Utilization, effect, and benefit of the individualized Meeting Centers Support Program for people with dementia and caregivers

Rose-Marie Dröes,1,2 Annelies van Rijn,1 Eline Rus,3 Seghoslène Dacier,4 Franka Meiland1,4,51Department of Psychiatry, Amsterdam University Medical Centers, Location Vumc, Amsterdam Public Health Research Institute, Amsterdam, The Netherlands; 2Department of Research and Innovati...

Descripción completa

Guardado en:

Detalles Bibliográficos
Autores principales:	Dröes RM, van Rijn A, Rus E, Dacier S, Meiland F
Formato:	article
Lenguaje:	EN
Publicado:	Dove Medical Press 2019
Materias:	Individualized support DemenTalent telephone coaching e-Learning neuropsychiatric symptoms emotional burden caregivers Geriatrics RC952-954.6
Acceso en línea:	https://doaj.org/article/827ee23b94584a34b56dab49ff936332
Etiquetas:	Agregar Etiqueta Sin Etiquetas, Sea el primero en etiquetar este registro!

id	oai:doaj.org-article:827ee23b94584a34b56dab49ff936332
record_format	dspace
institution	DOAJ
collection	DOAJ
language	EN
topic	Individualized support DemenTalent telephone coaching e-Learning neuropsychiatric symptoms emotional burden caregivers Geriatrics RC952-954.6
spellingShingle	Individualized support DemenTalent telephone coaching e-Learning neuropsychiatric symptoms emotional burden caregivers Geriatrics RC952-954.6 Dröes RM van Rijn A Rus E Dacier S Meiland F Utilization, effect, and benefit of the individualized Meeting Centers Support Program for people with dementia and caregivers
description	Rose-Marie Dröes,1,2 Annelies van Rijn,1 Eline Rus,3 Seghoslène Dacier,4 Franka Meiland1,4,51Department of Psychiatry, Amsterdam University Medical Centers, Location Vumc, Amsterdam Public Health Research Institute, Amsterdam, The Netherlands; 2Department of Research and Innovation, Regional Mental Health Organization Ggzingeest, Amsterdam, The Netherlands; 3Department of Clinical Pyschology, Faculty of Behavior and Movement Sciences, VU University, Amsterdam, The Netherlands; 4Department of Neuropsychology, Faculty of Behavior and Movement Sciences, VU University, Amsterdam, The Netherlands; 5Gerion, Department of General Practice and Elderly Care Medicine, Amsterdam University Medical Centers, Location Vumc, Amsterdam, The NetherlandsCorrespondence: Rose-Marie DröesDepartment of Psychiatry, Amsterdam UMC, location VUmc, GGZ-inGeest Dienst onderzoek en innovatie, Oldenaller 1, 1081 HJ Amsterdam, Postbox 74077, Amsterdam 1070 BB, the NetherlandsTel +31 20 788 5454Email rm.droes@amsterdamumc.nlPurpose: There are few interventions on an individual basis to support community-dwelling people with dementia to continue to fulfill their potential in society and to support their informal caregivers via e-Health. This study explored the effectiveness of the individualized Meeting Centers Support Program (iMCSP) consisting of DemenTalent (people with dementia work as volunteers in a society based on their talents), Dementelcoach (telephone coaching), and STAR e-Learning for caregivers, compared to regular MCSP and No day care support.Method: An explorative randomized controlled trial with pre/post measurements (M0-M6) and two groups (iMCSP and regular MCSP). In addition, a comparison was made between iMCSP and a reference No day care control group. Standardized questionnaires were administered on self-esteem, neuropsychiatric symptoms, experienced autonomy and quality of life of the person with dementia, and on caregiver’s sense of competence, quality of life, and happiness.Results: The iMCSP interventions resulted in a broader group of participants utilizing the Meeting Centers. Compared to regular MCSP, DemenTalent had a moderate positive effect on neuropsychiatric symptoms, which also proved less severe. Positive affect of participants improved within the DemenTalent and regular MCSP group after six months. Caregivers of DemenTalent participants experienced less emotional impact of neuropsychiatric symptoms. No differences were found in experienced burden, sense of competence, or quality of life in caregivers using iMCSP or regular MCSP. Compared to those receiving No day care support, caregivers of DemenTalent participants and caregivers using Dementelcoach or STAR e-Learning proved happier. Post-hoc analyses, accounting for potential between-group differences in outcome measures at baseline, generally showed results in the same direction. People with dementia and caregivers highly appreciated iMCSP and regular MCSP.Conclusion: iMCSP can be effectively applied as alternative or additional support via regular Meeting Centers for people with dementia and caregivers who prefer individualized activities/support. DemenTalent decreased the severity of neuropsychiatric symptoms of people with dementia and emotional burden of caregivers. All iMCSP interventions tended to result in caregivers being happier compared to those receiving no support. Larger-scale studies are needed to investigate the effect of iMCSP on other domains of quality of life of participants.Keywords: individualized support, DemenTalent, telephone coaching, e-Learning, neuropsychiatric symptoms, emotional burden caregivers
format	article
author	Dröes RM van Rijn A Rus E Dacier S Meiland F
author_facet	Dröes RM van Rijn A Rus E Dacier S Meiland F
author_sort	Dröes RM
title	Utilization, effect, and benefit of the individualized Meeting Centers Support Program for people with dementia and caregivers
title_short	Utilization, effect, and benefit of the individualized Meeting Centers Support Program for people with dementia and caregivers
title_full	Utilization, effect, and benefit of the individualized Meeting Centers Support Program for people with dementia and caregivers
