Potentials and barriers of using digital tools for collecting daily measurements in multiple sclerosis research

Objective Digital tools offer new ways of collecting outcome data in intervention research. Little is known about the potentials and barriers of using such tools for outcome measurement in multiple sclerosis trials. This study aimed to examine reporting adherence and barriers experienced by people w...

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Autores principales:	Westergaard Katrine, Signe Baattrup Ritzel, Krogh Caroline, Lynning Marie, Bergien Sofie Olsgaard, Skovgaard Lasse
Formato:	article
Lenguaje:	EN
Publicado:	SAGE Publishing 2021
Materias:	Computer applications to medicine. Medical informatics R858-859.7
Acceso en línea:	https://doaj.org/article/6cfeb414d512493e8fce152317ae1727
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spelling	oai:doaj.org-article:6cfeb414d512493e8fce152317ae17272021-12-01T00:04:16ZPotentials and barriers of using digital tools for collecting daily measurements in multiple sclerosis research2055-207610.1177/20552076211055552https://doaj.org/article/6cfeb414d512493e8fce152317ae17272021-11-01T00:00:00Zhttps://doi.org/10.1177/20552076211055552https://doaj.org/toc/2055-2076Objective Digital tools offer new ways of collecting outcome data in intervention research. Little is known about the potentials and barriers of using such tools for outcome measurement in multiple sclerosis trials. This study aimed to examine reporting adherence and barriers experienced by people with multiple sclerosis in an intervention study using three different digital tools for outcome measurement. Methods This was a mixed-methods study conducted in the context of a randomized controlled trial. Data collected during the randomized controlled trial were analysed to assess reporting adherence. Twenty-three semi-structured, in-depth interviews were conducted to investigate randomized controlled trial participants’ experiences. Results Reporting adherence was high for all three measurement tools, but lower in the control group. Four main barriers were defined: (1) the self-monitoring aspect and repeated tests imbedded in the digital tools affected participants’ behavior during the randomized controlled trial. (2) Self-monitoring caused some participants to worry more about their health. (3) Passively collected data did not always correspond with participants’ own experiences, which caused them to question the validity of the collected data. (4) Daily reporting using different digital tools placed a significant burden on participants. Conclusion The study indicates a high reporting adherence using digital tools among people with multiple sclerosis. However, future studies should carefully consider the overall burden imposed on participants when taking this approach. Measures should be taken to avoid the potential unintended effects of the self-monitoring and gamification aspects of using digital tools. These measures could include passive monitoring, reducing the frequency of reporting and blinding participants to their own data.Westergaard KatrineSigne Baattrup RitzelKrogh CarolineLynning MarieBergien Sofie OlsgaardSkovgaard LasseSAGE PublishingarticleComputer applications to medicine. Medical informaticsR858-859.7ENDigital Health, Vol 7 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Computer applications to medicine. Medical informatics R858-859.7
spellingShingle	Computer applications to medicine. Medical informatics R858-859.7 Westergaard Katrine Signe Baattrup Ritzel Krogh Caroline Lynning Marie Bergien Sofie Olsgaard Skovgaard Lasse Potentials and barriers of using digital tools for collecting daily measurements in multiple sclerosis research
description	Objective Digital tools offer new ways of collecting outcome data in intervention research. Little is known about the potentials and barriers of using such tools for outcome measurement in multiple sclerosis trials. This study aimed to examine reporting adherence and barriers experienced by people with multiple sclerosis in an intervention study using three different digital tools for outcome measurement. Methods This was a mixed-methods study conducted in the context of a randomized controlled trial. Data collected during the randomized controlled trial were analysed to assess reporting adherence. Twenty-three semi-structured, in-depth interviews were conducted to investigate randomized controlled trial participants’ experiences. Results Reporting adherence was high for all three measurement tools, but lower in the control group. Four main barriers were defined: (1) the self-monitoring aspect and repeated tests imbedded in the digital tools affected participants’ behavior during the randomized controlled trial. (2) Self-monitoring caused some participants to worry more about their health. (3) Passively collected data did not always correspond with participants’ own experiences, which caused them to question the validity of the collected data. (4) Daily reporting using different digital tools placed a significant burden on participants. Conclusion The study indicates a high reporting adherence using digital tools among people with multiple sclerosis. However, future studies should carefully consider the overall burden imposed on participants when taking this approach. Measures should be taken to avoid the potential unintended effects of the self-monitoring and gamification aspects of using digital tools. These measures could include passive monitoring, reducing the frequency of reporting and blinding participants to their own data.
format	article
author	Westergaard Katrine Signe Baattrup Ritzel Krogh Caroline Lynning Marie Bergien Sofie Olsgaard Skovgaard Lasse
author_facet	Westergaard Katrine Signe Baattrup Ritzel Krogh Caroline Lynning Marie Bergien Sofie Olsgaard Skovgaard Lasse
author_sort	Westergaard Katrine
title	Potentials and barriers of using digital tools for collecting daily measurements in multiple sclerosis research
title_short	Potentials and barriers of using digital tools for collecting daily measurements in multiple sclerosis research
title_full	Potentials and barriers of using digital tools for collecting daily measurements in multiple sclerosis research
title_fullStr	Potentials and barriers of using digital tools for collecting daily measurements in multiple sclerosis research
title_full_unstemmed	Potentials and barriers of using digital tools for collecting daily measurements in multiple sclerosis research
title_sort	potentials and barriers of using digital tools for collecting daily measurements in multiple sclerosis research
publisher	SAGE Publishing
publishDate	2021
url	https://doaj.org/article/6cfeb414d512493e8fce152317ae1727
work_keys_str_mv	AT westergaardkatrine potentialsandbarriersofusingdigitaltoolsforcollectingdailymeasurementsinmultiplesclerosisresearch AT signebaattrupritzel potentialsandbarriersofusingdigitaltoolsforcollectingdailymeasurementsinmultiplesclerosisresearch AT kroghcaroline potentialsandbarriersofusingdigitaltoolsforcollectingdailymeasurementsinmultiplesclerosisresearch AT lynningmarie potentialsandbarriersofusingdigitaltoolsforcollectingdailymeasurementsinmultiplesclerosisresearch AT bergiensofieolsgaard potentialsandbarriersofusingdigitaltoolsforcollectingdailymeasurementsinmultiplesclerosisresearch AT skovgaardlasse potentialsandbarriersofusingdigitaltoolsforcollectingdailymeasurementsinmultiplesclerosisresearch
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Potentials and barriers of using digital tools for collecting daily measurements in multiple sclerosis research

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