“Can I still get a tattoo?” Patients’ experiences across the clinical trajectory for metastatic melanoma: a dynamic narrative model of patient journey

Advanced and metastatic cancer has a complex diagnostic and management profile that places a heavy long-term burden on patients and healthcare systems. Little attention has been given to patients’ experiences across their entire clinical journey. Using a qualitative, longitudinal methodology over a...

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Detalles Bibliográficos
Autores principales:	Klay Lamprell, Melvin Chin, Jeffrey Braithwaite
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2019
Materias:	melanoma person-centered patient-centric patient trajectory patient journey narrative qualitative Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/7d10d9b0eda741c1b913499a33aaf97d
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spelling	oai:doaj.org-article:7d10d9b0eda741c1b913499a33aaf97d2021-11-15T04:28:38Z“Can I still get a tattoo?” Patients’ experiences across the clinical trajectory for metastatic melanoma: a dynamic narrative model of patient journey2372-0247https://doaj.org/article/7d10d9b0eda741c1b913499a33aaf97d2019-04-01T00:00:00Zhttps://pxjournal.org/journal/vol6/iss1/11https://doaj.org/toc/2372-0247Advanced and metastatic cancer has a complex diagnostic and management profile that places a heavy long-term burden on patients and healthcare systems. Little attention has been given to patients’ experiences across their entire clinical journey. Using a qualitative, longitudinal methodology over a ten-month period, we examined the symptom-to-outcome trajectories of seven people attending a medical oncology clinic at a large, public tertiary referral center in Sydney, Australia. Rather than care being experienced as a largely linear progression through diagnosis, treatment and onto surveillance in which life may return to ‘normal’, participants are embedded in a cyclical clinical pathway. Recurrence or metastases are not a matter of ‘if’ but ‘when’. This model of the patient journey points to a need for longitudinal, person-centered services to support the growing population of people with melanoma.Klay LamprellMelvin ChinJeffrey BraithwaiteThe Beryl Institutearticlemelanomaperson-centeredpatient-centricpatient trajectorypatient journeynarrativequalitativeMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2019)
institution	DOAJ
collection	DOAJ
language	EN
topic	melanoma person-centered patient-centric patient trajectory patient journey narrative qualitative Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	melanoma person-centered patient-centric patient trajectory patient journey narrative qualitative Medicine (General) R5-920 Public aspects of medicine RA1-1270 Klay Lamprell Melvin Chin Jeffrey Braithwaite “Can I still get a tattoo?” Patients’ experiences across the clinical trajectory for metastatic melanoma: a dynamic narrative model of patient journey
description	Advanced and metastatic cancer has a complex diagnostic and management profile that places a heavy long-term burden on patients and healthcare systems. Little attention has been given to patients’ experiences across their entire clinical journey. Using a qualitative, longitudinal methodology over a ten-month period, we examined the symptom-to-outcome trajectories of seven people attending a medical oncology clinic at a large, public tertiary referral center in Sydney, Australia. Rather than care being experienced as a largely linear progression through diagnosis, treatment and onto surveillance in which life may return to ‘normal’, participants are embedded in a cyclical clinical pathway. Recurrence or metastases are not a matter of ‘if’ but ‘when’. This model of the patient journey points to a need for longitudinal, person-centered services to support the growing population of people with melanoma.
format	article
author	Klay Lamprell Melvin Chin Jeffrey Braithwaite
author_facet	Klay Lamprell Melvin Chin Jeffrey Braithwaite
author_sort	Klay Lamprell
title	“Can I still get a tattoo?” Patients’ experiences across the clinical trajectory for metastatic melanoma: a dynamic narrative model of patient journey
title_short	“Can I still get a tattoo?” Patients’ experiences across the clinical trajectory for metastatic melanoma: a dynamic narrative model of patient journey
title_full	“Can I still get a tattoo?” Patients’ experiences across the clinical trajectory for metastatic melanoma: a dynamic narrative model of patient journey
title_fullStr	“Can I still get a tattoo?” Patients’ experiences across the clinical trajectory for metastatic melanoma: a dynamic narrative model of patient journey
title_full_unstemmed	“Can I still get a tattoo?” Patients’ experiences across the clinical trajectory for metastatic melanoma: a dynamic narrative model of patient journey
title_sort	“can i still get a tattoo?” patients’ experiences across the clinical trajectory for metastatic melanoma: a dynamic narrative model of patient journey
publisher	The Beryl Institute
publishDate	2019
url	https://doaj.org/article/7d10d9b0eda741c1b913499a33aaf97d
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“Can I still get a tattoo?” Patients’ experiences across the clinical trajectory for metastatic melanoma: a dynamic narrative model of patient journey

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