Seeking healthcare services post-stroke: a qualitative descriptive study exploring family caregiver and stroke survivor perspectives in an asian setting
Abstract Aim Exploration of the healthcare journey post-stroke is incomplete without acknowledging the crucial role of family caregivers. With limited literature documenting the role of caregivers in the healthcare journey post-stroke, we aimed to describe the healthcare experiences of family caregi...
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BMC
2021
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oai:doaj.org-article:6aea5339d1a2492197c8a8d54f58fdc92021-11-07T12:23:22ZSeeking healthcare services post-stroke: a qualitative descriptive study exploring family caregiver and stroke survivor perspectives in an asian setting10.1186/s12883-021-02463-71471-2377https://doaj.org/article/6aea5339d1a2492197c8a8d54f58fdc92021-11-01T00:00:00Zhttps://doi.org/10.1186/s12883-021-02463-7https://doaj.org/toc/1471-2377Abstract Aim Exploration of the healthcare journey post-stroke is incomplete without acknowledging the crucial role of family caregivers. With limited literature documenting the role of caregivers in the healthcare journey post-stroke, we aimed to describe the healthcare experiences of family caregivers and stroke survivors across different caregiver identities in Singapore. Methods We conducted a qualitative descriptive study involving semi-structured interviews with transcripts analysed using thematic analysis. 26 stroke survivors and 35 family caregivers purposively sampled from multiple settings. Results Findings were summarized into seeking care and experience of healthcare encounters. Seeking care comprised of the following themes: factors influencing seeking care, decision to seek care and role of caregiver in seeking care. Experience of healthcare encounters comprised of the following themes: service around the patient, service with care and role of caregiver in healthcare encounters. Conclusion Multi-dimensional role of caregivers in healthcare experience emerged as a major finding. Unique to our Asian context, as per the participants’ accounts, family caregivers seemed to be central in healthcare decision-making for stroke survivors, with adult-child caregivers commonly reported being engaged in collaborative decision-making. While spousal caregivers preferred a relational healthcare experience, adult-child caregivers preferred a transactional one. Practical implications include equipping caregivers with skillset to make healthcare decisions, provision of supportive decision-making environment for caregivers and reinforcing communication aspects in the medical, nursing and allied healthcare curriculum to improve healthcare experience.Shilpa TyagiNan LuoChuen Seng TanKelvin Bryan TanBoon Yeow TanEdward MenonN. VenketasubramanianWei Chin LohShu Hui FanKenneth Lam Thuan YangAudrey Swee Ling ChanAysha FarwinZunairah Binti LukmanGerald Choon-Huat KohBMCarticleStrokeCaregivingFamily caregiversHealthcare utilizationQualitative researchNeurology. Diseases of the nervous systemRC346-429ENBMC Neurology, Vol 21, Iss 1, Pp 1-16 (2021) |
| institution |
DOAJ |
| collection |
DOAJ |
| language |
EN |
| topic |
Stroke Caregiving Family caregivers Healthcare utilization Qualitative research Neurology. Diseases of the nervous system RC346-429 |
| spellingShingle |
Stroke Caregiving Family caregivers Healthcare utilization Qualitative research Neurology. Diseases of the nervous system RC346-429 Shilpa Tyagi Nan Luo Chuen Seng Tan Kelvin Bryan Tan Boon Yeow Tan Edward Menon N. Venketasubramanian Wei Chin Loh Shu Hui Fan Kenneth Lam Thuan Yang Audrey Swee Ling Chan Aysha Farwin Zunairah Binti Lukman Gerald Choon-Huat Koh Seeking healthcare services post-stroke: a qualitative descriptive study exploring family caregiver and stroke survivor perspectives in an asian setting |
| description |
Abstract Aim Exploration of the healthcare journey post-stroke is incomplete without acknowledging the crucial role of family caregivers. With limited literature documenting the role of caregivers in the healthcare journey post-stroke, we aimed to describe the healthcare experiences of family caregivers and stroke survivors across different caregiver identities in Singapore. Methods We conducted a qualitative descriptive study involving semi-structured interviews with transcripts analysed using thematic analysis. 26 stroke survivors and 35 family caregivers purposively sampled from multiple settings. Results Findings were summarized into seeking care and experience of healthcare encounters. Seeking care comprised of the following themes: factors influencing seeking care, decision to seek care and role of caregiver in seeking care. Experience of healthcare encounters comprised of the following themes: service around the patient, service with care and role of caregiver in healthcare encounters. Conclusion Multi-dimensional role of caregivers in healthcare experience emerged as a major finding. Unique to our Asian context, as per the participants’ accounts, family caregivers seemed to be central in healthcare decision-making for stroke survivors, with adult-child caregivers commonly reported being engaged in collaborative decision-making. While spousal caregivers preferred a relational healthcare experience, adult-child caregivers preferred a transactional one. Practical implications include equipping caregivers with skillset to make healthcare decisions, provision of supportive decision-making environment for caregivers and reinforcing communication aspects in the medical, nursing and allied healthcare curriculum to improve healthcare experience. |
| format |
article |
| author |
Shilpa Tyagi Nan Luo Chuen Seng Tan Kelvin Bryan Tan Boon Yeow Tan Edward Menon N. Venketasubramanian Wei Chin Loh Shu Hui Fan Kenneth Lam Thuan Yang Audrey Swee Ling Chan Aysha Farwin Zunairah Binti Lukman Gerald Choon-Huat Koh |
| author_facet |
Shilpa Tyagi Nan Luo Chuen Seng Tan Kelvin Bryan Tan Boon Yeow Tan Edward Menon N. Venketasubramanian Wei Chin Loh Shu Hui Fan Kenneth Lam Thuan Yang Audrey Swee Ling Chan Aysha Farwin Zunairah Binti Lukman Gerald Choon-Huat Koh |
| author_sort |
Shilpa Tyagi |
| title |
Seeking healthcare services post-stroke: a qualitative descriptive study exploring family caregiver and stroke survivor perspectives in an asian setting |
| title_short |
Seeking healthcare services post-stroke: a qualitative descriptive study exploring family caregiver and stroke survivor perspectives in an asian setting |
| title_full |
Seeking healthcare services post-stroke: a qualitative descriptive study exploring family caregiver and stroke survivor perspectives in an asian setting |
| title_fullStr |
Seeking healthcare services post-stroke: a qualitative descriptive study exploring family caregiver and stroke survivor perspectives in an asian setting |
| title_full_unstemmed |
Seeking healthcare services post-stroke: a qualitative descriptive study exploring family caregiver and stroke survivor perspectives in an asian setting |
| title_sort |
seeking healthcare services post-stroke: a qualitative descriptive study exploring family caregiver and stroke survivor perspectives in an asian setting |
| publisher |
BMC |
| publishDate |
2021 |
| url |
https://doaj.org/article/6aea5339d1a2492197c8a8d54f58fdc9 |
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