Patient participation in medical consultations: the experience of patients from various ethnolinguistic backgrounds

Patient participation in health care is a priority. Yet, patients’ perspective with regards to their experiences of participation is not well understood. Moreover, few studies have attempted to explore the perspective of ethnolinguistic minority patients. The objectives of this study, to explore 1)...

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Autores principales:	Rhéa Rocque, Annabel Levesque, Yvan Leanza
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2019
Materias:	patient experience patient participation physician-patient communication qualitative methods language barriers ethnolinguistic minority Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/76ebda0b6dfa4eb8b81804884a07be0a
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spelling	oai:doaj.org-article:76ebda0b6dfa4eb8b81804884a07be0a2021-11-15T04:28:38ZPatient participation in medical consultations: the experience of patients from various ethnolinguistic backgrounds2372-0247https://doaj.org/article/76ebda0b6dfa4eb8b81804884a07be0a2019-04-01T00:00:00Zhttps://pxjournal.org/journal/vol6/iss1/4https://doaj.org/toc/2372-0247Patient participation in health care is a priority. Yet, patients’ perspective with regards to their experiences of participation is not well understood. Moreover, few studies have attempted to explore the perspective of ethnolinguistic minority patients. The objectives of this study, to explore 1) patients’ experiences of participation in medical consultations with physicians, and 2) potential variations in these experiences based on participants’ ethnolinguistic status. Using a qualitative design, 60 participants, from various ethnolinguistic background, took part in individual semi-structured interviews. A content analysis was performed to identify emerging themes. The results, five themes emerged in response to the first objective and are organized in two key dimensions: a) participation in terms of information exchange (e.g. asking questions, providing information), and b) participation in terms of assertive behaviours (e.g. setting the agenda, expressing one’s viewpoint, making a request). Across these themes, two levels of participation emerged: proactive participation (i.e. patient initiated) and responsive participation (i.e. physician initiated). Proactive participation was discussed more often. Patients also discussed experiences of non-participation, although these were less common. In response to the second objective, patients who faced a language barrier, regardless of their ethnic background, discussed less participative experiences. In general, participants spoke positively of experiences in which they participated, thus suggesting that patient participation is valued by patients. Patients seemed to have a broad view of patient participation, thus suggesting that the concept of patient participation should be extended beyond participation in decision-making. Language fluency seems key to ensure patient participation.Rhéa RocqueAnnabel LevesqueYvan LeanzaThe Beryl Institutearticlepatient experiencepatient participationphysician-patient communicationqualitative methodslanguage barriersethnolinguistic minorityMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2019)
institution	DOAJ
collection	DOAJ
language	EN
topic	patient experience patient participation physician-patient communication qualitative methods language barriers ethnolinguistic minority Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	patient experience patient participation physician-patient communication qualitative methods language barriers ethnolinguistic minority Medicine (General) R5-920 Public aspects of medicine RA1-1270 Rhéa Rocque Annabel Levesque Yvan Leanza Patient participation in medical consultations: the experience of patients from various ethnolinguistic backgrounds
description	Patient participation in health care is a priority. Yet, patients’ perspective with regards to their experiences of participation is not well understood. Moreover, few studies have attempted to explore the perspective of ethnolinguistic minority patients. The objectives of this study, to explore 1) patients’ experiences of participation in medical consultations with physicians, and 2) potential variations in these experiences based on participants’ ethnolinguistic status. Using a qualitative design, 60 participants, from various ethnolinguistic background, took part in individual semi-structured interviews. A content analysis was performed to identify emerging themes. The results, five themes emerged in response to the first objective and are organized in two key dimensions: a) participation in terms of information exchange (e.g. asking questions, providing information), and b) participation in terms of assertive behaviours (e.g. setting the agenda, expressing one’s viewpoint, making a request). Across these themes, two levels of participation emerged: proactive participation (i.e. patient initiated) and responsive participation (i.e. physician initiated). Proactive participation was discussed more often. Patients also discussed experiences of non-participation, although these were less common. In response to the second objective, patients who faced a language barrier, regardless of their ethnic background, discussed less participative experiences. In general, participants spoke positively of experiences in which they participated, thus suggesting that patient participation is valued by patients. Patients seemed to have a broad view of patient participation, thus suggesting that the concept of patient participation should be extended beyond participation in decision-making. Language fluency seems key to ensure patient participation.
format	article
author	Rhéa Rocque Annabel Levesque Yvan Leanza
author_facet	Rhéa Rocque Annabel Levesque Yvan Leanza
author_sort	Rhéa Rocque
title	Patient participation in medical consultations: the experience of patients from various ethnolinguistic backgrounds
title_short	Patient participation in medical consultations: the experience of patients from various ethnolinguistic backgrounds
title_full	Patient participation in medical consultations: the experience of patients from various ethnolinguistic backgrounds
title_fullStr	Patient participation in medical consultations: the experience of patients from various ethnolinguistic backgrounds
title_full_unstemmed	Patient participation in medical consultations: the experience of patients from various ethnolinguistic backgrounds
title_sort	patient participation in medical consultations: the experience of patients from various ethnolinguistic backgrounds
publisher	The Beryl Institute
publishDate	2019
url	https://doaj.org/article/76ebda0b6dfa4eb8b81804884a07be0a
work_keys_str_mv	AT rhearocque patientparticipationinmedicalconsultationstheexperienceofpatientsfromvariousethnolinguisticbackgrounds AT annabellevesque patientparticipationinmedicalconsultationstheexperienceofpatientsfromvariousethnolinguisticbackgrounds AT yvanleanza patientparticipationinmedicalconsultationstheexperienceofpatientsfromvariousethnolinguisticbackgrounds
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Patient participation in medical consultations: the experience of patients from various ethnolinguistic backgrounds

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