Alessandro Armuzzi Silvio Danese Promoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an Italian consensus statement
description	Abstract Background Inflammatory bowel diseases (IBD) are remitting and relapsing diseases that mainly interest the gastrointestinal tract. IBD is associated with a condition of psycho-social discomfort that deeply compromises the quality of life and the competence of patient to be fully engaged in their self-management. As a consequence, effective care of IBD patients should include not only medical but also psychological support in order to improve patients' wellbeing. Although this, to date there is no standardized approach to promote psychological wellbeing of IBD patients in order to improve the perception of the quality of the care. To fill this gap, a consensus conference has been organized in order to define the psychosocial needs of IBD patients and to promote their engagement in daily clinical practice. This paper describes the process implemented and illustrates the recommendations deriving from it, which focus on the importance of a multidisciplinary approach in IBD management. Results The consensus conference has been organized in three phases: (1) literature review about life experiences, engagement, and psychosocial needs of IBD patients; (2) workshops with IBD experts and patients’ representatives; (3) drafting of statements and voting. Seventy-three participants were involved in the consensus conference, and sixteen statements have been voted and approved during the consensus process. Conclusions The main conclusion is the necessity of the early detection of – and, in case of need, intervention on- psycho-social needs of patients in order to achieve patient involvement in IBD care.
format	article
author	Guendalina Graffigna Caterina Bosio Francesco Pagnini Eleonora Volpato Enrica Previtali Salvatore Leone Ferdinando D’Amico Alessandro Armuzzi Silvio Danese
author_facet	Guendalina Graffigna Caterina Bosio Francesco Pagnini Eleonora Volpato Enrica Previtali Salvatore Leone Ferdinando D’Amico Alessandro Armuzzi Silvio Danese
author_sort	Guendalina Graffigna
title	Promoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an Italian consensus statement
title_short	Promoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an Italian consensus statement
title_full	Promoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an Italian consensus statement
title_fullStr	Promoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an Italian consensus statement
title_full_unstemmed	Promoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an Italian consensus statement
title_sort	promoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an italian consensus statement
publisher	BMC
publishDate	2021
url	https://doaj.org/article/54e1078ca94d4ace8fbe35921587e5c9
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Promoting psycho-social wellbeing for engaging inflammatory bowel disease patients in their care: an Italian consensus statement

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