Measuring Duchenne muscular dystrophy impact: development of a proxy-reported measure derived from PROMIS item banks
Abstract Background Person-reported outcomes measurement development for rare diseases has lagged behind that of more common diseases. In studies of caregivers of patients with rare diseases, one relies on proxy report to characterize this disability. It is important to measure the child’s disabilit...
Saved in:
| Main Authors: | , , , , , |
|---|---|
| Format: | article |
| Language: | EN |
| Published: |
BMC
2021
|
| Subjects: | |
| Online Access: | https://doaj.org/article/5adabc4ef23b4480bcb66f6b4683aadc |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
Be the first to leave a comment!