Patient education in the hospital-at-home care context

The objective of this study is to describe adult patients’ and their family caregivers’ experiences of patient education in the hospital-at-home care context. Methods included a cross-sectional descriptive study including three hospital-at-home units in Finland. Adult, non-palliative patients (n = 2...

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Autores principales:	Heli Vaartio-Rajalin, Linda Nyholm, Lisbeth Fagerström
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2020
Materias:	patient education family caregivers hospital-at-home person-centered care pairwise interviews Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/661f23fa96f64d73a2df5a1a85547f99
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spelling	oai:doaj.org-article:661f23fa96f64d73a2df5a1a85547f992021-11-15T04:31:12ZPatient education in the hospital-at-home care context2372-0247https://doaj.org/article/661f23fa96f64d73a2df5a1a85547f992020-04-01T00:00:00Zhttps://pxjournal.org/journal/vol7/iss1/9https://doaj.org/toc/2372-0247The objective of this study is to describe adult patients’ and their family caregivers’ experiences of patient education in the hospital-at-home care context. Methods included a cross-sectional descriptive study including three hospital-at-home units in Finland. Adult, non-palliative patients (n = 27) and their family caregivers (n = 18) were interviewed pairwise by telephone, and the data analyzed with inductive thematic content analysis. COREQ guidelines were used to plan and guide the study design. Results concluded both patients and family caregivers seemed to have quite similar knowledge expectations, which only differs slightly from findings in other in- or outpatient contexts. In the hospital-at-home context, there is an evident need for clinical coaching and guidance in relation to self-care activities and for future-oriented education about the services available after hospital-at-home care. Six themes describing patients’ and family caregivers’ experiences of patient education in the hospital-at-home care context emerged, from patient-centered, goal-oriented and empowering education to the bypassed education of both patients and family caregivers. We conclude that in the hospital-at-home care context, the patient is not alone in his/her illness but instead the patient and family caregiver together form a unit. Thus, the need exists for extended, iterative patient education in hospital-at-home care: need for clinical coaching, guidance and support in relation to self-care activities and for future-oriented education about the services available after HAH care. Such extended patient education, in which patients’ family caregivers were included, strengthens the patient-family caregiver relationship, minimizes caregiver burden and the need for additional healthcare services. <strong>Experience Framework</strong> This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul>Heli Vaartio-RajalinLinda NyholmLisbeth FagerströmThe Beryl Institutearticlepatient educationfamily caregivershospital-at-homeperson-centered carepairwise interviewsMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2020)
institution	DOAJ
collection	DOAJ
language	EN
topic	patient education family caregivers hospital-at-home person-centered care pairwise interviews Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	patient education family caregivers hospital-at-home person-centered care pairwise interviews Medicine (General) R5-920 Public aspects of medicine RA1-1270 Heli Vaartio-Rajalin Linda Nyholm Lisbeth Fagerström Patient education in the hospital-at-home care context
description	The objective of this study is to describe adult patients’ and their family caregivers’ experiences of patient education in the hospital-at-home care context. Methods included a cross-sectional descriptive study including three hospital-at-home units in Finland. Adult, non-palliative patients (n = 27) and their family caregivers (n = 18) were interviewed pairwise by telephone, and the data analyzed with inductive thematic content analysis. COREQ guidelines were used to plan and guide the study design. Results concluded both patients and family caregivers seemed to have quite similar knowledge expectations, which only differs slightly from findings in other in- or outpatient contexts. In the hospital-at-home context, there is an evident need for clinical coaching and guidance in relation to self-care activities and for future-oriented education about the services available after hospital-at-home care. Six themes describing patients’ and family caregivers’ experiences of patient education in the hospital-at-home care context emerged, from patient-centered, goal-oriented and empowering education to the bypassed education of both patients and family caregivers. We conclude that in the hospital-at-home care context, the patient is not alone in his/her illness but instead the patient and family caregiver together form a unit. Thus, the need exists for extended, iterative patient education in hospital-at-home care: need for clinical coaching, guidance and support in relation to self-care activities and for future-oriented education about the services available after HAH care. Such extended patient education, in which patients’ family caregivers were included, strengthens the patient-family caregiver relationship, minimizes caregiver burden and the need for additional healthcare services. <strong>Experience Framework</strong> This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul>
format	article
author	Heli Vaartio-Rajalin Linda Nyholm Lisbeth Fagerström
author_facet	Heli Vaartio-Rajalin Linda Nyholm Lisbeth Fagerström
author_sort	Heli Vaartio-Rajalin
title	Patient education in the hospital-at-home care context
title_short	Patient education in the hospital-at-home care context
title_full	Patient education in the hospital-at-home care context
title_fullStr	Patient education in the hospital-at-home care context
title_full_unstemmed	Patient education in the hospital-at-home care context
title_sort	patient education in the hospital-at-home care context
publisher	The Beryl Institute
publishDate	2020
url	https://doaj.org/article/661f23fa96f64d73a2df5a1a85547f99
work_keys_str_mv	AT helivaartiorajalin patienteducationinthehospitalathomecarecontext AT lindanyholm patienteducationinthehospitalathomecarecontext AT lisbethfagerstrom patienteducationinthehospitalathomecarecontext
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Patient education in the hospital-at-home care context

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