Qualitative Parental Perceptions of a Paediatric Multidisciplinary Team Clinic for Prader-Willi Syndrome
Objective:This preliminary review was conducted to inform the design of a new service to support families with children with Prader-Willi syndrome (PWS). Families were invited to attend a pilot clinic at a hospital outpatient department, comprising appointments with a multi-disciplinary team (MDT).M...
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Autores principales: | Jennifer S. Cox, Claire Semple, Rhian Augustus, Melanie Wenn, Shelley Easter, Rebecca Broadbent, Dinesh Giri, Elanor C. Hinton |
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Formato: | article |
Lenguaje: | EN |
Publicado: |
Galenos Yayincilik
2021
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Materias: | |
Acceso en línea: | https://doaj.org/article/7b9e6e3ac8ce4324aace7be7396821d4 |
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