Recruiting hard-to-engage groups to online psychosocial interventions: Experiences from an RCT study targeting adolescents with a visible difference

Online interventions have the potential to reach individuals who are otherwise difficult to engage due to stigma and sensitive topics. However, these individuals also tend to be hard to recruit in clinical trials, a crucial step in order to provide evidence-based interventions. This highlights a nee...

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Autores principales:	Johanna Kling, Tine Nordgreen, Ingela L. Kvalem, Heidi Williamson, Kristin B. Feragen
Formato:	article
Lenguaje:	EN
Publicado:	Elsevier 2021
Materias:	Randomised control trial Participant recruitment Adolescents Difficult-to-engage Online intervention Medicine (General) R5-920
Acceso en línea:	https://doaj.org/article/7301486bdcb7406197e88d1ad22a62f8
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spelling	oai:doaj.org-article:7301486bdcb7406197e88d1ad22a62f82021-11-26T04:36:30ZRecruiting hard-to-engage groups to online psychosocial interventions: Experiences from an RCT study targeting adolescents with a visible difference2451-865410.1016/j.conctc.2021.100869https://doaj.org/article/7301486bdcb7406197e88d1ad22a62f82021-12-01T00:00:00Zhttp://www.sciencedirect.com/science/article/pii/S2451865421001691https://doaj.org/toc/2451-8654Online interventions have the potential to reach individuals who are otherwise difficult to engage due to stigma and sensitive topics. However, these individuals also tend to be hard to recruit in clinical trials, a crucial step in order to provide evidence-based interventions. This highlights a need for more information about efficient recruitment strategies for difficult-to-engage groups. The present study aimed to share the systematised experiences of recruiting adolescents with a visible difference to an online psychosocial intervention RCT. With the intention to recruit 160 participants (age 12–17), recruitment efforts were nationwide and included multiple arenas (e.g., hospitals, schools, social media), and methods (e.g., in-consultation, targeted letters, posters). Ultimately, 102 participants were recruited, and results showed that recruitment involving patient organisations, hospital departments, and specialised resource centres were most successful in reaching participants. The most efficient recruitment strategy was targeted letters sent home to eligible patients/members, as 78% of the participants were recruited this way. Media and social media recruitment efforts yielded comparatively few participants. No participants were recruited through schools and educational health care services, primary health care services, or municipal and regional authorities. Our results are discussed in relation to barriers with recruiting difficult-to-engage groups to RCTs, providing useful recruitment tools to future similar studies. For instance, future studies are recommended to utilise targeted approaches over general population approaches. Also, results from recruitment efforts should routinely be reported, as this ultimately will provide more general strategies for effective recruitment and support studies in reaching recruitment goals.Johanna KlingTine NordgreenIngela L. KvalemHeidi WilliamsonKristin B. FeragenElsevierarticleRandomised control trialParticipant recruitmentAdolescentsDifficult-to-engageOnline interventionMedicine (General)R5-920ENContemporary Clinical Trials Communications, Vol 24, Iss , Pp 100869- (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Randomised control trial Participant recruitment Adolescents Difficult-to-engage Online intervention Medicine (General) R5-920
spellingShingle	Randomised control trial Participant recruitment Adolescents Difficult-to-engage Online intervention Medicine (General) R5-920 Johanna Kling Tine Nordgreen Ingela L. Kvalem Heidi Williamson Kristin B. Feragen Recruiting hard-to-engage groups to online psychosocial interventions: Experiences from an RCT study targeting adolescents with a visible difference
description	Online interventions have the potential to reach individuals who are otherwise difficult to engage due to stigma and sensitive topics. However, these individuals also tend to be hard to recruit in clinical trials, a crucial step in order to provide evidence-based interventions. This highlights a need for more information about efficient recruitment strategies for difficult-to-engage groups. The present study aimed to share the systematised experiences of recruiting adolescents with a visible difference to an online psychosocial intervention RCT. With the intention to recruit 160 participants (age 12–17), recruitment efforts were nationwide and included multiple arenas (e.g., hospitals, schools, social media), and methods (e.g., in-consultation, targeted letters, posters). Ultimately, 102 participants were recruited, and results showed that recruitment involving patient organisations, hospital departments, and specialised resource centres were most successful in reaching participants. The most efficient recruitment strategy was targeted letters sent home to eligible patients/members, as 78% of the participants were recruited this way. Media and social media recruitment efforts yielded comparatively few participants. No participants were recruited through schools and educational health care services, primary health care services, or municipal and regional authorities. Our results are discussed in relation to barriers with recruiting difficult-to-engage groups to RCTs, providing useful recruitment tools to future similar studies. For instance, future studies are recommended to utilise targeted approaches over general population approaches. Also, results from recruitment efforts should routinely be reported, as this ultimately will provide more general strategies for effective recruitment and support studies in reaching recruitment goals.
format	article
author	Johanna Kling Tine Nordgreen Ingela L. Kvalem Heidi Williamson Kristin B. Feragen
author_facet	Johanna Kling Tine Nordgreen Ingela L. Kvalem Heidi Williamson Kristin B. Feragen
author_sort	Johanna Kling
title	Recruiting hard-to-engage groups to online psychosocial interventions: Experiences from an RCT study targeting adolescents with a visible difference
title_short	Recruiting hard-to-engage groups to online psychosocial interventions: Experiences from an RCT study targeting adolescents with a visible difference
title_full	Recruiting hard-to-engage groups to online psychosocial interventions: Experiences from an RCT study targeting adolescents with a visible difference
title_fullStr	Recruiting hard-to-engage groups to online psychosocial interventions: Experiences from an RCT study targeting adolescents with a visible difference
title_full_unstemmed	Recruiting hard-to-engage groups to online psychosocial interventions: Experiences from an RCT study targeting adolescents with a visible difference
title_sort	recruiting hard-to-engage groups to online psychosocial interventions: experiences from an rct study targeting adolescents with a visible difference
publisher	Elsevier
publishDate	2021
url	https://doaj.org/article/7301486bdcb7406197e88d1ad22a62f8
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Recruiting hard-to-engage groups to online psychosocial interventions: Experiences from an RCT study targeting adolescents with a visible difference

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