Governance quality indicators for organ procurement policies.
<h4>Background</h4>Consent policies for post-mortem organ procurement (OP) vary throughout Europe, and yet no studies have empirically evaluated the ethical implications of contrasting consent models. To fill this gap, we introduce a novel indicator of governance quality based on the ide...
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2021
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oai:doaj.org-article:8210cc476c98462cb81cee4bc17925b92021-12-02T20:11:02ZGovernance quality indicators for organ procurement policies.1932-620310.1371/journal.pone.0252686https://doaj.org/article/8210cc476c98462cb81cee4bc17925b92021-01-01T00:00:00Zhttps://doi.org/10.1371/journal.pone.0252686https://doaj.org/toc/1932-6203<h4>Background</h4>Consent policies for post-mortem organ procurement (OP) vary throughout Europe, and yet no studies have empirically evaluated the ethical implications of contrasting consent models. To fill this gap, we introduce a novel indicator of governance quality based on the ideal of informed support, and examine national differences on this measure through a quantitative survey of OP policy informedness and preferences in seven European countries.<h4>Methods</h4>Between 2017-2019, we conducted a convenience sample survey of students (n = 2006) in Austria (AT), Belgium (BE), Denmark (DK), Germany (DE), Greece (GR), Slovenia (SI) and Spain (ES), asking participants about their donation preferences, as well as their beliefs and views about the policy in place. From these measures, we computed indices of informedness, policy support, and fulfilment of unexpressed preferences, which we compared across countries and consent systems.<h4>Results</h4>Our study introduces a tool for analyzing policy governance in the context of OP. Wide variation in policy awareness was observed: Most respondents in DK, DE, AT and BE correctly identified the policy in place, while those in SI, GR and ES did not. Respondents in opt-out countries (AT, BE, ES and GR) tended to support the policy in place (with one exception, i.e., SI), whereas those in opt-in countries (DE and DK) overwhelmingly opposed it. These results reveal stark differences in governance quality across countries and consent policies: We found a preponderance of informed opposition in opt-in countries and a general tendency towards support-either informed or uninformed-in opt-out countries. We also found informed divergence in opt-in countries and a tendency for convergence-either informed or uninformed-among opt-out countries.<h4>Conclusion</h4>Our study offers a novel tool for analyzing governance quality and illustrates, in the context of OP, how the strengths and weaknesses of different policy implementations can be estimated and compared using quantitative survey data.David Rodríguez-AriasAlberto Molina-PérezIvar R HannikainenJanet DelgadoBenjamin SöchtigSabine WöhlkeSilke SchicktanzPublic Library of Science (PLoS)articleMedicineRScienceQENPLoS ONE, Vol 16, Iss 6, p e0252686 (2021) |
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Medicine R Science Q David Rodríguez-Arias Alberto Molina-Pérez Ivar R Hannikainen Janet Delgado Benjamin Söchtig Sabine Wöhlke Silke Schicktanz Governance quality indicators for organ procurement policies. |
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<h4>Background</h4>Consent policies for post-mortem organ procurement (OP) vary throughout Europe, and yet no studies have empirically evaluated the ethical implications of contrasting consent models. To fill this gap, we introduce a novel indicator of governance quality based on the ideal of informed support, and examine national differences on this measure through a quantitative survey of OP policy informedness and preferences in seven European countries.<h4>Methods</h4>Between 2017-2019, we conducted a convenience sample survey of students (n = 2006) in Austria (AT), Belgium (BE), Denmark (DK), Germany (DE), Greece (GR), Slovenia (SI) and Spain (ES), asking participants about their donation preferences, as well as their beliefs and views about the policy in place. From these measures, we computed indices of informedness, policy support, and fulfilment of unexpressed preferences, which we compared across countries and consent systems.<h4>Results</h4>Our study introduces a tool for analyzing policy governance in the context of OP. Wide variation in policy awareness was observed: Most respondents in DK, DE, AT and BE correctly identified the policy in place, while those in SI, GR and ES did not. Respondents in opt-out countries (AT, BE, ES and GR) tended to support the policy in place (with one exception, i.e., SI), whereas those in opt-in countries (DE and DK) overwhelmingly opposed it. These results reveal stark differences in governance quality across countries and consent policies: We found a preponderance of informed opposition in opt-in countries and a general tendency towards support-either informed or uninformed-in opt-out countries. We also found informed divergence in opt-in countries and a tendency for convergence-either informed or uninformed-among opt-out countries.<h4>Conclusion</h4>Our study offers a novel tool for analyzing governance quality and illustrates, in the context of OP, how the strengths and weaknesses of different policy implementations can be estimated and compared using quantitative survey data. |
format |
article |
author |
David Rodríguez-Arias Alberto Molina-Pérez Ivar R Hannikainen Janet Delgado Benjamin Söchtig Sabine Wöhlke Silke Schicktanz |
author_facet |
David Rodríguez-Arias Alberto Molina-Pérez Ivar R Hannikainen Janet Delgado Benjamin Söchtig Sabine Wöhlke Silke Schicktanz |
author_sort |
David Rodríguez-Arias |
title |
Governance quality indicators for organ procurement policies. |
title_short |
Governance quality indicators for organ procurement policies. |
title_full |
Governance quality indicators for organ procurement policies. |
title_fullStr |
Governance quality indicators for organ procurement policies. |
title_full_unstemmed |
Governance quality indicators for organ procurement policies. |
title_sort |
governance quality indicators for organ procurement policies. |
publisher |
Public Library of Science (PLoS) |
publishDate |
2021 |
url |
https://doaj.org/article/8210cc476c98462cb81cee4bc17925b9 |
work_keys_str_mv |
AT davidrodriguezarias governancequalityindicatorsfororganprocurementpolicies AT albertomolinaperez governancequalityindicatorsfororganprocurementpolicies AT ivarrhannikainen governancequalityindicatorsfororganprocurementpolicies AT janetdelgado governancequalityindicatorsfororganprocurementpolicies AT benjaminsochtig governancequalityindicatorsfororganprocurementpolicies AT sabinewohlke governancequalityindicatorsfororganprocurementpolicies AT silkeschicktanz governancequalityindicatorsfororganprocurementpolicies |
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1718374955580653568 |