Changing the Shape of Sickle Cell Disease Treatment: A Hermeneutic Study of a Case that Changed a Family and a Medical Practice
This hermeneutic study analyzes a case of one family who chose to undergo two hematopoietic stem cell transplants for two of their four children affected with sickle cell disease (SCD) with full knowledge of the risks involved with curative therapy. This case had a life-changing impact on the famil...
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University of Calgary
2017
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oai:doaj.org-article:7c2edaf885d14d3db8bbdd76526de1532021-11-25T21:24:49ZChanging the Shape of Sickle Cell Disease Treatment: A Hermeneutic Study of a Case that Changed a Family and a Medical Practice10.11575/jah.v0i0.533061927-4416https://doaj.org/article/7c2edaf885d14d3db8bbdd76526de1532017-03-01T00:00:00Zhttps://journalhosting.ucalgary.ca/index.php/jah/article/view/53306https://doaj.org/toc/1927-4416 This hermeneutic study analyzes a case of one family who chose to undergo two hematopoietic stem cell transplants for two of their four children affected with sickle cell disease (SCD) with full knowledge of the risks involved with curative therapy. This case had a life-changing impact on the family and on the medical practice of the physician who worked with them. As a result of this family, international treatment of early transplant for SCD has adopted different protocols. In this study, interviewing the mother in the family, the physician, and the transplant nurse, and analyzing the data hermeneutically brings us to a deeper understanding of how change occurs and its profound effect on lives and medical treatment. Nancy J MoulesCatherine M LaingGregory GuilcherUniversity of Calgaryarticlehermeneuticssickle cell diseasechangefamily-health care professional relationshipsPhilosophy (General)B1-5802ENJournal of Applied Hermeneutics (2017) |
institution |
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topic |
hermeneutics sickle cell disease change family-health care professional relationships Philosophy (General) B1-5802 |
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hermeneutics sickle cell disease change family-health care professional relationships Philosophy (General) B1-5802 Nancy J Moules Catherine M Laing Gregory Guilcher Changing the Shape of Sickle Cell Disease Treatment: A Hermeneutic Study of a Case that Changed a Family and a Medical Practice |
description |
This hermeneutic study analyzes a case of one family who chose to undergo two hematopoietic stem cell transplants for two of their four children affected with sickle cell disease (SCD) with full knowledge of the risks involved with curative therapy. This case had a life-changing impact on the family and on the medical practice of the physician who worked with them. As a result of this family, international treatment of early transplant for SCD has adopted different protocols. In this study, interviewing the mother in the family, the physician, and the transplant nurse, and analyzing the data hermeneutically brings us to a deeper understanding of how change occurs and its profound effect on lives and medical treatment.
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format |
article |
author |
Nancy J Moules Catherine M Laing Gregory Guilcher |
author_facet |
Nancy J Moules Catherine M Laing Gregory Guilcher |
author_sort |
Nancy J Moules |
title |
Changing the Shape of Sickle Cell Disease Treatment: A Hermeneutic Study of a Case that Changed a Family and a Medical Practice |
title_short |
Changing the Shape of Sickle Cell Disease Treatment: A Hermeneutic Study of a Case that Changed a Family and a Medical Practice |
title_full |
Changing the Shape of Sickle Cell Disease Treatment: A Hermeneutic Study of a Case that Changed a Family and a Medical Practice |
title_fullStr |
Changing the Shape of Sickle Cell Disease Treatment: A Hermeneutic Study of a Case that Changed a Family and a Medical Practice |
title_full_unstemmed |
Changing the Shape of Sickle Cell Disease Treatment: A Hermeneutic Study of a Case that Changed a Family and a Medical Practice |
title_sort |
changing the shape of sickle cell disease treatment: a hermeneutic study of a case that changed a family and a medical practice |
publisher |
University of Calgary |
publishDate |
2017 |
url |
https://doaj.org/article/7c2edaf885d14d3db8bbdd76526de153 |
work_keys_str_mv |
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