Measuring mental wellness among adolescents living with a physical chronic condition: a systematic review of the mental health and mental well-being instruments

Abstract Background Globally, promoting mental health and well-being among adolescents has become a public health priority, especially for adolescents living with a physical chronic condition (CC), as research suggests they may be more at risk of developing mental health co-morbidities. Valid and re...

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Autores principales:	Zaida Orth, Brian van Wyk
Formato:	article
Lenguaje:	EN
Publicado:	BMC 2021
Materias:	Adolescent Mental Health Well-being Health Measurement Psychology BF1-990
Acceso en línea:	https://doaj.org/article/637c43aa76ec422e89897c6889ed91f9
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spelling	oai:doaj.org-article:637c43aa76ec422e89897c6889ed91f92021-11-14T12:28:07ZMeasuring mental wellness among adolescents living with a physical chronic condition: a systematic review of the mental health and mental well-being instruments10.1186/s40359-021-00680-w2050-7283https://doaj.org/article/637c43aa76ec422e89897c6889ed91f92021-11-01T00:00:00Zhttps://doi.org/10.1186/s40359-021-00680-whttps://doaj.org/toc/2050-7283Abstract Background Globally, promoting mental health and well-being among adolescents has become a public health priority, especially for adolescents living with a physical chronic condition (CC), as research suggests they may be more at risk of developing mental health co-morbidities. Valid and reliable instruments are needed to measure and better understand mental health and mental well-being among adolescents living with a CC. To this end, we reviewed studies reporting on mental health and well-being instruments used in adolescent populations living with a chronic physical condition/disease globally. Methods We used a systematic review method guided by PRISMA to identify assess mental health and mental well-being instruments used in adolescents living with a CC. In this instance, mental health instruments were defined as those representing negative domains of mental health (i.e. depression and anxiety) while mental well-being instruments included positive aspects of mental health (i.e. self-concept and resilience). Results We identified 22 articles, which included 31 instruments that were used to measure either mental health (n = 8) or mental well-being (n = 15) or both (n = 8) in adolescents living with a CC. Of these, thirteen studies used a Health-Related Quality of Life (HRQoL) scale to measure mental health and/or mental well-being. The KIDSCREEN questionnaires and the Strengths and Difficulties Questionnaire were identified as being frequently used across the 22 studies. Additionally, 7 out of the 31 instruments were disease specific, with 3 focusing on adolescents with diabetes. All the instruments were developed in high income countries and adapted for use in lower- and middle-income countries (LMICs). Adolescents with Type 1 Diabetes (n = 7) and HIV (n = 4) were researched in 11 out of 22 studies. Only eight studies were conducted in LMIC, of which four were in Africa. Conclusions HRQoL instruments are useful in measuring mental health and well-being in adolescents living with a CC. However, relatively few valid measures of mental health and mental well-being for adolescents living with a CC exist, which accentuates the paucity of research on mental health and mental well-being of adolescents who are living with a CC. Specific measures need to be developed in and for LMICs where cultural contexts affect mental well-being in unique ways. Systematic review registration: PROSPERO CRD42020186707.Zaida OrthBrian van WykBMCarticleAdolescentMental HealthWell-beingHealthMeasurementPsychologyBF1-990ENBMC Psychology, Vol 9, Iss 1, Pp 1-17 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Adolescent Mental Health Well-being Health Measurement Psychology BF1-990
spellingShingle	Adolescent Mental Health Well-being Health Measurement Psychology BF1-990 Zaida Orth Brian van Wyk Measuring mental wellness among adolescents living with a physical chronic condition: a systematic review of the mental health and mental well-being instruments
description	Abstract Background Globally, promoting mental health and well-being among adolescents has become a public health priority, especially for adolescents living with a physical chronic condition (CC), as research suggests they may be more at risk of developing mental health co-morbidities. Valid and reliable instruments are needed to measure and better understand mental health and mental well-being among adolescents living with a CC. To this end, we reviewed studies reporting on mental health and well-being instruments used in adolescent populations living with a chronic physical condition/disease globally. Methods We used a systematic review method guided by PRISMA to identify assess mental health and mental well-being instruments used in adolescents living with a CC. In this instance, mental health instruments were defined as those representing negative domains of mental health (i.e. depression and anxiety) while mental well-being instruments included positive aspects of mental health (i.e. self-concept and resilience). Results We identified 22 articles, which included 31 instruments that were used to measure either mental health (n = 8) or mental well-being (n = 15) or both (n = 8) in adolescents living with a CC. Of these, thirteen studies used a Health-Related Quality of Life (HRQoL) scale to measure mental health and/or mental well-being. The KIDSCREEN questionnaires and the Strengths and Difficulties Questionnaire were identified as being frequently used across the 22 studies. Additionally, 7 out of the 31 instruments were disease specific, with 3 focusing on adolescents with diabetes. All the instruments were developed in high income countries and adapted for use in lower- and middle-income countries (LMICs). Adolescents with Type 1 Diabetes (n = 7) and HIV (n = 4) were researched in 11 out of 22 studies. Only eight studies were conducted in LMIC, of which four were in Africa. Conclusions HRQoL instruments are useful in measuring mental health and well-being in adolescents living with a CC. However, relatively few valid measures of mental health and mental well-being for adolescents living with a CC exist, which accentuates the paucity of research on mental health and mental well-being of adolescents who are living with a CC. Specific measures need to be developed in and for LMICs where cultural contexts affect mental well-being in unique ways. Systematic review registration: PROSPERO CRD42020186707.
format	article
author	Zaida Orth Brian van Wyk
author_facet	Zaida Orth Brian van Wyk
author_sort	Zaida Orth
title	Measuring mental wellness among adolescents living with a physical chronic condition: a systematic review of the mental health and mental well-being instruments
title_short	Measuring mental wellness among adolescents living with a physical chronic condition: a systematic review of the mental health and mental well-being instruments
title_full	Measuring mental wellness among adolescents living with a physical chronic condition: a systematic review of the mental health and mental well-being instruments
title_fullStr	Measuring mental wellness among adolescents living with a physical chronic condition: a systematic review of the mental health and mental well-being instruments
title_full_unstemmed	Measuring mental wellness among adolescents living with a physical chronic condition: a systematic review of the mental health and mental well-being instruments
title_sort	measuring mental wellness among adolescents living with a physical chronic condition: a systematic review of the mental health and mental well-being instruments
publisher	BMC
publishDate	2021
url	https://doaj.org/article/637c43aa76ec422e89897c6889ed91f9
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Measuring mental wellness among adolescents living with a physical chronic condition: a systematic review of the mental health and mental well-being instruments

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