Caregiver overload and factors associated with care provided to patients under palliative care

Objective. To identify overload and associated factors among caregivers of adult patients receiving palliative care. Methods. Descriptive, quantitative, and cross-sectional study addressing 40 adults under palliative care and their respective caregivers enrolled in the Home Care System in Ribeirã...

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Autores principales:	Alice Regina Felipe Silva, Jack Roberto Silva Fhon, Rosalina Aparecida Partezani Rodrigues, Mariane Thais Pecchi Leite
Formato:	article
Lenguaje:	EN
Publicado:	Universidad de Antioquia 2021
Materias:	caregivers palliative care home care service Nursing RT1-120
Acceso en línea:	https://doaj.org/article/85f2591765eb40e18d15802456ddc006
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spelling	oai:doaj.org-article:85f2591765eb40e18d15802456ddc0062021-11-26T20:06:09ZCaregiver overload and factors associated with care provided to patients under palliative care2216-028010.17533/udea.iee.v39n1e10https://doaj.org/article/85f2591765eb40e18d15802456ddc0062021-03-01T00:00:00Zhttps://revistas.udea.edu.co/index.php/iee/article/view/345526https://doaj.org/toc/2216-0280Objective. To identify overload and associated factors among caregivers of adult patients receiving palliative care. Methods. Descriptive, quantitative, and cross-sectional study addressing 40 adults under palliative care and their respective caregivers enrolled in the Home Care System in Ribeirão Preto, Brazil. Data concerning the patients included demographic profile and Mini-Mental State Examination. A form was used to collect the caregivers’ demographic data along with the Zarit Burden Interview Scale, Self-Reporting Questionnaire, Beck Depression Inventory, and Coping Strategies Inventory. Results. Regarding the patients, 84.2% were women, 52.6% were over 80, 65.8% had no partner, and 76.3% presented cognitive impairment. The caregivers were mostly women (84.5%), aged 56.67 years old on average, were the patients’ children (42.5%); had no partner (55%), and lived with the patient (77.5%). The mean score obtained in the burden scale was 28.78 points, 32.5% had stress, and 42.5% depression. Regarding coping strategies, the ones most frequently used were positive reappraisal (12.8), withdrawal (10.2), and problem solution (9.7). A positive and statistically significant correlation was found between time spent with care (days and hours) and escape/avoidance with overload. Linear regression analysis revealed an association between being a woman (p=0.002), number of days spent with care (p=0.004), and depression (p<0.001) with overload. Conclusion. Being a woman, spending more days providing care, and depressive symptoms were associated with caregiver overload.Alice Regina Felipe SilvaJack Roberto Silva FhonRosalina Aparecida Partezani RodriguesMariane Thais Pecchi LeiteUniversidad de Antioquiaarticlecaregiverspalliative carehome care serviceNursingRT1-120ENInvestigación y Educación en Enfermería, Vol 39, Iss 1 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	caregivers palliative care home care service Nursing RT1-120
spellingShingle	caregivers palliative care home care service Nursing RT1-120 Alice Regina Felipe Silva Jack Roberto Silva Fhon Rosalina Aparecida Partezani Rodrigues Mariane Thais Pecchi Leite Caregiver overload and factors associated with care provided to patients under palliative care
description	Objective. To identify overload and associated factors among caregivers of adult patients receiving palliative care. Methods. Descriptive, quantitative, and cross-sectional study addressing 40 adults under palliative care and their respective caregivers enrolled in the Home Care System in Ribeirão Preto, Brazil. Data concerning the patients included demographic profile and Mini-Mental State Examination. A form was used to collect the caregivers’ demographic data along with the Zarit Burden Interview Scale, Self-Reporting Questionnaire, Beck Depression Inventory, and Coping Strategies Inventory. Results. Regarding the patients, 84.2% were women, 52.6% were over 80, 65.8% had no partner, and 76.3% presented cognitive impairment. The caregivers were mostly women (84.5%), aged 56.67 years old on average, were the patients’ children (42.5%); had no partner (55%), and lived with the patient (77.5%). The mean score obtained in the burden scale was 28.78 points, 32.5% had stress, and 42.5% depression. Regarding coping strategies, the ones most frequently used were positive reappraisal (12.8), withdrawal (10.2), and problem solution (9.7). A positive and statistically significant correlation was found between time spent with care (days and hours) and escape/avoidance with overload. Linear regression analysis revealed an association between being a woman (p=0.002), number of days spent with care (p=0.004), and depression (p<0.001) with overload. Conclusion. Being a woman, spending more days providing care, and depressive symptoms were associated with caregiver overload.
format	article
author	Alice Regina Felipe Silva Jack Roberto Silva Fhon Rosalina Aparecida Partezani Rodrigues Mariane Thais Pecchi Leite
author_facet	Alice Regina Felipe Silva Jack Roberto Silva Fhon Rosalina Aparecida Partezani Rodrigues Mariane Thais Pecchi Leite
author_sort	Alice Regina Felipe Silva
title	Caregiver overload and factors associated with care provided to patients under palliative care
title_short	Caregiver overload and factors associated with care provided to patients under palliative care
title_full	Caregiver overload and factors associated with care provided to patients under palliative care
title_fullStr	Caregiver overload and factors associated with care provided to patients under palliative care
title_full_unstemmed	Caregiver overload and factors associated with care provided to patients under palliative care
title_sort	caregiver overload and factors associated with care provided to patients under palliative care
publisher	Universidad de Antioquia
publishDate	2021
url	https://doaj.org/article/85f2591765eb40e18d15802456ddc006
work_keys_str_mv	AT alicereginafelipesilva caregiveroverloadandfactorsassociatedwithcareprovidedtopatientsunderpalliativecare AT jackrobertosilvafhon caregiveroverloadandfactorsassociatedwithcareprovidedtopatientsunderpalliativecare AT rosalinaaparecidapartezanirodrigues caregiveroverloadandfactorsassociatedwithcareprovidedtopatientsunderpalliativecare AT marianethaispecchileite caregiveroverloadandfactorsassociatedwithcareprovidedtopatientsunderpalliativecare
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Caregiver overload and factors associated with care provided to patients under palliative care

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