Governance quality indicators for organ procurement policies.

<h4>Background</h4>Consent policies for post-mortem organ procurement (OP) vary throughout Europe, and yet no studies have empirically evaluated the ethical implications of contrasting consent models. To fill this gap, we introduce a novel indicator of governance quality based on the ide...

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Autores principales: David Rodríguez-Arias, Alberto Molina-Pérez, Ivar R Hannikainen, Janet Delgado, Benjamin Söchtig, Sabine Wöhlke, Silke Schicktanz
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Publicado: Public Library of Science (PLoS) 2021
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Acceso en línea:https://doaj.org/article/8210cc476c98462cb81cee4bc17925b9
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spelling oai:doaj.org-article:8210cc476c98462cb81cee4bc17925b92021-12-02T20:11:02ZGovernance quality indicators for organ procurement policies.1932-620310.1371/journal.pone.0252686https://doaj.org/article/8210cc476c98462cb81cee4bc17925b92021-01-01T00:00:00Zhttps://doi.org/10.1371/journal.pone.0252686https://doaj.org/toc/1932-6203<h4>Background</h4>Consent policies for post-mortem organ procurement (OP) vary throughout Europe, and yet no studies have empirically evaluated the ethical implications of contrasting consent models. To fill this gap, we introduce a novel indicator of governance quality based on the ideal of informed support, and examine national differences on this measure through a quantitative survey of OP policy informedness and preferences in seven European countries.<h4>Methods</h4>Between 2017-2019, we conducted a convenience sample survey of students (n = 2006) in Austria (AT), Belgium (BE), Denmark (DK), Germany (DE), Greece (GR), Slovenia (SI) and Spain (ES), asking participants about their donation preferences, as well as their beliefs and views about the policy in place. From these measures, we computed indices of informedness, policy support, and fulfilment of unexpressed preferences, which we compared across countries and consent systems.<h4>Results</h4>Our study introduces a tool for analyzing policy governance in the context of OP. Wide variation in policy awareness was observed: Most respondents in DK, DE, AT and BE correctly identified the policy in place, while those in SI, GR and ES did not. Respondents in opt-out countries (AT, BE, ES and GR) tended to support the policy in place (with one exception, i.e., SI), whereas those in opt-in countries (DE and DK) overwhelmingly opposed it. These results reveal stark differences in governance quality across countries and consent policies: We found a preponderance of informed opposition in opt-in countries and a general tendency towards support-either informed or uninformed-in opt-out countries. We also found informed divergence in opt-in countries and a tendency for convergence-either informed or uninformed-among opt-out countries.<h4>Conclusion</h4>Our study offers a novel tool for analyzing governance quality and illustrates, in the context of OP, how the strengths and weaknesses of different policy implementations can be estimated and compared using quantitative survey data.David Rodríguez-AriasAlberto Molina-PérezIvar R HannikainenJanet DelgadoBenjamin SöchtigSabine WöhlkeSilke SchicktanzPublic Library of Science (PLoS)articleMedicineRScienceQENPLoS ONE, Vol 16, Iss 6, p e0252686 (2021)
institution DOAJ
collection DOAJ
language EN
topic Medicine
R
Science
Q
spellingShingle Medicine
R
Science
Q
David Rodríguez-Arias
Alberto Molina-Pérez
Ivar R Hannikainen
Janet Delgado
Benjamin Söchtig
Sabine Wöhlke
Silke Schicktanz
Governance quality indicators for organ procurement policies.
description <h4>Background</h4>Consent policies for post-mortem organ procurement (OP) vary throughout Europe, and yet no studies have empirically evaluated the ethical implications of contrasting consent models. To fill this gap, we introduce a novel indicator of governance quality based on the ideal of informed support, and examine national differences on this measure through a quantitative survey of OP policy informedness and preferences in seven European countries.<h4>Methods</h4>Between 2017-2019, we conducted a convenience sample survey of students (n = 2006) in Austria (AT), Belgium (BE), Denmark (DK), Germany (DE), Greece (GR), Slovenia (SI) and Spain (ES), asking participants about their donation preferences, as well as their beliefs and views about the policy in place. From these measures, we computed indices of informedness, policy support, and fulfilment of unexpressed preferences, which we compared across countries and consent systems.<h4>Results</h4>Our study introduces a tool for analyzing policy governance in the context of OP. Wide variation in policy awareness was observed: Most respondents in DK, DE, AT and BE correctly identified the policy in place, while those in SI, GR and ES did not. Respondents in opt-out countries (AT, BE, ES and GR) tended to support the policy in place (with one exception, i.e., SI), whereas those in opt-in countries (DE and DK) overwhelmingly opposed it. These results reveal stark differences in governance quality across countries and consent policies: We found a preponderance of informed opposition in opt-in countries and a general tendency towards support-either informed or uninformed-in opt-out countries. We also found informed divergence in opt-in countries and a tendency for convergence-either informed or uninformed-among opt-out countries.<h4>Conclusion</h4>Our study offers a novel tool for analyzing governance quality and illustrates, in the context of OP, how the strengths and weaknesses of different policy implementations can be estimated and compared using quantitative survey data.
format article
author David Rodríguez-Arias
Alberto Molina-Pérez
Ivar R Hannikainen
Janet Delgado
Benjamin Söchtig
Sabine Wöhlke
Silke Schicktanz
author_facet David Rodríguez-Arias
Alberto Molina-Pérez
Ivar R Hannikainen
Janet Delgado
Benjamin Söchtig
Sabine Wöhlke
Silke Schicktanz
author_sort David Rodríguez-Arias
title Governance quality indicators for organ procurement policies.
title_short Governance quality indicators for organ procurement policies.
title_full Governance quality indicators for organ procurement policies.
title_fullStr Governance quality indicators for organ procurement policies.
title_full_unstemmed Governance quality indicators for organ procurement policies.
title_sort governance quality indicators for organ procurement policies.
publisher Public Library of Science (PLoS)
publishDate 2021
url https://doaj.org/article/8210cc476c98462cb81cee4bc17925b9
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