The Children’s Hospital of Philadelphia Family Partners Program: Promoting child and family-centered care in pediatrics

Involving Family Advisory Councils in decisions that impact pediatric healthcare demonstrates hospitals’ commitment to child- and family-centered care. Yet, reliance on advisors as the sole source of family input has several limitations: infrequent meetings impedes the council’s capacity to address...

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Autores principales:	Amy Kratchman, BA, Darlene Barkman, MA, Kathy Conaboy, BA, Anna de la Motte, MSed, Rachel Biblow, MSW, Katherine Bevans, PhD
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2015
Materias:	patient and family advisory councils pediatrics family centered care patient experience Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/7c06179a930c4e71b2abb96b73db8592
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spelling	oai:doaj.org-article:7c06179a930c4e71b2abb96b73db85922021-11-15T03:55:59ZThe Children’s Hospital of Philadelphia Family Partners Program: Promoting child and family-centered care in pediatrics2372-0247https://doaj.org/article/7c06179a930c4e71b2abb96b73db85922015-04-01T00:00:00Zhttps://pxjournal.org/journal/vol2/iss1/8https://doaj.org/toc/2372-0247Involving Family Advisory Councils in decisions that impact pediatric healthcare demonstrates hospitals’ commitment to child- and family-centered care. Yet, reliance on advisors as the sole source of family input has several limitations: infrequent meetings impedes the council’s capacity to address emerging concerns in a timely manner; feedback obtained from a small number of highly-engaged family members may not represent the perspectives of “typical” patients and families; advisors provide feedback in a reactive manner and are generally not equitably involved in problem identification or the initial development of solutions. In recognition of the need to strengthen and advance family partnerships, the Children’s Hospital of Philadelphia made significant structural and operational changes to advance and expand the family centered care model. The Family Partners Program, a component of the broader family centered care portfolio, is a centralized institution-wide resource that enables practitioners, researchers, and healthcare leaders to collaborate with trained family representatives. This paper describes the Family Partner Program infrastructure; approaches to recruiting, onboarding, training, and mentoring parents and caregivers; and the many ways that Family Partners promote the core principles of child- and family-centeredness in clinical care, quality improve, and research contexts.Amy Kratchman, BADarlene Barkman, MAKathy Conaboy, BAAnna de la Motte, MSedRachel Biblow, MSWKatherine Bevans, PhDThe Beryl Institutearticlepatient and family advisory councilspediatricsfamily centered carepatient experienceMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2015)
institution	DOAJ
collection	DOAJ
language	EN
topic	patient and family advisory councils pediatrics family centered care patient experience Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	patient and family advisory councils pediatrics family centered care patient experience Medicine (General) R5-920 Public aspects of medicine RA1-1270 Amy Kratchman, BA Darlene Barkman, MA Kathy Conaboy, BA Anna de la Motte, MSed Rachel Biblow, MSW Katherine Bevans, PhD The Children’s Hospital of Philadelphia Family Partners Program: Promoting child and family-centered care in pediatrics
description	Involving Family Advisory Councils in decisions that impact pediatric healthcare demonstrates hospitals’ commitment to child- and family-centered care. Yet, reliance on advisors as the sole source of family input has several limitations: infrequent meetings impedes the council’s capacity to address emerging concerns in a timely manner; feedback obtained from a small number of highly-engaged family members may not represent the perspectives of “typical” patients and families; advisors provide feedback in a reactive manner and are generally not equitably involved in problem identification or the initial development of solutions. In recognition of the need to strengthen and advance family partnerships, the Children’s Hospital of Philadelphia made significant structural and operational changes to advance and expand the family centered care model. The Family Partners Program, a component of the broader family centered care portfolio, is a centralized institution-wide resource that enables practitioners, researchers, and healthcare leaders to collaborate with trained family representatives. This paper describes the Family Partner Program infrastructure; approaches to recruiting, onboarding, training, and mentoring parents and caregivers; and the many ways that Family Partners promote the core principles of child- and family-centeredness in clinical care, quality improve, and research contexts.
format	article
author	Amy Kratchman, BA Darlene Barkman, MA Kathy Conaboy, BA Anna de la Motte, MSed Rachel Biblow, MSW Katherine Bevans, PhD
author_facet	Amy Kratchman, BA Darlene Barkman, MA Kathy Conaboy, BA Anna de la Motte, MSed Rachel Biblow, MSW Katherine Bevans, PhD
author_sort	Amy Kratchman, BA
title	The Children’s Hospital of Philadelphia Family Partners Program: Promoting child and family-centered care in pediatrics
title_short	The Children’s Hospital of Philadelphia Family Partners Program: Promoting child and family-centered care in pediatrics
title_full	The Children’s Hospital of Philadelphia Family Partners Program: Promoting child and family-centered care in pediatrics
title_fullStr	The Children’s Hospital of Philadelphia Family Partners Program: Promoting child and family-centered care in pediatrics
title_full_unstemmed	The Children’s Hospital of Philadelphia Family Partners Program: Promoting child and family-centered care in pediatrics
title_sort	children’s hospital of philadelphia family partners program: promoting child and family-centered care in pediatrics
publisher	The Beryl Institute
publishDate	2015
url	https://doaj.org/article/7c06179a930c4e71b2abb96b73db8592
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The Children’s Hospital of Philadelphia Family Partners Program: Promoting child and family-centered care in pediatrics

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