So much more than a “pair of brown shoes”: Triumphs of patient and other stakeholder engagement in patient-centered outcomes research

This piece illustrates the “real world” experiences of patients and other stakeholder partners in research to help inform and inspire future patient-centered outcomes research (PCOR) efforts. The Patient-Centered Outcomes Research Institute (PCORI) was created in 2010 to fund research that helps pat...

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Autores principales:	Amanda Brodt, M.P.P., Christine Norton, M.A., Amy Kratchman
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2015
Materias:	patient engagement stakeholder engagement patient-centered outcome research Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/75bb73bfd4564b98968065c0c9480b5a
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spelling	oai:doaj.org-article:75bb73bfd4564b98968065c0c9480b5a2021-11-15T03:55:59ZSo much more than a “pair of brown shoes”: Triumphs of patient and other stakeholder engagement in patient-centered outcomes research2372-0247https://doaj.org/article/75bb73bfd4564b98968065c0c9480b5a2015-04-01T00:00:00Zhttps://pxjournal.org/journal/vol2/iss1/7https://doaj.org/toc/2372-0247This piece illustrates the “real world” experiences of patients and other stakeholder partners in research to help inform and inspire future patient-centered outcomes research (PCOR) efforts. The Patient-Centered Outcomes Research Institute (PCORI) was created in 2010 to fund research that helps patients, clinicians, and other healthcare stakeholders make informed health decisions. The first 50 funded PCORI Pilot Projects engaged patients, caregivers, parents, patient advocates, clinicians, and other non-traditional research stakeholders to serve in advisory and leadership positions on their research teams, many for the first time. In interviews with seven patients and other stakeholders, several lessons learned emerged, including how to build confidence over the course of a research project; how to offer translation and interpretation insights reflective of practical experience; how to understand the benefits and limitations to stakeholder participation; and how to positively influence the research process and study outcomes. By the completion of their Pilot Projects, the stakeholder partners profiled here considered themselves “empowered” research contributors. The authors are hopeful these stories will encourage more patients and other stakeholders to contribute their time and experiential learnings to improve the process, and results of, PCOR.Amanda Brodt, M.P.P.Christine Norton, M.A.Amy KratchmanThe Beryl Institutearticlepatient engagementstakeholder engagementpatient-centered outcome researchMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2015)
institution	DOAJ
collection	DOAJ
language	EN
topic	patient engagement stakeholder engagement patient-centered outcome research Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	patient engagement stakeholder engagement patient-centered outcome research Medicine (General) R5-920 Public aspects of medicine RA1-1270 Amanda Brodt, M.P.P. Christine Norton, M.A. Amy Kratchman So much more than a “pair of brown shoes”: Triumphs of patient and other stakeholder engagement in patient-centered outcomes research
description	This piece illustrates the “real world” experiences of patients and other stakeholder partners in research to help inform and inspire future patient-centered outcomes research (PCOR) efforts. The Patient-Centered Outcomes Research Institute (PCORI) was created in 2010 to fund research that helps patients, clinicians, and other healthcare stakeholders make informed health decisions. The first 50 funded PCORI Pilot Projects engaged patients, caregivers, parents, patient advocates, clinicians, and other non-traditional research stakeholders to serve in advisory and leadership positions on their research teams, many for the first time. In interviews with seven patients and other stakeholders, several lessons learned emerged, including how to build confidence over the course of a research project; how to offer translation and interpretation insights reflective of practical experience; how to understand the benefits and limitations to stakeholder participation; and how to positively influence the research process and study outcomes. By the completion of their Pilot Projects, the stakeholder partners profiled here considered themselves “empowered” research contributors. The authors are hopeful these stories will encourage more patients and other stakeholders to contribute their time and experiential learnings to improve the process, and results of, PCOR.
format	article
author	Amanda Brodt, M.P.P. Christine Norton, M.A. Amy Kratchman
author_facet	Amanda Brodt, M.P.P. Christine Norton, M.A. Amy Kratchman
author_sort	Amanda Brodt, M.P.P.
title	So much more than a “pair of brown shoes”: Triumphs of patient and other stakeholder engagement in patient-centered outcomes research
title_short	So much more than a “pair of brown shoes”: Triumphs of patient and other stakeholder engagement in patient-centered outcomes research
title_full	So much more than a “pair of brown shoes”: Triumphs of patient and other stakeholder engagement in patient-centered outcomes research
title_fullStr	So much more than a “pair of brown shoes”: Triumphs of patient and other stakeholder engagement in patient-centered outcomes research
title_full_unstemmed	So much more than a “pair of brown shoes”: Triumphs of patient and other stakeholder engagement in patient-centered outcomes research
title_sort	so much more than a “pair of brown shoes”: triumphs of patient and other stakeholder engagement in patient-centered outcomes research
publisher	The Beryl Institute
publishDate	2015
url	https://doaj.org/article/75bb73bfd4564b98968065c0c9480b5a
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So much more than a “pair of brown shoes”: Triumphs of patient and other stakeholder engagement in patient-centered outcomes research

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