Building a culture of engagement at a research centre for childhood disability

Building a culture of engagement at a research centre for childhood disability

Plain English summary More and more patients and family members are getting involved in health research studies as partners. However we do not know much about what happens after the research study ends. This article looks at how parents have been involved in research studies at CanChild Centre for C...

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Main Authors: Kinga Pozniak, Francine Buchanan, Andrea Cross, Jennifer Crowson, Barb Galuppi, Danijela Grahovac, Jan Willem Gorter, Oksana Hlyva, Marjolijn Ketelaar, Olaf Kraus de Camargo, Manda Krpan Mesic, Rachel Martens, Dayle McCauley, Linda Nguyen, Robert J. Palisano, Michelle Phoenix, Connie Putterman, Peter Rosenbaum, Jennifer Sprung, Sonya Strohm, Rachel Teplicky, Donna Thomson, Marilyn Wright
Format: article
Language:EN
Published: BMC 2021
Subjects:
Family engagement in research
Childhood disability
Organizational ethnography
Collaborative auto-ethnography
Medicine
R
Medicine (General)
R5-920
Online Access:https://doaj.org/article/682ef8147f164d82b5f7baf6cfb37343
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https://doaj.org/article/682ef8147f164d82b5f7baf6cfb37343

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