Falling Through the Cracks: The Current Gap in the Health Care Transition of Patients With Kawasaki Disease<subtitle>A Scientific Statement From the American Heart Association</subtitle>

Background Health care transition (HCT) is a period of high vulnerability for patients with chronic childhood diseases, particularly when patients shift from a pediatric to an adult care setting. An increasing number of patients with Kawasaki disease (KD) who develop medium and large coronary artery...

Descripción completa

Guardado en:

Detalles Bibliográficos
Autores principales:	Nagib Dahdah, Samuel C. Kung, Kevin G. Friedman, Ariane Marelli, John B. Gordon, Ermias D. Belay, Annette L. Baker, Dhruv S. Kazi, Patience H. White, Adriana H. Tremoulet
Formato:	article
Lenguaje:	EN
Publicado:	Wiley 2021
Materias:	AHA Scientific Statements coronary artery aneurysms health care transition Kawasaki disease transition of care Diseases of the circulatory (Cardiovascular) system RC666-701
Acceso en línea:	https://doaj.org/article/67402fddc0c44a5d9f676d165987b5e9
Etiquetas:	Agregar Etiqueta Sin Etiquetas, Sea el primero en etiquetar este registro!

id	oai:doaj.org-article:67402fddc0c44a5d9f676d165987b5e9
record_format	dspace
spelling	oai:doaj.org-article:67402fddc0c44a5d9f676d165987b5e92021-11-12T07:00:31ZFalling Through the Cracks: The Current Gap in the Health Care Transition of Patients With Kawasaki Disease<subtitle>A Scientific Statement From the American Heart Association</subtitle>10.1161/JAHA.121.0233102047-9980https://doaj.org/article/67402fddc0c44a5d9f676d165987b5e92021-10-01T00:00:00Zhttps://www.ahajournals.org/doi/10.1161/JAHA.121.023310https://doaj.org/toc/2047-9980Background Health care transition (HCT) is a period of high vulnerability for patients with chronic childhood diseases, particularly when patients shift from a pediatric to an adult care setting. An increasing number of patients with Kawasaki disease (KD) who develop medium and large coronary artery aneurysms (classified by the American Heart Association according to maximal internal coronary artery diameter Z‐scores ≥5 and ≥10, respectively) are becoming adults and thus undergoing an HCT. However, a poor transition to an adult provider represents a risk of loss to follow‐up, which can result in increasing morbidity and mortality. Methods and Results This scientific statement provides a summary of available literature and expert opinion pertaining to KD and HCT of children as they reach adulthood. The statement reviews the existing life‐long risks for patients with KD, explains current guidelines for long‐term care of patients with KD, and offers guidance on assessment and preparation of patients with KD for HCT. The key element to a successful HCT, enabling successful transition outcomes, is having a structured intervention that incorporates the components of planning, transfer, and integration into adult care. This structured intervention can be accomplished by using the Six Core Elements approach that is recommended by the American Academy of Pediatrics, the American Academy of Family Physicians, and the American College of Physicians. Conclusions Formal HCT programs for patients with KD who develop aneurysms should be established to ensure a smooth transition with uninterrupted medical care as these youths become adults.Nagib DahdahSamuel C. KungKevin G. FriedmanAriane MarelliJohn B. GordonErmias D. BelayAnnette L. BakerDhruv S. KaziPatience H. WhiteAdriana H. TremouletWileyarticleAHA Scientific Statementscoronary artery aneurysmshealth care transitionKawasaki diseasetransition of careDiseases of the circulatory (Cardiovascular) systemRC666-701ENJournal of the American Heart Association: Cardiovascular and Cerebrovascular Disease, Vol 10, Iss 20 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	AHA Scientific Statements coronary artery aneurysms health care transition Kawasaki disease transition of care Diseases of the circulatory (Cardiovascular) system RC666-701
spellingShingle	AHA Scientific Statements coronary artery aneurysms health care transition Kawasaki disease transition of care Diseases of the circulatory (Cardiovascular) system RC666-701 Nagib Dahdah Samuel C. Kung Kevin G. Friedman Ariane Marelli John B. Gordon Ermias D. Belay Annette L. Baker Dhruv S. Kazi Patience H. White Adriana H. Tremoulet Falling Through the Cracks: The Current Gap in the Health Care Transition of Patients With Kawasaki Disease<subtitle>A Scientific Statement From the American Heart Association</subtitle>
