Family-centered caregiving from hospital to home: Coping with trauma and building capacity with the HOPE for Families model

Informal caregivers and families play a significant role in the recovery process of trauma survivors. However, the needs and outcomes of orthopedic caregiving family members in the months following traumatic injury have received almost no attention in the literature. Our study sought to understand t...

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Autores principales:	Anna Newcomb, L Gordon Moore, Holly Matto
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2018
Materias:	family caregiver building capacity caregiver experience traumatic injury patient experience Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/762ab3ffe46c417988e6f2d8ac9c4ed7
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spelling	oai:doaj.org-article:762ab3ffe46c417988e6f2d8ac9c4ed72021-11-15T04:25:45ZFamily-centered caregiving from hospital to home: Coping with trauma and building capacity with the HOPE for Families model2372-0247https://doaj.org/article/762ab3ffe46c417988e6f2d8ac9c4ed72018-04-01T00:00:00Zhttps://pxjournal.org/journal/vol5/iss1/10https://doaj.org/toc/2372-0247Informal caregivers and families play a significant role in the recovery process of trauma survivors. However, the needs and outcomes of orthopedic caregiving family members in the months following traumatic injury have received almost no attention in the literature. Our study sought to understand the factors impacting orthopedic trauma families’ experience and their ability to cope and provide care post-acute hospitalization. Based on these findings, we designed a hospital-based program to enhance family coping and adjustment post-discharge. Caregivers (N=12) of patients with orthopedic trauma injury engaged in three in-depth semi-structured face-to-face interviews to identify their most salient concerns. Once home, subjects described caregiving life at home, their coping strategies for managing the patient’s recovery, and help they received from formal and informal sources. Analysis of the qualitative data found that trauma care lacks a unified system of coordination after the patient’s return home. Thus, the role of “secondary caregivers” - longtime friends, family members, church groups, neighbors - was significant. Without an organized system of support and information, the caregivers in our study turned to their established communities for comfort and assistance. Conclusions: Based on these findings, we designed a family caregiver program, Holistic Orthopedic Patient-centered Engagement (HOPE for Families), to support families in this early transition, and to enhance collective and continuous caregiving capacity. HOPE for Families uses peer mentors as “central care organizers” to identify and engage the family’s secondary caregivers system, using the HOPE Care Planning tool to identify stressor/demands and caregiver resources to meet anticipated needs.Anna NewcombL Gordon MooreHolly MattoThe Beryl Institutearticlefamily caregiverbuilding capacitycaregiver experiencetraumatic injurypatient experienceMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2018)
institution	DOAJ
collection	DOAJ
language	EN
topic	family caregiver building capacity caregiver experience traumatic injury patient experience Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	family caregiver building capacity caregiver experience traumatic injury patient experience Medicine (General) R5-920 Public aspects of medicine RA1-1270 Anna Newcomb L Gordon Moore Holly Matto Family-centered caregiving from hospital to home: Coping with trauma and building capacity with the HOPE for Families model
description	Informal caregivers and families play a significant role in the recovery process of trauma survivors. However, the needs and outcomes of orthopedic caregiving family members in the months following traumatic injury have received almost no attention in the literature. Our study sought to understand the factors impacting orthopedic trauma families’ experience and their ability to cope and provide care post-acute hospitalization. Based on these findings, we designed a hospital-based program to enhance family coping and adjustment post-discharge. Caregivers (N=12) of patients with orthopedic trauma injury engaged in three in-depth semi-structured face-to-face interviews to identify their most salient concerns. Once home, subjects described caregiving life at home, their coping strategies for managing the patient’s recovery, and help they received from formal and informal sources. Analysis of the qualitative data found that trauma care lacks a unified system of coordination after the patient’s return home. Thus, the role of “secondary caregivers” - longtime friends, family members, church groups, neighbors - was significant. Without an organized system of support and information, the caregivers in our study turned to their established communities for comfort and assistance. Conclusions: Based on these findings, we designed a family caregiver program, Holistic Orthopedic Patient-centered Engagement (HOPE for Families), to support families in this early transition, and to enhance collective and continuous caregiving capacity. HOPE for Families uses peer mentors as “central care organizers” to identify and engage the family’s secondary caregivers system, using the HOPE Care Planning tool to identify stressor/demands and caregiver resources to meet anticipated needs.
format	article
author	Anna Newcomb L Gordon Moore Holly Matto
author_facet	Anna Newcomb L Gordon Moore Holly Matto
author_sort	Anna Newcomb
title	Family-centered caregiving from hospital to home: Coping with trauma and building capacity with the HOPE for Families model
title_short	Family-centered caregiving from hospital to home: Coping with trauma and building capacity with the HOPE for Families model
title_full	Family-centered caregiving from hospital to home: Coping with trauma and building capacity with the HOPE for Families model
title_fullStr	Family-centered caregiving from hospital to home: Coping with trauma and building capacity with the HOPE for Families model
title_full_unstemmed	Family-centered caregiving from hospital to home: Coping with trauma and building capacity with the HOPE for Families model
title_sort	family-centered caregiving from hospital to home: coping with trauma and building capacity with the hope for families model
publisher	The Beryl Institute
publishDate	2018
url	https://doaj.org/article/762ab3ffe46c417988e6f2d8ac9c4ed7
work_keys_str_mv	AT annanewcomb familycenteredcaregivingfromhospitaltohomecopingwithtraumaandbuildingcapacitywiththehopeforfamiliesmodel AT lgordonmoore familycenteredcaregivingfromhospitaltohomecopingwithtraumaandbuildingcapacitywiththehopeforfamiliesmodel AT hollymatto familycenteredcaregivingfromhospitaltohomecopingwithtraumaandbuildingcapacitywiththehopeforfamiliesmodel
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Family-centered caregiving from hospital to home: Coping with trauma and building capacity with the HOPE for Families model

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