The most important psychological and psychosocial needs of Polish multiple sclerosis patients and their significant others
Andrzej Potemkowski,1 Waldemar Brola,2,3 Anna Ratajczak,4 Marcin Ratajczak,5 Mariusz Kowalewski,6 Małgorzata Lewita,6 Katarzyna Kapica-Topczewska,7 Joanna Tarasiuk,7 Adam Stępień,8 Katarzyna Gocyła-Dudar,8 Jacek Zaborski,9 Halina Bartosik-Psujek10 1Department of Clinical Psychology and Psychoprophy...
Guardado en:
| Autores principales: | , , , , , , , , , , , |
|---|---|
| Formato: | article |
| Lenguaje: | EN |
| Publicado: |
Dove Medical Press
2017
|
| Materias: | |
| Acceso en línea: | https://doaj.org/article/83af417ee275457f9f95c3de3e52b6dc |
| Etiquetas: |
Agregar Etiqueta
Sin Etiquetas, Sea el primero en etiquetar este registro!
|
| id |
oai:doaj.org-article:83af417ee275457f9f95c3de3e52b6dc |
|---|---|
| record_format |
dspace |
| spelling |
oai:doaj.org-article:83af417ee275457f9f95c3de3e52b6dc2021-12-02T03:16:45ZThe most important psychological and psychosocial needs of Polish multiple sclerosis patients and their significant others1178-2021https://doaj.org/article/83af417ee275457f9f95c3de3e52b6dc2017-07-01T00:00:00Zhttps://www.dovepress.com/the-most-important-psychological-and-psychosocial-needs-of-polish-mult-peer-reviewed-article-NDThttps://doaj.org/toc/1178-2021Andrzej Potemkowski,1 Waldemar Brola,2,3 Anna Ratajczak,4 Marcin Ratajczak,5 Mariusz Kowalewski,6 Małgorzata Lewita,6 Katarzyna Kapica-Topczewska,7 Joanna Tarasiuk,7 Adam Stępień,8 Katarzyna Gocyła-Dudar,8 Jacek Zaborski,9 Halina Bartosik-Psujek10 1Department of Clinical Psychology and Psychoprophylaxis, University of Szczecin, 2Department of Neurology, Specialist Hospital, Końskie, 3The Faculty of Medicine and Health Science, Institute of Physiotherapy, Jan Kochanowski University, Kielce, 4Pomeranian Medical University, Szczecin, 5Clinical Trial Center for MS-Patients, Szczecin, 6John Paul II Multiple Sclerosis Rehabilitation Center, Borne Sulinowo, 7Department of Neurology, Medical University of Białystok, Białystok, 8Department of Neurology, Military Institute of Medicine, Warsaw, 9Department of Neurology, Specialist Hospital in Międzylesie, Warsaw, 10Medical Faculty, University of Rzeszów, Rzeszów, Poland Background: People with multiple sclerosis (MS) and their relatives often have multiple, complex needs which require support from a wide range of services. The aim of the study, the first of its kind in Poland, was to identify the most important needs of patients with MS and their significant others (SO). Methods: A questionnaire developed from focus groups consisting of 20 needs-related statements was administered in seven MS centers to 573 MS patients and 220 SO. The mean age of the patients was 42.61 years old; the mean MS duration was 9.43 years. The respondents were asked to rate the needs statements according to their importance on an 11-point scale. The questionnaire was similar for the MS patients and their SO. Results: The most important needs in the patient group were: to feel needed and efficient in life; to have easy access to professional rehabilitation; and to be sure that doctors are interested in my condition. The three most important needs in the SO group were: to know that relatives/friends feel needed and efficient in life; to have good living conditions; and to be sure that doctors are interested in my relative’s/friend’s condition. Correlation analysis revealed that in the patients group, there was a positive correlation between patient’s age and the importance of factors such as the need for support and interest in their disease from the family doctor (P<0.004), receiving educational materials from an MS clinic (P<0.011), interest from the clinic in life issues of the patient (P<0.001), and the need for access to self-rehabilitation (P<0.003); while the need to continue working part-time was inversely correlated with age (P<0.009). Conclusion: The needs of the MS patients and SO were similar. The data validate the importance of interdisciplinary care for the MS population. Keywords: multiple sclerosis, unmet needs, needs assessment, PolandPotemkowski ABrola WRatajczak ARatajczak MKowalewski MLewita M.Kapica-Topczewska KTarasiuk JStępień AGocyla-Dudar KZaborski JBartosik-Psujek HDove Medical Pressarticlemultiple sclerosisunmet needsneeds assessmentPolandNeurosciences. Biological psychiatry. NeuropsychiatryRC321-571Neurology. Diseases of the nervous systemRC346-429ENNeuropsychiatric Disease and Treatment, Vol Volume 13, Pp 1817-1824 (2017) |
| institution |
DOAJ |
| collection |
DOAJ |
| language |
EN |
| topic |
multiple sclerosis unmet needs needs assessment Poland Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571 Neurology. Diseases of the nervous system RC346-429 |
| spellingShingle |
multiple sclerosis unmet needs needs assessment Poland Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571 Neurology. Diseases of the nervous system RC346-429 Potemkowski A Brola W Ratajczak A Ratajczak M Kowalewski M Lewita M. Kapica-Topczewska K Tarasiuk J Stępień A Gocyla-Dudar K Zaborski J Bartosik-Psujek H The most important psychological and psychosocial needs of Polish multiple sclerosis patients and their significant others |
| description |
