Understanding the Implications of Peer Support for Families of Children With Neurodevelopmental and Intellectual Disabilities: A Scoping Review

Background: Families are integrally involved in day-to-day caregiving of children with neurodevelopmental and intellectual disabilities (NDID). Given the widespread and increasing prevalence of children with NDID and the impact of family caregiving on psychological, social, and economic implications...

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Autores principales:	Michelle Chakraborti, Mojgan Gitimoghaddam, William H. McKellin, Anton Rodney Miller, Jean-Paul Collet
Formato:	article
Lenguaje:	EN
Publicado:	Frontiers Media S.A. 2021
Materias:	peer support network caregiver intellectual disabilities (ID) neurodevelopmental and intellectual disabilities caregiver health autism (ASD) Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/7112264cb6134b46911472e61d0417d0
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spelling	oai:doaj.org-article:7112264cb6134b46911472e61d0417d02021-11-30T12:09:17ZUnderstanding the Implications of Peer Support for Families of Children With Neurodevelopmental and Intellectual Disabilities: A Scoping Review2296-256510.3389/fpubh.2021.719640https://doaj.org/article/7112264cb6134b46911472e61d0417d02021-11-01T00:00:00Zhttps://www.frontiersin.org/articles/10.3389/fpubh.2021.719640/fullhttps://doaj.org/toc/2296-2565Background: Families are integrally involved in day-to-day caregiving of children with neurodevelopmental and intellectual disabilities (NDID). Given the widespread and increasing prevalence of children with NDID and the impact of family caregiving on psychological, social, and economic implications for both the child and family, understanding and supporting these families is an important public health concern.Objective: We conducted a scoping review on peer support networks to understand their implications on families. Considering increasing prevalence of NDID's, understanding the implications of existing networks is critical to improve and nurture future support networks that can complement and reduce the burden on existing formal support systems.Design: A comprehensive search of multiple databases was conducted. Articles were screened by two reviewers and any disagreements were resolved by a third reviewer. We explored existing research on parent-to-parent peer support networks, which included networks that developed informally as well as those that involved a formal facilitator for the group interpersonal processes. There were no limits on the study design, date and setting of the articles. We included all research studies in English that included an identifier for (i) “peer support networks,” (ii) “children with neurodevelopmental and intellectual disabilities” and (iii) “family caregiver outcomes.”Results: We identified 36 articles. Majority of the studies were conducted in North America, and were face to face networks. They included families of children with a wide range of NDIDs. Relevant information extracted from different studies highlighted peer support network characteristics and development process, needs of family caregivers attending these networks, factors affecting caregiver participation and the impact of peer support networks on family caregivers. These networks represent a way to strengthen family caregivers, developing resilience and social interactions. Family caregivers sharing similar experiences support one another and provide critical information to each other. Although results are encouraging, future studies incorporating improved study designs are needed to better evaluate the effectiveness of peer support networks. Furthermore, studies where peer support networks develop organically while the child is supported are warranted.Conclusion: Although results obtained are encouraging, our findings support the need for further research studies of peer support networks with better designs and more detailed description of the factors involved in the development.Michelle ChakrabortiMojgan GitimoghaddamWilliam H. McKellinAnton Rodney MillerJean-Paul ColletFrontiers Media S.A.articlepeer support networkcaregiverintellectual disabilities (ID)neurodevelopmental and intellectual disabilitiescaregiver healthautism (ASD)Public aspects of medicineRA1-1270ENFrontiers in Public Health, Vol 9 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	peer support network caregiver intellectual disabilities (ID) neurodevelopmental and intellectual disabilities caregiver health autism (ASD) Public aspects of medicine RA1-1270
spellingShingle	peer support network caregiver intellectual disabilities (ID) neurodevelopmental and intellectual disabilities caregiver health autism (ASD) Public aspects of medicine RA1-1270 Michelle Chakraborti Mojgan Gitimoghaddam William H. McKellin Anton Rodney Miller Jean-Paul Collet Understanding the Implications of Peer Support for Families of Children With Neurodevelopmental and Intellectual Disabilities: A Scoping Review
description	Background: Families are integrally involved in day-to-day caregiving of children with neurodevelopmental and intellectual disabilities (NDID). Given the widespread and increasing prevalence of children with NDID and the impact of family caregiving on psychological, social, and economic implications for both the child and family, understanding and supporting these families is an important public health concern.Objective: We conducted a scoping review on peer support networks to understand their implications on families. Considering increasing prevalence of NDID's, understanding the implications of existing networks is critical to improve and nurture future support networks that can complement and reduce the burden on existing formal support systems.Design: A comprehensive search of multiple databases was conducted. Articles were screened by two reviewers and any disagreements were resolved by a third reviewer. We explored existing research on parent-to-parent peer support networks, which included networks that developed informally as well as those that involved a formal facilitator for the group interpersonal processes. There were no limits on the study design, date and setting of the articles. We included all research studies in English that included an identifier for (i) “peer support networks,” (ii) “children with neurodevelopmental and intellectual disabilities” and (iii) “family caregiver outcomes.”Results: We identified 36 articles. Majority of the studies were conducted in North America, and were face to face networks. They included families of children with a wide range of NDIDs. Relevant information extracted from different studies highlighted peer support network characteristics and development process, needs of family caregivers attending these networks, factors affecting caregiver participation and the impact of peer support networks on family caregivers. These networks represent a way to strengthen family caregivers, developing resilience and social interactions. Family caregivers sharing similar experiences support one another and provide critical information to each other. Although results are encouraging, future studies incorporating improved study designs are needed to better evaluate the effectiveness of peer support networks. Furthermore, studies where peer support networks develop organically while the child is supported are warranted.Conclusion: Although results obtained are encouraging, our findings support the need for further research studies of peer support networks with better designs and more detailed description of the factors involved in the development.
format	article
author	Michelle Chakraborti Mojgan Gitimoghaddam William H. McKellin Anton Rodney Miller Jean-Paul Collet
author_facet	Michelle Chakraborti Mojgan Gitimoghaddam William H. McKellin Anton Rodney Miller Jean-Paul Collet
author_sort	Michelle Chakraborti
title	Understanding the Implications of Peer Support for Families of Children With Neurodevelopmental and Intellectual Disabilities: A Scoping Review
title_short	Understanding the Implications of Peer Support for Families of Children With Neurodevelopmental and Intellectual Disabilities: A Scoping Review
title_full	Understanding the Implications of Peer Support for Families of Children With Neurodevelopmental and Intellectual Disabilities: A Scoping Review
title_fullStr	Understanding the Implications of Peer Support for Families of Children With Neurodevelopmental and Intellectual Disabilities: A Scoping Review
title_full_unstemmed	Understanding the Implications of Peer Support for Families of Children With Neurodevelopmental and Intellectual Disabilities: A Scoping Review
title_sort	understanding the implications of peer support for families of children with neurodevelopmental and intellectual disabilities: a scoping review
publisher	Frontiers Media S.A.
publishDate	2021
url	https://doaj.org/article/7112264cb6134b46911472e61d0417d0
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Understanding the Implications of Peer Support for Families of Children With Neurodevelopmental and Intellectual Disabilities: A Scoping Review

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