Assessment Quality of Life in Children with Cerebral Palsy, Ages 2–18 Years

Background: Cerebral palsy is non-progressive disorder that can cause limited movement and lead to postural deformity in children, which can affects all the psychosocial aspects and, thus, impacts children’s’ quality of life as well. Assessment of quality of life is important to evaluate suitable in...

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Autores principales:	Alfira Nailatul Izzah, Irwanto Irwanto, Andriati Andriati, Prastiya Indra Gunawan
Formato:	article
Lenguaje:	EN ID
Publicado:	Universitas Airlangga 2021
Materias:	cerebral palsy children qol pedsql demographic Public aspects of medicine RA1-1270 Infectious and parasitic diseases RC109-216
Acceso en línea:	https://doaj.org/article/8691cc0fa03649328f271cddc05a3fe9
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spelling	oai:doaj.org-article:8691cc0fa03649328f271cddc05a3fe92021-12-02T17:41:50ZAssessment Quality of Life in Children with Cerebral Palsy, Ages 2–18 Years2301-71712541-092X10.20473/jbe.V9I22021.166-174https://doaj.org/article/8691cc0fa03649328f271cddc05a3fe92021-05-01T00:00:00Zhttps://e-journal.unair.ac.id/JBE/article/view/21768https://doaj.org/toc/2301-7171https://doaj.org/toc/2541-092XBackground: Cerebral palsy is non-progressive disorder that can cause limited movement and lead to postural deformity in children, which can affects all the psychosocial aspects and, thus, impacts children’s’ quality of life as well. Assessment of quality of life is important to evaluate suitable intervention measures for children with cerebral palsy. Purpose: This study aims to investigate the domains and determine the quality of life in children with cerebral palsy between ages 2 and 18. Methods: This was a descriptive study that employed a cross-sectional design approach. Primary data was obtained through a questionnaire. This study used the pediatric quality of life inventory (PedsQL)TM 3.0 cerebral palsy module. The study was conducted from November 2019 to February 2020. The data was collected at the Department of Medical Rehabilitation at the Dr. Soetomo Hospital, Peduli CP Foundation, and the Happy CP Community. This study involved 52 subjects, aged 2–18 years. Results: Almost all of the subjects (76.90%) had an impaired or poor quality of life. From the seven existing domains, only one domain received a good score: the domain of movement and balance. Conclusion: Based on the PedsQLTM 3.0 cerebral palsy module, parents reported that the quality of life in children (ages 2–18 years) having cerebral palsy was still low. Only the movement and balance domain got a good score.Alfira Nailatul IzzahIrwanto IrwantoAndriati AndriatiPrastiya Indra GunawanUniversitas Airlanggaarticlecerebral palsychildrenqolpedsqldemographicPublic aspects of medicineRA1-1270Infectious and parasitic diseasesRC109-216ENIDJurnal Berkala Epidemiologi, Vol 9, Iss 2, Pp 166-174 (2021)
institution	DOAJ
collection	DOAJ
language	EN ID
topic	cerebral palsy children qol pedsql demographic Public aspects of medicine RA1-1270 Infectious and parasitic diseases RC109-216
spellingShingle	cerebral palsy children qol pedsql demographic Public aspects of medicine RA1-1270 Infectious and parasitic diseases RC109-216 Alfira Nailatul Izzah Irwanto Irwanto Andriati Andriati Prastiya Indra Gunawan Assessment Quality of Life in Children with Cerebral Palsy, Ages 2–18 Years
description	Background: Cerebral palsy is non-progressive disorder that can cause limited movement and lead to postural deformity in children, which can affects all the psychosocial aspects and, thus, impacts children’s’ quality of life as well. Assessment of quality of life is important to evaluate suitable intervention measures for children with cerebral palsy. Purpose: This study aims to investigate the domains and determine the quality of life in children with cerebral palsy between ages 2 and 18. Methods: This was a descriptive study that employed a cross-sectional design approach. Primary data was obtained through a questionnaire. This study used the pediatric quality of life inventory (PedsQL)TM 3.0 cerebral palsy module. The study was conducted from November 2019 to February 2020. The data was collected at the Department of Medical Rehabilitation at the Dr. Soetomo Hospital, Peduli CP Foundation, and the Happy CP Community. This study involved 52 subjects, aged 2–18 years. Results: Almost all of the subjects (76.90%) had an impaired or poor quality of life. From the seven existing domains, only one domain received a good score: the domain of movement and balance. Conclusion: Based on the PedsQLTM 3.0 cerebral palsy module, parents reported that the quality of life in children (ages 2–18 years) having cerebral palsy was still low. Only the movement and balance domain got a good score.
format	article
author	Alfira Nailatul Izzah Irwanto Irwanto Andriati Andriati Prastiya Indra Gunawan
author_facet	Alfira Nailatul Izzah Irwanto Irwanto Andriati Andriati Prastiya Indra Gunawan
author_sort	Alfira Nailatul Izzah
title	Assessment Quality of Life in Children with Cerebral Palsy, Ages 2–18 Years
title_short	Assessment Quality of Life in Children with Cerebral Palsy, Ages 2–18 Years
title_full	Assessment Quality of Life in Children with Cerebral Palsy, Ages 2–18 Years
title_fullStr	Assessment Quality of Life in Children with Cerebral Palsy, Ages 2–18 Years
title_full_unstemmed	Assessment Quality of Life in Children with Cerebral Palsy, Ages 2–18 Years
title_sort	assessment quality of life in children with cerebral palsy, ages 2–18 years
publisher	Universitas Airlangga
publishDate	2021
url	https://doaj.org/article/8691cc0fa03649328f271cddc05a3fe9
work_keys_str_mv	AT alfiranailatulizzah assessmentqualityoflifeinchildrenwithcerebralpalsyages218years AT irwantoirwanto assessmentqualityoflifeinchildrenwithcerebralpalsyages218years AT andriatiandriati assessmentqualityoflifeinchildrenwithcerebralpalsyages218years AT prastiyaindragunawan assessmentqualityoflifeinchildrenwithcerebralpalsyages218years
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Assessment Quality of Life in Children with Cerebral Palsy, Ages 2–18 Years

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