title_fullStr	Utilization, effect, and benefit of the individualized Meeting Centers Support Program for people with dementia and caregivers
title_full_unstemmed	Utilization, effect, and benefit of the individualized Meeting Centers Support Program for people with dementia and caregivers
title_sort	utilization, effect, and benefit of the individualized meeting centers support program for people with dementia and caregivers
publisher	Dove Medical Press
publishDate	2019
url	https://doaj.org/article/827ee23b94584a34b56dab49ff936332
work_keys_str_mv	AT droesrm utilizationeffectandbenefitoftheindividualizedmeetingcenterssupportprogramforpeoplewithdementiaandcaregivers AT vanrijna utilizationeffectandbenefitoftheindividualizedmeetingcenterssupportprogramforpeoplewithdementiaandcaregivers AT ruse utilizationeffectandbenefitoftheindividualizedmeetingcenterssupportprogramforpeoplewithdementiaandcaregivers AT daciers utilizationeffectandbenefitoftheindividualizedmeetingcenterssupportprogramforpeoplewithdementiaandcaregivers AT meilandf utilizationeffectandbenefitoftheindividualizedmeetingcenterssupportprogramforpeoplewithdementiaandcaregivers
_version_	1718398423645814784
spelling	oai:doaj.org-article:827ee23b94584a34b56dab49ff9363322021-12-02T08:38:19ZUtilization, effect, and benefit of the individualized Meeting Centers Support Program for people with dementia and caregivers1178-1998https://doaj.org/article/827ee23b94584a34b56dab49ff9363322019-08-01T00:00:00Zhttps://www.dovepress.com/utilization-effect-and-benefit-of-the-individualized-meeting-centers-s-peer-reviewed-article-CIAhttps://doaj.org/toc/1178-1998Rose-Marie Dröes,1,2 Annelies van Rijn,1 Eline Rus,3 Seghoslène Dacier,4 Franka Meiland1,4,51Department of Psychiatry, Amsterdam University Medical Centers, Location Vumc, Amsterdam Public Health Research Institute, Amsterdam, The Netherlands; 2Department of Research and Innovation, Regional Mental Health Organization Ggzingeest, Amsterdam, The Netherlands; 3Department of Clinical Pyschology, Faculty of Behavior and Movement Sciences, VU University, Amsterdam, The Netherlands; 4Department of Neuropsychology, Faculty of Behavior and Movement Sciences, VU University, Amsterdam, The Netherlands; 5Gerion, Department of General Practice and Elderly Care Medicine, Amsterdam University Medical Centers, Location Vumc, Amsterdam, The NetherlandsCorrespondence: Rose-Marie DröesDepartment of Psychiatry, Amsterdam UMC, location VUmc, GGZ-inGeest Dienst onderzoek en innovatie, Oldenaller 1, 1081 HJ Amsterdam, Postbox 74077, Amsterdam 1070 BB, the NetherlandsTel +31 20 788 5454Email rm.droes@amsterdamumc.nlPurpose: There are few interventions on an individual basis to support community-dwelling people with dementia to continue to fulfill their potential in society and to support their informal caregivers via e-Health. This study explored the effectiveness of the individualized Meeting Centers Support Program (iMCSP) consisting of DemenTalent (people with dementia work as volunteers in a society based on their talents), Dementelcoach (telephone coaching), and STAR e-Learning for caregivers, compared to regular MCSP and No day care support.Method: An explorative randomized controlled trial with pre/post measurements (M0-M6) and two groups (iMCSP and regular MCSP). In addition, a comparison was made between iMCSP and a reference No day care control group. Standardized questionnaires were administered on self-esteem, neuropsychiatric symptoms, experienced autonomy and quality of life of the person with dementia, and on caregiver’s sense of competence, quality of life, and happiness.Results: The iMCSP interventions resulted in a broader group of participants utilizing the Meeting Centers. Compared to regular MCSP, DemenTalent had a moderate positive effect on neuropsychiatric symptoms, which also proved less severe. Positive affect of participants improved within the DemenTalent and regular MCSP group after six months. Caregivers of DemenTalent participants experienced less emotional impact of neuropsychiatric symptoms. No differences were found in experienced burden, sense of competence, or quality of life in caregivers using iMCSP or regular MCSP. Compared to those receiving No day care support, caregivers of DemenTalent participants and caregivers using Dementelcoach or STAR e-Learning proved happier. Post-hoc analyses, accounting for potential between-group differences in outcome measures at baseline, generally showed results in the same direction. People with dementia and caregivers highly appreciated iMCSP and regular MCSP.Conclusion: iMCSP can be effectively applied as alternative or additional support via regular Meeting Centers for people with dementia and caregivers who prefer individualized activities/support. DemenTalent decreased the severity of neuropsychiatric symptoms of people with dementia and emotional burden of caregivers. All iMCSP interventions tended to result in caregivers being happier compared to those receiving no support. Larger-scale studies are needed to investigate the effect of iMCSP on other domains of quality of life of participants.Keywords: individualized support, DemenTalent, telephone coaching, e-Learning, neuropsychiatric symptoms, emotional burden caregiversDröes RMvan Rijn ARus EDacier SMeiland FDove Medical PressarticleIndividualized supportDemenTalenttelephone coachinge-Learningneuropsychiatric symptomsemotional burden caregiversGeriatricsRC952-954.6ENClinical Interventions in Aging, Vol Volume 14, Pp 1527-1553 (2019)

Utilization, effect, and benefit of the individualized Meeting Centers Support Program for people with dementia and caregivers

Ejemplares similares