Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe [version 2; peer review: 2 approved]

Background: Generalisation of findings is an important aspect of research and essential for evidence-based practice. While generalisation is common in quantitative research, there is a lack of generalisability in qualitative research. This paper presents the experience and challenges faced by the De...

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Autores principales: Jennifer N.W. Lim, Kristina Niedderer, Isabelle Tournier, Rosa Almeida, Dew Harrison, Vjera Holthoff-Detto, Geke Ludden, Thomas van Rompay, Mascha van der Voort, Aleksandra Galansinska, Tina Smith, Raquel L. Lasada, Yolanda A. Bueno, Diana Druschke, Berit Ziebuhr, Michele Zanasi
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Publicado: F1000 Research Limited 2021
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Acceso en línea:https://doaj.org/article/6040926a37614e5b9a327f06a72d470d
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spelling oai:doaj.org-article:6040926a37614e5b9a327f06a72d470d2021-11-15T15:26:28ZAssessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe [version 2; peer review: 2 approved]2732-512110.12688/openreseurope.13700.2https://doaj.org/article/6040926a37614e5b9a327f06a72d470d2021-09-01T00:00:00Zhttps://open-research-europe.ec.europa.eu/articles/1-64/v2https://doaj.org/toc/2732-5121Background: Generalisation of findings is an important aspect of research and essential for evidence-based practice. While generalisation is common in quantitative research, there is a lack of generalisability in qualitative research. This paper presents the experience and challenges faced by the Designing for People with Dementia (MinD) project in meeting the requirements to strengthen the generalisation of findings on the lived experience of people living with dementia and their engagement to co-create designs to empower their everyday living.   Methods: Polit and Beck (2010)’s strategies to generalise qualitative findings were applied: (1) replication in sampling; (2) replication of studies; (3) meta-synthesis of findings; (4) reflexivity and conceptualization; (5) immersion with the data; and (6) thick description. Results: While it is possible to increase the generabilisabilty of qualitative evidence through the replication of the sampling to attain a large, heterogeneous sample in different and multiple contexts and environments; implementation of sound and robust research; conducting in-depth analysis and interpretation collaboratively for emergent themes; and meeting the thick description requirement, there are challenges that the project team faced in implementing some of the Polit and Beck’s strategies because of the condition, namely dementia, that our participants are having. Other challenges faced were: the language and cultural diversity in the team; diverse  work and organisational procedures; and the inter-disciplinary differences relating to the methods of enquiry, approaches and techniques to conduct research. These challenges will need to be identified and addressed at the start of the project with a strong leadership to ensure a seamless journey to complete the project successfully. Trust between the researchers and participants, and time to build this trust are critical to recruitment and participation in the study; these factors are of utmost important in research involving participants with condition such as dementia.Jennifer N.W. LimKristina NieddererIsabelle TournierRosa AlmeidaDew HarrisonVjera Holthoff-DettoGeke LuddenThomas van RompayMascha van der VoortAleksandra GalansinskaTina SmithRaquel L. LasadaYolanda A. BuenoDiana DruschkeBerit ZiebuhrMichele ZanasiF1000 Research LimitedarticleScienceQSocial SciencesHENOpen Research Europe, Vol 1 (2021)
institution DOAJ
collection DOAJ
language EN
topic Science
Q
Social Sciences
H
spellingShingle Science
Q
Social Sciences
H
Jennifer N.W. Lim
Kristina Niedderer
Isabelle Tournier
Rosa Almeida
Dew Harrison
Vjera Holthoff-Detto
Geke Ludden
Thomas van Rompay
Mascha van der Voort
Aleksandra Galansinska
Tina Smith
Raquel L. Lasada
Yolanda A. Bueno
Diana Druschke
Berit Ziebuhr
Michele Zanasi
Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe [version 2; peer review: 2 approved]
description Background: Generalisation of findings is an important aspect of research and essential for evidence-based practice. While generalisation is common in quantitative research, there is a lack of generalisability in qualitative research. This paper presents the experience and challenges faced by the Designing for People with Dementia (MinD) project in meeting the requirements to strengthen the generalisation of findings on the lived experience of people living with dementia and their engagement to co-create designs to empower their everyday living.   Methods: Polit and Beck (2010)’s strategies to generalise qualitative findings were applied: (1) replication in sampling; (2) replication of studies; (3) meta-synthesis of findings; (4) reflexivity and conceptualization; (5) immersion with the data; and (6) thick description. Results: While it is possible to increase the generabilisabilty of qualitative evidence through the replication of the sampling to attain a large, heterogeneous sample in different and multiple contexts and environments; implementation of sound and robust research; conducting in-depth analysis and interpretation collaboratively for emergent themes; and meeting the thick description requirement, there are challenges that the project team faced in implementing some of the Polit and Beck’s strategies because of the condition, namely dementia, that our participants are having. Other challenges faced were: the language and cultural diversity in the team; diverse  work and organisational procedures; and the inter-disciplinary differences relating to the methods of enquiry, approaches and techniques to conduct research. These challenges will need to be identified and addressed at the start of the project with a strong leadership to ensure a seamless journey to complete the project successfully. Trust between the researchers and participants, and time to build this trust are critical to recruitment and participation in the study; these factors are of utmost important in research involving participants with condition such as dementia.
format article
author Jennifer N.W. Lim
Kristina Niedderer
Isabelle Tournier
Rosa Almeida
Dew Harrison
Vjera Holthoff-Detto
Geke Ludden
Thomas van Rompay
Mascha van der Voort
Aleksandra Galansinska
Tina Smith
Raquel L. Lasada
Yolanda A. Bueno
Diana Druschke
Berit Ziebuhr
Michele Zanasi
author_facet Jennifer N.W. Lim
Kristina Niedderer
Isabelle Tournier
Rosa Almeida
Dew Harrison
Vjera Holthoff-Detto
Geke Ludden
Thomas van Rompay
Mascha van der Voort
Aleksandra Galansinska
Tina Smith
Raquel L. Lasada
Yolanda A. Bueno
Diana Druschke
Berit Ziebuhr
Michele Zanasi
author_sort Jennifer N.W. Lim
title Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe [version 2; peer review: 2 approved]
title_short Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe [version 2; peer review: 2 approved]
title_full Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe [version 2; peer review: 2 approved]
title_fullStr Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe [version 2; peer review: 2 approved]
title_full_unstemmed Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe [version 2; peer review: 2 approved]
title_sort assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the mind project in europe [version 2; peer review: 2 approved]
publisher F1000 Research Limited
publishDate 2021
url https://doaj.org/article/6040926a37614e5b9a327f06a72d470d
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