Families’ experiences in oral health care of Down Syndrome children from a foundation in Bucaramanga, Colombia

Introduction: several studies highlight the importance of the relationship between family dynamics and oral hygiene in people with intellectual disabilities. In the case of children with Down Syndrome (DS), the studies generally focus on clinical aspects, disregarding the factors that can influence...

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Autores principales:	María Eugenia Sáenz-Torres, Alba Yaneth Rincón-Méndez
Formato:	article
Lenguaje:	EN
Publicado:	Universidad de Antioquia 2020
Materias:	families life changing events child care down syndrome oral health Dentistry RK1-715
Acceso en línea:	https://doaj.org/article/76587672000d48d7979b725c9c6819fa
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spelling	oai:doaj.org-article:76587672000d48d7979b725c9c6819fa2021-11-27T16:27:35ZFamilies’ experiences in oral health care of Down Syndrome children from a foundation in Bucaramanga, Colombia2145-767010.17533/udea.rfo.v32n2a3https://doaj.org/article/76587672000d48d7979b725c9c6819fa2020-08-01T00:00:00Zhttps://revistas.udea.edu.co/index.php/odont/article/view/339524https://doaj.org/toc/2145-7670Introduction: several studies highlight the importance of the relationship between family dynamics and oral hygiene in people with intellectual disabilities. In the case of children with Down Syndrome (DS), the studies generally focus on clinical aspects, disregarding the factors that can influence the way families experience oral health care. Understanding these experiences is key to contributing from the professional practice to the improvement in the quality of life of this population group. Methods: qualitative, phenomenological study in eight families of children with DS, using in-depth and episodic interviews. Results: the experiences go beyond good hygiene practices, since caregivers tend no not separate other fundamental aspects of their children’s lives. This is important from a comprehensive view of human beings, their health and care. The experiences are characterized by a preeminence of females’ roles and the fathers’ absence or presence, in addition to daily experience, social support, and opportunities. Conclusions: experiences during oral hygiene practices in families are gratifying in cases where they discover that their children become autonomous to carry out their own oral health care. In most families, mothers accompany and reinforce. However, it was shown that women feel they are not capable enough to help their children when they notice no progress in children’s autonomy to perform their own oral health care.María Eugenia Sáenz-TorresAlba Yaneth Rincón-MéndezUniversidad de Antioquiaarticlefamilieslife changing eventschild caredown syndromeoral healthDentistryRK1-715ENRevista Facultad de Odontología Universidad de Antioquia, Vol 32, Iss 2, Pp 33-41 (2020)
institution	DOAJ
collection	DOAJ
language	EN
topic	families life changing events child care down syndrome oral health Dentistry RK1-715
spellingShingle	families life changing events child care down syndrome oral health Dentistry RK1-715 María Eugenia Sáenz-Torres Alba Yaneth Rincón-Méndez Families’ experiences in oral health care of Down Syndrome children from a foundation in Bucaramanga, Colombia
description	Introduction: several studies highlight the importance of the relationship between family dynamics and oral hygiene in people with intellectual disabilities. In the case of children with Down Syndrome (DS), the studies generally focus on clinical aspects, disregarding the factors that can influence the way families experience oral health care. Understanding these experiences is key to contributing from the professional practice to the improvement in the quality of life of this population group. Methods: qualitative, phenomenological study in eight families of children with DS, using in-depth and episodic interviews. Results: the experiences go beyond good hygiene practices, since caregivers tend no not separate other fundamental aspects of their children’s lives. This is important from a comprehensive view of human beings, their health and care. The experiences are characterized by a preeminence of females’ roles and the fathers’ absence or presence, in addition to daily experience, social support, and opportunities. Conclusions: experiences during oral hygiene practices in families are gratifying in cases where they discover that their children become autonomous to carry out their own oral health care. In most families, mothers accompany and reinforce. However, it was shown that women feel they are not capable enough to help their children when they notice no progress in children’s autonomy to perform their own oral health care.
format	article
author	María Eugenia Sáenz-Torres Alba Yaneth Rincón-Méndez
author_facet	María Eugenia Sáenz-Torres Alba Yaneth Rincón-Méndez
author_sort	María Eugenia Sáenz-Torres
title	Families’ experiences in oral health care of Down Syndrome children from a foundation in Bucaramanga, Colombia
title_short	Families’ experiences in oral health care of Down Syndrome children from a foundation in Bucaramanga, Colombia
title_full	Families’ experiences in oral health care of Down Syndrome children from a foundation in Bucaramanga, Colombia
title_fullStr	Families’ experiences in oral health care of Down Syndrome children from a foundation in Bucaramanga, Colombia
title_full_unstemmed	Families’ experiences in oral health care of Down Syndrome children from a foundation in Bucaramanga, Colombia
title_sort	families’ experiences in oral health care of down syndrome children from a foundation in bucaramanga, colombia
publisher	Universidad de Antioquia
publishDate	2020
url	https://doaj.org/article/76587672000d48d7979b725c9c6819fa
work_keys_str_mv	AT mariaeugeniasaenztorres familiesexperiencesinoralhealthcareofdownsyndromechildrenfromafoundationinbucaramangacolombia AT albayanethrinconmendez familiesexperiencesinoralhealthcareofdownsyndromechildrenfromafoundationinbucaramangacolombia
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Families’ experiences in oral health care of Down Syndrome children from a foundation in Bucaramanga, Colombia

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