Patient Roadmaps for Chronic Illness: Introducing a New Approach for Fostering Patient-Centered Care

Background. Too frequently, patients with chronic illnesses are surprised by disease-related changes and are unprepared to make decisions based on their values. Many patients are not activated and do not see a role for themselves in decision making, which is a key barrier to shared decision making a...

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Autores principales:	Laura D. Scherer, Daniel D. Matlock, Larry A. Allen, Chris E. Knoepke, Colleen K. McIlvennan, Monica D. Fitzgerald, Vinay Kini, Channing E. Tate, Grace Lin, Hillary D. Lum
Formato:	article
Lenguaje:	EN
Publicado:	SAGE Publishing 2021
Materias:	Medicine (General) R5-920
Acceso en línea:	https://doaj.org/article/6a6dbf6f6cd9403a9bad0b5cf800c638
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spelling	oai:doaj.org-article:6a6dbf6f6cd9403a9bad0b5cf800c6382021-11-22T12:33:21ZPatient Roadmaps for Chronic Illness: Introducing a New Approach for Fostering Patient-Centered Care2381-468310.1177/23814683211019947https://doaj.org/article/6a6dbf6f6cd9403a9bad0b5cf800c6382021-06-01T00:00:00Zhttps://doi.org/10.1177/23814683211019947https://doaj.org/toc/2381-4683Background. Too frequently, patients with chronic illnesses are surprised by disease-related changes and are unprepared to make decisions based on their values. Many patients are not activated and do not see a role for themselves in decision making, which is a key barrier to shared decision making and patient-centered care. Patient decision aids can educate and activate patients at the time of key decisions, and yet, for patients diagnosed with chronic illness, it would be advantageous to activate patients in advance of critical decisions. In this article, we describe and formalize the concept of the Patient Roadmap, a novel approach for promoting patient-centered care that aims to activate patients earlier in the care trajectory and provide them with anticipatory guidance. Methods. We first identify the gap that the Patient Roadmap fills, and describe theory underlying its approach. Then we describe what information a Patient Roadmap might include. Examples are provided, as well as a review comparing the Patient Roadmap concept to existing tools that aim to promote patient-centered care (e.g., patient decision aids). Results and Conclusions. New approaches for promoting patient-centered care are needed. This article provides an introduction and overview of the Patient Roadmap concept for promoting patient-centered care in the context of chronic illness. Highlights Too frequently, patients with chronic illnesses are surprised by disease-related changes and are unprepared to make decisions based on their values. In this article, we formalize the concept of a Patient Roadmap tool to provide anticipatory guidance and promote patient-centered care for patients with chronic illnesses. The Patient Roadmap aims to activate patients early in the care trajectory to prepare them to take part in future decisions. The Patient Roadmap provides a unique opportunity to introduce patients to likely future decisions, as well as the idea that those decisions may depend on their unique values and preferences.Laura D. SchererDaniel D. MatlockLarry A. AllenChris E. KnoepkeColleen K. McIlvennanMonica D. FitzgeraldVinay KiniChanning E. TateGrace LinHillary D. LumSAGE PublishingarticleMedicine (General)R5-920ENMDM Policy & Practice, Vol 6 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Medicine (General) R5-920
spellingShingle	Medicine (General) R5-920 Laura D. Scherer Daniel D. Matlock Larry A. Allen Chris E. Knoepke Colleen K. McIlvennan Monica D. Fitzgerald Vinay Kini Channing E. Tate Grace Lin Hillary D. Lum Patient Roadmaps for Chronic Illness: Introducing a New Approach for Fostering Patient-Centered Care
description	Background. Too frequently, patients with chronic illnesses are surprised by disease-related changes and are unprepared to make decisions based on their values. Many patients are not activated and do not see a role for themselves in decision making, which is a key barrier to shared decision making and patient-centered care. Patient decision aids can educate and activate patients at the time of key decisions, and yet, for patients diagnosed with chronic illness, it would be advantageous to activate patients in advance of critical decisions. In this article, we describe and formalize the concept of the Patient Roadmap, a novel approach for promoting patient-centered care that aims to activate patients earlier in the care trajectory and provide them with anticipatory guidance. Methods. We first identify the gap that the Patient Roadmap fills, and describe theory underlying its approach. Then we describe what information a Patient Roadmap might include. Examples are provided, as well as a review comparing the Patient Roadmap concept to existing tools that aim to promote patient-centered care (e.g., patient decision aids). Results and Conclusions. New approaches for promoting patient-centered care are needed. This article provides an introduction and overview of the Patient Roadmap concept for promoting patient-centered care in the context of chronic illness. Highlights Too frequently, patients with chronic illnesses are surprised by disease-related changes and are unprepared to make decisions based on their values. In this article, we formalize the concept of a Patient Roadmap tool to provide anticipatory guidance and promote patient-centered care for patients with chronic illnesses. The Patient Roadmap aims to activate patients early in the care trajectory to prepare them to take part in future decisions. The Patient Roadmap provides a unique opportunity to introduce patients to likely future decisions, as well as the idea that those decisions may depend on their unique values and preferences.
format	article
author	Laura D. Scherer Daniel D. Matlock Larry A. Allen Chris E. Knoepke Colleen K. McIlvennan Monica D. Fitzgerald Vinay Kini Channing E. Tate Grace Lin Hillary D. Lum
author_facet	Laura D. Scherer Daniel D. Matlock Larry A. Allen Chris E. Knoepke Colleen K. McIlvennan Monica D. Fitzgerald Vinay Kini Channing E. Tate Grace Lin Hillary D. Lum
author_sort	Laura D. Scherer
title	Patient Roadmaps for Chronic Illness: Introducing a New Approach for Fostering Patient-Centered Care
title_short	Patient Roadmaps for Chronic Illness: Introducing a New Approach for Fostering Patient-Centered Care
title_full	Patient Roadmaps for Chronic Illness: Introducing a New Approach for Fostering Patient-Centered Care
title_fullStr	Patient Roadmaps for Chronic Illness: Introducing a New Approach for Fostering Patient-Centered Care
title_full_unstemmed	Patient Roadmaps for Chronic Illness: Introducing a New Approach for Fostering Patient-Centered Care
title_sort	patient roadmaps for chronic illness: introducing a new approach for fostering patient-centered care
publisher	SAGE Publishing
publishDate	2021
url	https://doaj.org/article/6a6dbf6f6cd9403a9bad0b5cf800c638
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Patient Roadmaps for Chronic Illness: Introducing a New Approach for Fostering Patient-Centered Care

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