Andrzej Potemkowski,1 Waldemar Brola,2,3 Anna Ratajczak,4 Marcin Ratajczak,5 Mariusz Kowalewski,6 Małgorzata Lewita,6 Katarzyna Kapica-Topczewska,7 Joanna Tarasiuk,7 Adam Stępień,8 Katarzyna Gocyła-Dudar,8 Jacek Zaborski,9 Halina Bartosik-Psujek10 1Department of Clinical Psychology and Psychoprophylaxis, University of Szczecin, 2Department of Neurology, Specialist Hospital, Końskie, 3The Faculty of Medicine and Health Science, Institute of Physiotherapy, Jan Kochanowski University, Kielce, 4Pomeranian Medical University, Szczecin, 5Clinical Trial Center for MS-Patients, Szczecin, 6John Paul II Multiple Sclerosis Rehabilitation Center, Borne Sulinowo, 7Department of Neurology, Medical University of Białystok, Białystok, 8Department of Neurology, Military Institute of Medicine, Warsaw, 9Department of Neurology, Specialist Hospital in Międzylesie, Warsaw, 10Medical Faculty, University of Rzeszów, Rzeszów, Poland Background: People with multiple sclerosis (MS) and their relatives often have multiple, complex needs which require support from a wide range of services. The aim of the study, the first of its kind in Poland, was to identify the most important needs of patients with MS and their significant others (SO). Methods: A questionnaire developed from focus groups consisting of 20 needs-related statements was administered in seven MS centers to 573 MS patients and 220 SO. The mean age of the patients was 42.61 years old; the mean MS duration was 9.43 years. The respondents were asked to rate the needs statements according to their importance on an 11-point scale. The questionnaire was similar for the MS patients and their SO. Results: The most important needs in the patient group were: to feel needed and efficient in life; to have easy access to professional rehabilitation; and to be sure that doctors are interested in my condition. The three most important needs in the SO group were: to know that relatives/friends feel needed and efficient in life; to have good living conditions; and to be sure that doctors are interested in my relative’s/friend’s condition. Correlation analysis revealed that in the patients group, there was a positive correlation between patient’s age and the importance of factors such as the need for support and interest in their disease from the family doctor (P<0.004), receiving educational materials from an MS clinic (P<0.011), interest from the clinic in life issues of the patient (P<0.001), and the need for access to self-rehabilitation (P<0.003); while the need to continue working part-time was inversely correlated with age (P<0.009). Conclusion: The needs of the MS patients and SO were similar. The data validate the importance of interdisciplinary care for the MS population. Keywords: multiple sclerosis, unmet needs, needs assessment, Poland |
| format |
article |
| author |
Potemkowski A Brola W Ratajczak A Ratajczak M Kowalewski M Lewita M. Kapica-Topczewska K Tarasiuk J Stępień A Gocyla-Dudar K Zaborski J Bartosik-Psujek H |
| author_facet |
Potemkowski A Brola W Ratajczak A Ratajczak M Kowalewski M Lewita M. Kapica-Topczewska K Tarasiuk J Stępień A Gocyla-Dudar K Zaborski J Bartosik-Psujek H |
| author_sort |
Potemkowski A |
| title |
The most important psychological and psychosocial needs of Polish multiple sclerosis patients and their significant others |
| title_short |
The most important psychological and psychosocial needs of Polish multiple sclerosis patients and their significant others |
| title_full |
The most important psychological and psychosocial needs of Polish multiple sclerosis patients and their significant others |
| title_fullStr |
The most important psychological and psychosocial needs of Polish multiple sclerosis patients and their significant others |
| title_full_unstemmed |
The most important psychological and psychosocial needs of Polish multiple sclerosis patients and their significant others |
| title_sort |
most important psychological and psychosocial needs of polish multiple sclerosis patients and their significant others |
| publisher |
Dove Medical Press |
| publishDate |
2017 |
| url |
https://doaj.org/article/83af417ee275457f9f95c3de3e52b6dc |
| work_keys_str_mv |
AT potemkowskia themostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT brolaw themostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT ratajczaka themostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT ratajczakm themostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT kowalewskim themostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT lewitam themostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT kapicatopczewskak themostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT tarasiukj themostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT stepiena themostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT gocyladudark themostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT zaborskij themostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT bartosikpsujekh themostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT potemkowskia mostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT brolaw mostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT ratajczaka mostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT ratajczakm mostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT kowalewskim mostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT lewitam mostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT kapicatopczewskak mostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT tarasiukj mostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT stepiena mostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT gocyladudark mostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT zaborskij mostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers AT bartosikpsujekh mostimportantpsychologicalandpsychosocialneedsofpolishmultiplesclerosispatientsandtheirsignificantothers |
| _version_ |
1718401867586732032 |