Profile of Medicaid enrollees with sickle cell disease: A high need, high cost population

Sickle cell disease is a progressively debilitating genetic condition that affects red blood cells and can result in a variety of serious medical complications, reduced life expectancy, and diminished quality of life. Medicaid nationwide covered 66 percent of sickle cell disease hospitalizations in...

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Autores principales:	April Grady, Anthony Fiori, Dhaval Patel, Jessica Nysenbaum
Formato:	article
Lenguaje:	EN
Publicado:	Public Library of Science (PLoS) 2021
Materias:	Medicine R Science Q
Acceso en línea:	https://doaj.org/article/71bb62f1991446d9ad28d87796dee887
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spelling	oai:doaj.org-article:71bb62f1991446d9ad28d87796dee8872021-11-04T06:49:44ZProfile of Medicaid enrollees with sickle cell disease: A high need, high cost population1932-6203https://doaj.org/article/71bb62f1991446d9ad28d87796dee8872021-01-01T00:00:00Zhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8550393/?tool=EBIhttps://doaj.org/toc/1932-6203Sickle cell disease is a progressively debilitating genetic condition that affects red blood cells and can result in a variety of serious medical complications, reduced life expectancy, and diminished quality of life. Medicaid nationwide covered 66 percent of sickle cell disease hospitalizations in 2004 and 58 percent of emergency department visits for the disease between 1999 and 2007. Using Medicaid data from four states with large populations that account for more than one-third of Medicaid program enrollment, we examined the characteristics of those with sickle cell disease. We found instances of mortality rates more than nine times the age-adjusted population average (in Texas, a mortality rate for Medicaid enrollees with SCD of 1.11 percent compared to 0.12 percent overall); rates of disability-related eligibility–which is associated with long-term Medicaid enrollment–of up to 69 percent; and half or more of affected enrollees having (all-cause) hospital stays, emergency department visits, and opioid prescription fills. With gene therapies on the horizon that will spur discussions of treatment coverage, costs, and outcomes for people with sickle cell disease, it is important for relevant stakeholders to understand the affected populations.April GradyAnthony FioriDhaval PatelJessica NysenbaumPublic Library of Science (PLoS)articleMedicineRScienceQENPLoS ONE, Vol 16, Iss 10 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Medicine R Science Q
spellingShingle	Medicine R Science Q April Grady Anthony Fiori Dhaval Patel Jessica Nysenbaum Profile of Medicaid enrollees with sickle cell disease: A high need, high cost population
description	Sickle cell disease is a progressively debilitating genetic condition that affects red blood cells and can result in a variety of serious medical complications, reduced life expectancy, and diminished quality of life. Medicaid nationwide covered 66 percent of sickle cell disease hospitalizations in 2004 and 58 percent of emergency department visits for the disease between 1999 and 2007. Using Medicaid data from four states with large populations that account for more than one-third of Medicaid program enrollment, we examined the characteristics of those with sickle cell disease. We found instances of mortality rates more than nine times the age-adjusted population average (in Texas, a mortality rate for Medicaid enrollees with SCD of 1.11 percent compared to 0.12 percent overall); rates of disability-related eligibility–which is associated with long-term Medicaid enrollment–of up to 69 percent; and half or more of affected enrollees having (all-cause) hospital stays, emergency department visits, and opioid prescription fills. With gene therapies on the horizon that will spur discussions of treatment coverage, costs, and outcomes for people with sickle cell disease, it is important for relevant stakeholders to understand the affected populations.
format	article
author	April Grady Anthony Fiori Dhaval Patel Jessica Nysenbaum
author_facet	April Grady Anthony Fiori Dhaval Patel Jessica Nysenbaum
author_sort	April Grady
title	Profile of Medicaid enrollees with sickle cell disease: A high need, high cost population
title_short	Profile of Medicaid enrollees with sickle cell disease: A high need, high cost population
title_full	Profile of Medicaid enrollees with sickle cell disease: A high need, high cost population
title_fullStr	Profile of Medicaid enrollees with sickle cell disease: A high need, high cost population
title_full_unstemmed	Profile of Medicaid enrollees with sickle cell disease: A high need, high cost population
title_sort	profile of medicaid enrollees with sickle cell disease: a high need, high cost population
publisher	Public Library of Science (PLoS)
publishDate	2021
url	https://doaj.org/article/71bb62f1991446d9ad28d87796dee887
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Profile of Medicaid enrollees with sickle cell disease: A high need, high cost population

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