Changing the Shape of Sickle Cell Disease Treatment: A Hermeneutic Study of a Case that Changed a Family and a Medical Practice

This hermeneutic study analyzes a case of one family who chose to undergo two hematopoietic stem cell transplants for two of their four children affected with sickle cell disease (SCD) with full knowledge of the risks involved with curative therapy. This case had a life-changing impact on the famil...

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Autores principales: Nancy J Moules, Catherine M Laing, Gregory Guilcher
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Lenguaje:EN
Publicado: University of Calgary 2017
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Acceso en línea:https://doaj.org/article/7c2edaf885d14d3db8bbdd76526de153
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spelling oai:doaj.org-article:7c2edaf885d14d3db8bbdd76526de1532021-11-25T21:24:49ZChanging the Shape of Sickle Cell Disease Treatment: A Hermeneutic Study of a Case that Changed a Family and a Medical Practice10.11575/jah.v0i0.533061927-4416https://doaj.org/article/7c2edaf885d14d3db8bbdd76526de1532017-03-01T00:00:00Zhttps://journalhosting.ucalgary.ca/index.php/jah/article/view/53306https://doaj.org/toc/1927-4416 This hermeneutic study analyzes a case of one family who chose to undergo two hematopoietic stem cell transplants for two of their four children affected with sickle cell disease (SCD) with full knowledge of the risks involved with curative therapy. This case had a life-changing impact on the family and on the medical practice of the physician who worked with them. As a result of this family, international treatment of early transplant for SCD has adopted different protocols. In this study, interviewing the mother in the family, the physician, and the transplant nurse, and analyzing the data hermeneutically brings us to a deeper understanding of how change occurs and its profound effect on lives and medical treatment.   Nancy J MoulesCatherine M LaingGregory GuilcherUniversity of Calgaryarticlehermeneuticssickle cell diseasechangefamily-health care professional relationshipsPhilosophy (General)B1-5802ENJournal of Applied Hermeneutics (2017)
institution DOAJ
collection DOAJ
language EN
topic hermeneutics
sickle cell disease
change
family-health care professional relationships
Philosophy (General)
B1-5802
spellingShingle hermeneutics
sickle cell disease
change
family-health care professional relationships
Philosophy (General)
B1-5802
Nancy J Moules
Catherine M Laing
Gregory Guilcher
Changing the Shape of Sickle Cell Disease Treatment: A Hermeneutic Study of a Case that Changed a Family and a Medical Practice
description This hermeneutic study analyzes a case of one family who chose to undergo two hematopoietic stem cell transplants for two of their four children affected with sickle cell disease (SCD) with full knowledge of the risks involved with curative therapy. This case had a life-changing impact on the family and on the medical practice of the physician who worked with them. As a result of this family, international treatment of early transplant for SCD has adopted different protocols. In this study, interviewing the mother in the family, the physician, and the transplant nurse, and analyzing the data hermeneutically brings us to a deeper understanding of how change occurs and its profound effect on lives and medical treatment.  
format article
author Nancy J Moules
Catherine M Laing
Gregory Guilcher
author_facet Nancy J Moules
Catherine M Laing
Gregory Guilcher
author_sort Nancy J Moules
title Changing the Shape of Sickle Cell Disease Treatment: A Hermeneutic Study of a Case that Changed a Family and a Medical Practice
title_short Changing the Shape of Sickle Cell Disease Treatment: A Hermeneutic Study of a Case that Changed a Family and a Medical Practice
title_full Changing the Shape of Sickle Cell Disease Treatment: A Hermeneutic Study of a Case that Changed a Family and a Medical Practice
title_fullStr Changing the Shape of Sickle Cell Disease Treatment: A Hermeneutic Study of a Case that Changed a Family and a Medical Practice
title_full_unstemmed Changing the Shape of Sickle Cell Disease Treatment: A Hermeneutic Study of a Case that Changed a Family and a Medical Practice
title_sort changing the shape of sickle cell disease treatment: a hermeneutic study of a case that changed a family and a medical practice
publisher University of Calgary
publishDate 2017
url https://doaj.org/article/7c2edaf885d14d3db8bbdd76526de153
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AT gregoryguilcher changingtheshapeofsicklecelldiseasetreatmentahermeneuticstudyofacasethatchangedafamilyandamedicalpractice
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