Health, functionality, and social support in families with a child with a neurodevelopmental disorder – a pilot study
Diana Cavonius-Rintahaka,1,2 Anna Liisa Aho,3 Arja Voutilainen,2 Eva Billstedt,1 Christopher Gillberg11Gillberg Neuropsychiatry Centre, Institute of Neuroscience and Physiology, University of Gothenburg, Sahlgrenska Academy, Gothenburg, Sweden; 2Child Psychiatry, Neuropsychiatric Unit, Helsinki Univ...
Guardado en:
| Autores principales: | , , , , |
|---|---|
| Formato: | article |
| Lenguaje: | EN |
| Publicado: |
Dove Medical Press
2019
|
| Materias: | |
| Acceso en línea: | https://doaj.org/article/6f7a8b4b6f3b4c4b981060bbd213fcb6 |
| Etiquetas: |
Agregar Etiqueta
Sin Etiquetas, Sea el primero en etiquetar este registro!
|
| id |
oai:doaj.org-article:6f7a8b4b6f3b4c4b981060bbd213fcb6 |
|---|---|
| record_format |
dspace |
| spelling |
oai:doaj.org-article:6f7a8b4b6f3b4c4b981060bbd213fcb62021-12-02T04:22:59ZHealth, functionality, and social support in families with a child with a neurodevelopmental disorder – a pilot study1178-2021https://doaj.org/article/6f7a8b4b6f3b4c4b981060bbd213fcb62019-05-01T00:00:00Zhttps://www.dovepress.com/health-functionality-and-social-support-in-families-with-a-child-with--peer-reviewed-article-NDThttps://doaj.org/toc/1178-2021Diana Cavonius-Rintahaka,1,2 Anna Liisa Aho,3 Arja Voutilainen,2 Eva Billstedt,1 Christopher Gillberg11Gillberg Neuropsychiatry Centre, Institute of Neuroscience and Physiology, University of Gothenburg, Sahlgrenska Academy, Gothenburg, Sweden; 2Child Psychiatry, Neuropsychiatric Unit, Helsinki University Hospital (HUH), Helsinki, Finland; 3Faculty of Social Sciences, Nursing Science, University of Tampere, Tampere, HelsinkiIntroduction: Several studies have reported that having a child with a neurodevelopmental disorder (NDD) increases parental stress and that parental psychosocial functioning influences child`s development and behavior. It is unclear how parents of children with NDD experience family functionality, family health and receive support and if there are differences between experiences of mothers and fathers.Methods: Families with children referred to a neurocognitive unit were invited to the study. A modified version of the FAmily Functionality, HEalth, and Social support (FAFHES) questionnaire was used. Open-ended questions were also included.Results: Parents rated their social support lower than their family functionality and family health. Family functionality correlated positively with family health. No significant differences were found between mothers’ and fathers’ experiences. A three-months test-retest using the FAFHES showed no significant change in ratings of family functionality, family health, and social support.Conclusions: Family functionality was connected to family health in families with a child with NDD. Mothers and fathers experienced their family health, family functionality, and received social support in similar ways.Keywords: parents, family health, family functionality, social support, neurodevelopmental disordersCavonius-Rintahaka DAho ALVoutilainen ABillstedt EGillberg CDove Medical PressarticleParentsFamily healthFamily functionalitySocial supportNeurodevelopmental disordersNeurosciences. Biological psychiatry. NeuropsychiatryRC321-571Neurology. Diseases of the nervous systemRC346-429ENNeuropsychiatric Disease and Treatment, Vol Volume 15, Pp 1151-1161 (2019) |
| institution |
DOAJ |
| collection |
DOAJ |
| language |
EN |
| topic |
Parents Family health Family functionality Social support Neurodevelopmental disorders Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571 Neurology. Diseases of the nervous system RC346-429 |
| spellingShingle |
Parents Family health Family functionality Social support Neurodevelopmental disorders Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571 Neurology. Diseases of the nervous system RC346-429 Cavonius-Rintahaka D Aho AL Voutilainen A Billstedt E Gillberg C Health, functionality, and social support in families with a child with a neurodevelopmental disorder – a pilot study |
| description |
Diana Cavonius-Rintahaka,1,2 Anna Liisa Aho,3 Arja Voutilainen,2 Eva Billstedt,1 Christopher Gillberg11Gillberg Neuropsychiatry Centre, Institute of Neuroscience and Physiology, University of Gothenburg, Sahlgrenska Academy, Gothenburg, Sweden; 2Child Psychiatry, Neuropsychiatric Unit, Helsinki University Hospital (HUH), Helsinki, Finland; 3Faculty of Social Sciences, Nursing Science, University of Tampere, Tampere, HelsinkiIntroduction: Several studies have reported that having a child with a neurodevelopmental disorder (NDD) increases parental stress and that parental psychosocial functioning influences child`s development and behavior. It is unclear how parents of children with NDD experience family functionality, family health and receive support and if there are differences between experiences of mothers and fathers.Methods: Families with children referred to a neurocognitive unit were invited to the study. A modified version of the FAmily Functionality, HEalth, and Social support (FAFHES) questionnaire was used. Open-ended questions were also included.Results: Parents rated their social support lower than their family functionality and family health. Family functionality correlated positively with family health. No significant differences were found between mothers’ and fathers’ experiences. A three-months test-retest using the FAFHES showed no significant change in ratings of family functionality, family health, and social support.Conclusions: Family functionality was connected to family health in families with a child with NDD. Mothers and fathers experienced their family health, family functionality, and received social support in similar ways.Keywords: parents, family health, family functionality, social support, neurodevelopmental disorders |
| format |
article |
| author |
Cavonius-Rintahaka D Aho AL Voutilainen A Billstedt E Gillberg C |
| author_facet |
Cavonius-Rintahaka D Aho AL Voutilainen A Billstedt E Gillberg C |
| author_sort |
Cavonius-Rintahaka D |
| title |
Health, functionality, and social support in families with a child with a neurodevelopmental disorder – a pilot study |
| title_short |
Health, functionality, and social support in families with a child with a neurodevelopmental disorder – a pilot study |
| title_full |
Health, functionality, and social support in families with a child with a neurodevelopmental disorder – a pilot study |
| title_fullStr |
Health, functionality, and social support in families with a child with a neurodevelopmental disorder – a pilot study |
| title_full_unstemmed |
Health, functionality, and social support in families with a child with a neurodevelopmental disorder – a pilot study |
| title_sort |
health, functionality, and social support in families with a child with a neurodevelopmental disorder – a pilot study |
| publisher |
Dove Medical Press |
| publishDate |
2019 |
| url |
https://doaj.org/article/6f7a8b4b6f3b4c4b981060bbd213fcb6 |
| work_keys_str_mv |
AT cavoniusrintahakad healthfunctionalityandsocialsupportinfamilieswithachildwithaneurodevelopmentaldisorderndashnbspapilotstudy AT ahoal healthfunctionalityandsocialsupportinfamilieswithachildwithaneurodevelopmentaldisorderndashnbspapilotstudy AT voutilainena healthfunctionalityandsocialsupportinfamilieswithachildwithaneurodevelopmentaldisorderndashnbspapilotstudy AT billstedte healthfunctionalityandsocialsupportinfamilieswithachildwithaneurodevelopmentaldisorderndashnbspapilotstudy AT gillbergc healthfunctionalityandsocialsupportinfamilieswithachildwithaneurodevelopmentaldisorderndashnbspapilotstudy |
| _version_ |
1718401252079960064 |