Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases

Objective. To understand grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases. Methods. This cross-sectional study was developed following the guidelines of the clinical-qualitative method. The sample was composed of 1...

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Autores principales:	Joice Soares Campos, Anna Cláudia Yokoyama dos Anjos, Sebastião Benício da Costa Neto, Rodrigo Sanches Peres
Formato:	article
Lenguaje:	EN
Publicado:	Universidad de Antioquia 2021
Materias:	caregivers home nursing aged family health qualitative research Nursing RT1-120
Acceso en línea:	https://doaj.org/article/7b23d2e5d9894dafa54499d0287beb01
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spelling	oai:doaj.org-article:7b23d2e5d9894dafa54499d0287beb012021-11-26T19:54:04ZGrieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases2216-028010.17533/udea.iee.v39n2e09https://doaj.org/article/7b23d2e5d9894dafa54499d0287beb012021-06-01T00:00:00Zhttps://revistas.udea.edu.co/index.php/iee/article/view/346566https://doaj.org/toc/2216-0280Objective. To understand grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases. Methods. This cross-sectional study was developed following the guidelines of the clinical-qualitative method. The sample was composed of 10 female family caregivers of bedridden elderly patients affected by chronic degenerative diseases in a city in the interior of Minas Gerais, Brazil. The sample size was determined by data saturation. The instruments used included semi-structured interviews and a field diary. The audio-recorded interviews were transcribed verbatim and submitted to content analysis. The field diary provided contributions to the organization of categories, conferring a more accurate context. Results. The participants experienced two types of grief, one for the loss of a “healthy family member” and the other for the “announced death” of this person. Additionally, the participants faced two main struggles: overcoming (objective and subjective) fatigue and becoming fully capable of performing their roles. Conclusion. The family caregivers of bedridden elderly patients affected by chronic degenerative diseases experience grieves and struggles that should be taken into account from the beginning of the care process through mental health actions intended to meet their needs.Joice Soares CamposAnna Cláudia Yokoyama dos AnjosSebastião Benício da Costa NetoRodrigo Sanches PeresUniversidad de Antioquiaarticlecaregivershome nursingagedfamily healthqualitative researchNursingRT1-120ENInvestigación y Educación en Enfermería, Vol 39, Iss 2 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	caregivers home nursing aged family health qualitative research Nursing RT1-120
spellingShingle	caregivers home nursing aged family health qualitative research Nursing RT1-120 Joice Soares Campos Anna Cláudia Yokoyama dos Anjos Sebastião Benício da Costa Neto Rodrigo Sanches Peres Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases
description	Objective. To understand grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases. Methods. This cross-sectional study was developed following the guidelines of the clinical-qualitative method. The sample was composed of 10 female family caregivers of bedridden elderly patients affected by chronic degenerative diseases in a city in the interior of Minas Gerais, Brazil. The sample size was determined by data saturation. The instruments used included semi-structured interviews and a field diary. The audio-recorded interviews were transcribed verbatim and submitted to content analysis. The field diary provided contributions to the organization of categories, conferring a more accurate context. Results. The participants experienced two types of grief, one for the loss of a “healthy family member” and the other for the “announced death” of this person. Additionally, the participants faced two main struggles: overcoming (objective and subjective) fatigue and becoming fully capable of performing their roles. Conclusion. The family caregivers of bedridden elderly patients affected by chronic degenerative diseases experience grieves and struggles that should be taken into account from the beginning of the care process through mental health actions intended to meet their needs.
format	article
author	Joice Soares Campos Anna Cláudia Yokoyama dos Anjos Sebastião Benício da Costa Neto Rodrigo Sanches Peres
author_facet	Joice Soares Campos Anna Cláudia Yokoyama dos Anjos Sebastião Benício da Costa Neto Rodrigo Sanches Peres
author_sort	Joice Soares Campos
title	Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases
title_short	Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases
title_full	Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases
title_fullStr	Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases
title_full_unstemmed	Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases
title_sort	grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases
publisher	Universidad de Antioquia
publishDate	2021
url	https://doaj.org/article/7b23d2e5d9894dafa54499d0287beb01
work_keys_str_mv	AT joicesoarescampos grievesandstrugglesoffamilycaregiversprovidingcareforbedriddenelderlypatientsaffectedbychronicdegenerativediseases AT annaclaudiayokoyamadosanjos grievesandstrugglesoffamilycaregiversprovidingcareforbedriddenelderlypatientsaffectedbychronicdegenerativediseases AT sebastiaobeniciodacostaneto grievesandstrugglesoffamilycaregiversprovidingcareforbedriddenelderlypatientsaffectedbychronicdegenerativediseases AT rodrigosanchesperes grievesandstrugglesoffamilycaregiversprovidingcareforbedriddenelderlypatientsaffectedbychronicdegenerativediseases
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Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases

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