Genetic discrimination: introducing the Asian perspective to the debate

Abstract Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on p...

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Autores principales: Hannah Kim, Calvin W. L. Ho, Chih-Hsing Ho, P. S. Athira, Kazuto Kato, Leonardo De Castro, Hui Kang, Richard Huxtable, Hub Zwart, Jonathan Ives, Ilhak Lee, Yann Joly, So Yoon Kim
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Lenguaje:EN
Publicado: Nature Portfolio 2021
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Acceso en línea:https://doaj.org/article/76b5471e1b56481f91f9b778fb87e192
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spelling oai:doaj.org-article:76b5471e1b56481f91f9b778fb87e1922021-12-02T16:31:55ZGenetic discrimination: introducing the Asian perspective to the debate10.1038/s41525-021-00218-42056-7944https://doaj.org/article/76b5471e1b56481f91f9b778fb87e1922021-07-01T00:00:00Zhttps://doi.org/10.1038/s41525-021-00218-4https://doaj.org/toc/2056-7944Abstract Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on preventing or mitigating GD have been narrowly framed in terms of employment, insurance, disability, marriage, and family planning. Except for South Korea, none of the jurisdictions we examined has adopted specific legislation to prevent GD. However, for Asia to truly benefit from its recent scientific and technological progress in genomics, we highlight the need for these jurisdictions to engage more proactively with the challenges of GD through a coordinated regulatory and governance mechanism.Hannah KimCalvin W. L. HoChih-Hsing HoP. S. AthiraKazuto KatoLeonardo De CastroHui KangRichard HuxtableHub ZwartJonathan IvesIlhak LeeYann JolySo Yoon KimNature PortfolioarticleMedicineRGeneticsQH426-470ENnpj Genomic Medicine, Vol 6, Iss 1, Pp 1-8 (2021)
institution DOAJ
collection DOAJ
language EN
topic Medicine
R
Genetics
QH426-470
spellingShingle Medicine
R
Genetics
QH426-470
Hannah Kim
Calvin W. L. Ho
Chih-Hsing Ho
P. S. Athira
Kazuto Kato
Leonardo De Castro
Hui Kang
Richard Huxtable
Hub Zwart
Jonathan Ives
Ilhak Lee
Yann Joly
So Yoon Kim
Genetic discrimination: introducing the Asian perspective to the debate
description Abstract Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on preventing or mitigating GD have been narrowly framed in terms of employment, insurance, disability, marriage, and family planning. Except for South Korea, none of the jurisdictions we examined has adopted specific legislation to prevent GD. However, for Asia to truly benefit from its recent scientific and technological progress in genomics, we highlight the need for these jurisdictions to engage more proactively with the challenges of GD through a coordinated regulatory and governance mechanism.
format article
author Hannah Kim
Calvin W. L. Ho
Chih-Hsing Ho
P. S. Athira
Kazuto Kato
Leonardo De Castro
Hui Kang
Richard Huxtable
Hub Zwart
Jonathan Ives
Ilhak Lee
Yann Joly
So Yoon Kim
author_facet Hannah Kim
Calvin W. L. Ho
Chih-Hsing Ho
P. S. Athira
Kazuto Kato
Leonardo De Castro
Hui Kang
Richard Huxtable
Hub Zwart
Jonathan Ives
Ilhak Lee
Yann Joly
So Yoon Kim
author_sort Hannah Kim
title Genetic discrimination: introducing the Asian perspective to the debate
title_short Genetic discrimination: introducing the Asian perspective to the debate
title_full Genetic discrimination: introducing the Asian perspective to the debate
title_fullStr Genetic discrimination: introducing the Asian perspective to the debate
title_full_unstemmed Genetic discrimination: introducing the Asian perspective to the debate
title_sort genetic discrimination: introducing the asian perspective to the debate
publisher Nature Portfolio
publishDate 2021
url https://doaj.org/article/76b5471e1b56481f91f9b778fb87e192
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