Genetic discrimination: introducing the Asian perspective to the debate

Abstract Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on p...

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Auteurs principaux: Hannah Kim, Calvin W. L. Ho, Chih-Hsing Ho, P. S. Athira, Kazuto Kato, Leonardo De Castro, Hui Kang, Richard Huxtable, Hub Zwart, Jonathan Ives, Ilhak Lee, Yann Joly, So Yoon Kim
Format: article
Langue:EN
Publié: Nature Portfolio 2021
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R
Accès en ligne:https://doaj.org/article/76b5471e1b56481f91f9b778fb87e192
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Résumé:Abstract Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on preventing or mitigating GD have been narrowly framed in terms of employment, insurance, disability, marriage, and family planning. Except for South Korea, none of the jurisdictions we examined has adopted specific legislation to prevent GD. However, for Asia to truly benefit from its recent scientific and technological progress in genomics, we highlight the need for these jurisdictions to engage more proactively with the challenges of GD through a coordinated regulatory and governance mechanism.