Awareness of FMF among Caregivers

Aim:Familial Mediterranean Fever (FMF) is one of the most frequent genetic diseases with a frequency of 1/1,000 in our country. We aimed to assess awareness of FMF among caregivers of patients with and without FMF.Materials and Methods:Caregivers of FMF patients (group 1) and other caregivers who we...

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Autores principales:	Belde Kasap Demir, Tuğçe Karahafız, Gülşah Yılmaz, Eren Soyaltın
Formato:	article
Lenguaje:	EN TR
Publicado:	Galenos Yayinevi 2021
Materias:	familial mediterranean fever awareness caregivers Medicine R Pediatrics RJ1-570
Acceso en línea:	https://doaj.org/article/7747d9d283fa41a5b4b065858b0f7b61
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spelling	oai:doaj.org-article:7747d9d283fa41a5b4b065858b0f7b612021-11-11T11:27:23ZAwareness of FMF among Caregivers2147-94452587-247810.4274/jpr.galenos.2021.21447https://doaj.org/article/7747d9d283fa41a5b4b065858b0f7b612021-12-01T00:00:00Z http://jpedres.org/archives/archive-detail/article-preview/awareness-of-fmf-among-caregivers/49644 https://doaj.org/toc/2147-9445https://doaj.org/toc/2587-2478Aim:Familial Mediterranean Fever (FMF) is one of the most frequent genetic diseases with a frequency of 1/1,000 in our country. We aimed to assess awareness of FMF among caregivers of patients with and without FMF.Materials and Methods:Caregivers of FMF patients (group 1) and other caregivers who were in hospital for other reasons (group 2) were given a questionnaire regarding FMF and the results were compared between the 2 groups.Results:The mean ages were similar between group 1 (n=142) and group 2 (n=207). Female gender and lower educational status were more frequent in group 1. Group 1 was more aware that recurrent fever, joint pain, abdominal pain, and its occurrence in attacks are seen in FMF; and also that the disease is inherited rather than contagious; that a specific treatment exists; that the risk of kidney and heart failure increases when not treated; that attacks are triggered by sleeplessness, tiredness or emotional stress; that colchicine does not provide complete recovery; and that diarrhea is the most common side effect of colchicine (p<0.05). However, awareness about chest pain as a feature, infertility as a complication, non-adherence as a trigger for the disease and the statement that “patients feel healthy between attacks” were similar (p>0.05). Interestingly, group 2 was more aware that different treatment options exist (p=0.04). The total score was higher in group 1 and in participants who only graduated from secondary school or less (p<0.01).Conclusion:Being a caregiver of a patient was associated with a higher level of awareness of FMF regardless of education level, however, they still need to be informed about current developments.Belde Kasap DemirTuğçe KarahafızGülşah YılmazEren SoyaltınGalenos Yayineviarticlefamilial mediterranean feverawarenesscaregiversMedicineRPediatricsRJ1-570ENTRJournal of Pediatric Research, Vol 8, Iss 4, Pp 451-455 (2021)
institution	DOAJ
collection	DOAJ
language	EN TR
topic	familial mediterranean fever awareness caregivers Medicine R Pediatrics RJ1-570
spellingShingle	familial mediterranean fever awareness caregivers Medicine R Pediatrics RJ1-570 Belde Kasap Demir Tuğçe Karahafız Gülşah Yılmaz Eren Soyaltın Awareness of FMF among Caregivers
description	Aim:Familial Mediterranean Fever (FMF) is one of the most frequent genetic diseases with a frequency of 1/1,000 in our country. We aimed to assess awareness of FMF among caregivers of patients with and without FMF.Materials and Methods:Caregivers of FMF patients (group 1) and other caregivers who were in hospital for other reasons (group 2) were given a questionnaire regarding FMF and the results were compared between the 2 groups.Results:The mean ages were similar between group 1 (n=142) and group 2 (n=207). Female gender and lower educational status were more frequent in group 1. Group 1 was more aware that recurrent fever, joint pain, abdominal pain, and its occurrence in attacks are seen in FMF; and also that the disease is inherited rather than contagious; that a specific treatment exists; that the risk of kidney and heart failure increases when not treated; that attacks are triggered by sleeplessness, tiredness or emotional stress; that colchicine does not provide complete recovery; and that diarrhea is the most common side effect of colchicine (p<0.05). However, awareness about chest pain as a feature, infertility as a complication, non-adherence as a trigger for the disease and the statement that “patients feel healthy between attacks” were similar (p>0.05). Interestingly, group 2 was more aware that different treatment options exist (p=0.04). The total score was higher in group 1 and in participants who only graduated from secondary school or less (p<0.01).Conclusion:Being a caregiver of a patient was associated with a higher level of awareness of FMF regardless of education level, however, they still need to be informed about current developments.
format	article
author	Belde Kasap Demir Tuğçe Karahafız Gülşah Yılmaz Eren Soyaltın
author_facet	Belde Kasap Demir Tuğçe Karahafız Gülşah Yılmaz Eren Soyaltın
author_sort	Belde Kasap Demir
title	Awareness of FMF among Caregivers
title_short	Awareness of FMF among Caregivers
title_full	Awareness of FMF among Caregivers
title_fullStr	Awareness of FMF among Caregivers
title_full_unstemmed	Awareness of FMF among Caregivers
title_sort	awareness of fmf among caregivers
publisher	Galenos Yayinevi
publishDate	2021
url	https://doaj.org/article/7747d9d283fa41a5b4b065858b0f7b61
work_keys_str_mv	AT beldekasapdemir awarenessoffmfamongcaregivers AT tugcekarahafız awarenessoffmfamongcaregivers AT gulsahyılmaz awarenessoffmfamongcaregivers AT erensoyaltın awarenessoffmfamongcaregivers
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Awareness of FMF among Caregivers

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