An experience of practitioners navigating the role of patient/caregiver

This journey involved one of us having (repeat) intraspinal surgery in a country far from home but of a similar culture and with the same first language. The carer travelled across the world to be present during the hospital stay. We kept a journal during our admission, and following discharge reali...

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Autores principales:	Susan Shaw, Rain Lamdin
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2017
Materias:	patient experience patient-centered care patient engagement patient- and family- centered care quality of care communication Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/7b0e2b2f4c8b44dc95f0bb9aa06b8971
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spelling	oai:doaj.org-article:7b0e2b2f4c8b44dc95f0bb9aa06b89712021-11-15T04:21:57ZAn experience of practitioners navigating the role of patient/caregiver2372-0247https://doaj.org/article/7b0e2b2f4c8b44dc95f0bb9aa06b89712017-04-01T00:00:00Zhttps://pxjournal.org/journal/vol4/iss1/17https://doaj.org/toc/2372-0247This journey involved one of us having (repeat) intraspinal surgery in a country far from home but of a similar culture and with the same first language. The carer travelled across the world to be present during the hospital stay. We kept a journal during our admission, and following discharge realised there were significant differences between how we had documented our experience and the record presented in the clinical notes. The particular examples we present illustrate the relationships, rules and issues that we navigated. We share our experience in the form of moments from our journal, some of them alongside information recorded in the clinical notes for the corresponding timeframe. This provides insights into differing narratives between the experiences of the patient/caregiver and practitioners. We recommend that individual practitioners and organisations consider the lived experience of patients and how they consciously engage with patients/carers to address the risk of ‘othering’.Susan ShawRain LamdinThe Beryl Institutearticlepatient experiencepatient-centered care patient engagementpatient- and family- centered carequality of carecommunicationMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2017)
institution	DOAJ
collection	DOAJ
language	EN
topic	patient experience patient-centered care patient engagement patient- and family- centered care quality of care communication Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	patient experience patient-centered care patient engagement patient- and family- centered care quality of care communication Medicine (General) R5-920 Public aspects of medicine RA1-1270 Susan Shaw Rain Lamdin An experience of practitioners navigating the role of patient/caregiver
description	This journey involved one of us having (repeat) intraspinal surgery in a country far from home but of a similar culture and with the same first language. The carer travelled across the world to be present during the hospital stay. We kept a journal during our admission, and following discharge realised there were significant differences between how we had documented our experience and the record presented in the clinical notes. The particular examples we present illustrate the relationships, rules and issues that we navigated. We share our experience in the form of moments from our journal, some of them alongside information recorded in the clinical notes for the corresponding timeframe. This provides insights into differing narratives between the experiences of the patient/caregiver and practitioners. We recommend that individual practitioners and organisations consider the lived experience of patients and how they consciously engage with patients/carers to address the risk of ‘othering’.
format	article
author	Susan Shaw Rain Lamdin
author_facet	Susan Shaw Rain Lamdin
author_sort	Susan Shaw
title	An experience of practitioners navigating the role of patient/caregiver
title_short	An experience of practitioners navigating the role of patient/caregiver
title_full	An experience of practitioners navigating the role of patient/caregiver
title_fullStr	An experience of practitioners navigating the role of patient/caregiver
title_full_unstemmed	An experience of practitioners navigating the role of patient/caregiver
title_sort	experience of practitioners navigating the role of patient/caregiver
publisher	The Beryl Institute
publishDate	2017
url	https://doaj.org/article/7b0e2b2f4c8b44dc95f0bb9aa06b8971
work_keys_str_mv	AT susanshaw anexperienceofpractitionersnavigatingtheroleofpatientcaregiver AT rainlamdin anexperienceofpractitionersnavigatingtheroleofpatientcaregiver AT susanshaw experienceofpractitionersnavigatingtheroleofpatientcaregiver AT rainlamdin experienceofpractitionersnavigatingtheroleofpatientcaregiver
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An experience of practitioners navigating the role of patient/caregiver

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