description	Background Health care transition (HCT) is a period of high vulnerability for patients with chronic childhood diseases, particularly when patients shift from a pediatric to an adult care setting. An increasing number of patients with Kawasaki disease (KD) who develop medium and large coronary artery aneurysms (classified by the American Heart Association according to maximal internal coronary artery diameter Z‐scores ≥5 and ≥10, respectively) are becoming adults and thus undergoing an HCT. However, a poor transition to an adult provider represents a risk of loss to follow‐up, which can result in increasing morbidity and mortality. Methods and Results This scientific statement provides a summary of available literature and expert opinion pertaining to KD and HCT of children as they reach adulthood. The statement reviews the existing life‐long risks for patients with KD, explains current guidelines for long‐term care of patients with KD, and offers guidance on assessment and preparation of patients with KD for HCT. The key element to a successful HCT, enabling successful transition outcomes, is having a structured intervention that incorporates the components of planning, transfer, and integration into adult care. This structured intervention can be accomplished by using the Six Core Elements approach that is recommended by the American Academy of Pediatrics, the American Academy of Family Physicians, and the American College of Physicians. Conclusions Formal HCT programs for patients with KD who develop aneurysms should be established to ensure a smooth transition with uninterrupted medical care as these youths become adults.
format	article
author	Nagib Dahdah Samuel C. Kung Kevin G. Friedman Ariane Marelli John B. Gordon Ermias D. Belay Annette L. Baker Dhruv S. Kazi Patience H. White Adriana H. Tremoulet
author_facet	Nagib Dahdah Samuel C. Kung Kevin G. Friedman Ariane Marelli John B. Gordon Ermias D. Belay Annette L. Baker Dhruv S. Kazi Patience H. White Adriana H. Tremoulet
author_sort	Nagib Dahdah
title	Falling Through the Cracks: The Current Gap in the Health Care Transition of Patients With Kawasaki Disease<subtitle>A Scientific Statement From the American Heart Association</subtitle>
title_short	Falling Through the Cracks: The Current Gap in the Health Care Transition of Patients With Kawasaki Disease<subtitle>A Scientific Statement From the American Heart Association</subtitle>
title_full	Falling Through the Cracks: The Current Gap in the Health Care Transition of Patients With Kawasaki Disease<subtitle>A Scientific Statement From the American Heart Association</subtitle>
title_fullStr	Falling Through the Cracks: The Current Gap in the Health Care Transition of Patients With Kawasaki Disease<subtitle>A Scientific Statement From the American Heart Association</subtitle>
title_full_unstemmed	Falling Through the Cracks: The Current Gap in the Health Care Transition of Patients With Kawasaki Disease<subtitle>A Scientific Statement From the American Heart Association</subtitle>
title_sort	falling through the cracks: the current gap in the health care transition of patients with kawasaki disease<subtitle>a scientific statement from the american heart association</subtitle>
publisher	Wiley
publishDate	2021
url	https://doaj.org/article/67402fddc0c44a5d9f676d165987b5e9
work_keys_str_mv	AT nagibdahdah fallingthroughthecracksthecurrentgapinthehealthcaretransitionofpatientswithkawasakidiseasesubtitleascientificstatementfromtheamericanheartassociationsubtitle AT samuelckung fallingthroughthecracksthecurrentgapinthehealthcaretransitionofpatientswithkawasakidiseasesubtitleascientificstatementfromtheamericanheartassociationsubtitle AT kevingfriedman fallingthroughthecracksthecurrentgapinthehealthcaretransitionofpatientswithkawasakidiseasesubtitleascientificstatementfromtheamericanheartassociationsubtitle AT arianemarelli fallingthroughthecracksthecurrentgapinthehealthcaretransitionofpatientswithkawasakidiseasesubtitleascientificstatementfromtheamericanheartassociationsubtitle AT johnbgordon fallingthroughthecracksthecurrentgapinthehealthcaretransitionofpatientswithkawasakidiseasesubtitleascientificstatementfromtheamericanheartassociationsubtitle AT ermiasdbelay fallingthroughthecracksthecurrentgapinthehealthcaretransitionofpatientswithkawasakidiseasesubtitleascientificstatementfromtheamericanheartassociationsubtitle AT annettelbaker fallingthroughthecracksthecurrentgapinthehealthcaretransitionofpatientswithkawasakidiseasesubtitleascientificstatementfromtheamericanheartassociationsubtitle AT dhruvskazi fallingthroughthecracksthecurrentgapinthehealthcaretransitionofpatientswithkawasakidiseasesubtitleascientificstatementfromtheamericanheartassociationsubtitle AT patiencehwhite fallingthroughthecracksthecurrentgapinthehealthcaretransitionofpatientswithkawasakidiseasesubtitleascientificstatementfromtheamericanheartassociationsubtitle AT adrianahtremoulet fallingthroughthecracksthecurrentgapinthehealthcaretransitionofpatientswithkawasakidiseasesubtitleascientificstatementfromtheamericanheartassociationsubtitle
_version_	1718431112330477568

Falling Through the Cracks: The Current Gap in the Health Care Transition of Patients With Kawasaki Disease<subtitle>A Scientific Statement From the American Heart Association</subtitle>

Ejemplares similares