What constitutes the patient experience of children? Findings from the photo elicitation and the video diary study

Patient experience (PX) is getting attention among researchers and healthcare service providers, but little is known about the experiences of child patients and how to explore those. This paper reports findings from a study in which two participatory research methods, photo elicitation and video dia...

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Autores principales:	Nina Karisalmi, Hanna Stenhammar, Johanna Kaipio
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2018
Materias:	children hospital patient experience pediatrics photo elicitation method teens video diary method Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/6469f3aeba564687bf2baed784fd05e4
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spelling	oai:doaj.org-article:6469f3aeba564687bf2baed784fd05e42021-11-15T04:25:52ZWhat constitutes the patient experience of children? Findings from the photo elicitation and the video diary study2372-0247https://doaj.org/article/6469f3aeba564687bf2baed784fd05e42018-07-01T00:00:00Zhttps://pxjournal.org/journal/vol5/iss2/9https://doaj.org/toc/2372-0247Patient experience (PX) is getting attention among researchers and healthcare service providers, but little is known about the experiences of child patients and how to explore those. This paper reports findings from a study in which two participatory research methods, photo elicitation and video diary, were applied to investigate the elements of children’s PX in the context of children’s hospital. The aim was to find out what elements constitute the PX of children aged 7–16 years. The research data were gathered in 2016–2017. Twenty-two child patients participated in the study: eight children aged between 7 and 10 in the photo elicitation part, and fourteen children aged from 10 to 16 in the video diary part. In the analysis, the data were first analyzed per research method but afterwards combined and analyzed together. Based on the analysis, four main themes of PX of children were identified: 1) hospital facilities and entertainment, 2) medical care, 3) social relationships with the hospital personnel and other people, and 4) feelings and coping with the illness. Feedback on the research methods from the participated children was mainly positive. Further work is needed to validate the findings and introduce new creative approaches to research PX of children of different ages.Nina KarisalmiHanna StenhammarJohanna KaipioThe Beryl Institutearticlechildrenhospitalpatient experiencepediatricsphoto elicitation methodteensvideo diary methodMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2018)
institution	DOAJ
collection	DOAJ
language	EN
topic	children hospital patient experience pediatrics photo elicitation method teens video diary method Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	children hospital patient experience pediatrics photo elicitation method teens video diary method Medicine (General) R5-920 Public aspects of medicine RA1-1270 Nina Karisalmi Hanna Stenhammar Johanna Kaipio What constitutes the patient experience of children? Findings from the photo elicitation and the video diary study
description	Patient experience (PX) is getting attention among researchers and healthcare service providers, but little is known about the experiences of child patients and how to explore those. This paper reports findings from a study in which two participatory research methods, photo elicitation and video diary, were applied to investigate the elements of children’s PX in the context of children’s hospital. The aim was to find out what elements constitute the PX of children aged 7–16 years. The research data were gathered in 2016–2017. Twenty-two child patients participated in the study: eight children aged between 7 and 10 in the photo elicitation part, and fourteen children aged from 10 to 16 in the video diary part. In the analysis, the data were first analyzed per research method but afterwards combined and analyzed together. Based on the analysis, four main themes of PX of children were identified: 1) hospital facilities and entertainment, 2) medical care, 3) social relationships with the hospital personnel and other people, and 4) feelings and coping with the illness. Feedback on the research methods from the participated children was mainly positive. Further work is needed to validate the findings and introduce new creative approaches to research PX of children of different ages.
format	article
author	Nina Karisalmi Hanna Stenhammar Johanna Kaipio
author_facet	Nina Karisalmi Hanna Stenhammar Johanna Kaipio
author_sort	Nina Karisalmi
title	What constitutes the patient experience of children? Findings from the photo elicitation and the video diary study
title_short	What constitutes the patient experience of children? Findings from the photo elicitation and the video diary study
title_full	What constitutes the patient experience of children? Findings from the photo elicitation and the video diary study
title_fullStr	What constitutes the patient experience of children? Findings from the photo elicitation and the video diary study
title_full_unstemmed	What constitutes the patient experience of children? Findings from the photo elicitation and the video diary study
title_sort	what constitutes the patient experience of children? findings from the photo elicitation and the video diary study
publisher	The Beryl Institute
publishDate	2018
url	https://doaj.org/article/6469f3aeba564687bf2baed784fd05e4
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What constitutes the patient experience of children? Findings from the photo elicitation and the video diary study

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