Caregiver burden in Buruli ulcer disease: Evidence from Ghana.

<h4>Background</h4>Buruli ulcer disease (BUD) results in disabilities and deformities in the absence of early medical intervention. The extensive role of caregiving in BUD is widely acknowledged, however, associated caregiver burden is poorly understood. In this paper we assessed the bur...

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Autores principales:	Yaw Ampem Amoako, Nancy Ackam, John-Paul Omuojine, Michael Ntiamoah Oppong, Abena Gyawu Owusu-Ansah, Mohammed Kabiru Abass, George Amofa, Elizabeth Ofori, Michael Frimpong, Freddie Bailey, David Hurst Molyneux, Richard Odame Phillips
Formato:	article
Lenguaje:	EN
Publicado:	Public Library of Science (PLoS) 2021
Materias:	Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/8777bd0f51cd4bb3802b8f743f6d6769
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spelling	oai:doaj.org-article:8777bd0f51cd4bb3802b8f743f6d67692021-11-25T06:31:50ZCaregiver burden in Buruli ulcer disease: Evidence from Ghana.1935-27271935-273510.1371/journal.pntd.0009454https://doaj.org/article/8777bd0f51cd4bb3802b8f743f6d67692021-06-01T00:00:00Zhttps://doi.org/10.1371/journal.pntd.0009454https://doaj.org/toc/1935-2727https://doaj.org/toc/1935-2735<h4>Background</h4>Buruli ulcer disease (BUD) results in disabilities and deformities in the absence of early medical intervention. The extensive role of caregiving in BUD is widely acknowledged, however, associated caregiver burden is poorly understood. In this paper we assessed the burden which caregivers experience when supporting patients with BUD in Ghana.<h4>Method/ principal findings</h4>This qualitative study was conducted in 3 districts in Ghana between August and October 2019. 13 semi-structured interviews were conducted on caregivers of BUD patients in the local language of Twi. Data was translated into English, coded into broad themes, and direct content analysis approach was used to analyse results. The results show the caregivers face financial, psychological and health issues as a consequence of their caregiving role.<h4>Conclusion/ significance</h4>This study found significant caregiver burden on family members. It also highlighted the psychological burden caregivers experience and the limited knowledge of the disease within endemic communities. Further research is needed to quantify the caregiver burden of BUD at different economic levels in order to better understand the impact of possible caregiver interventions on patient outcomes.Yaw Ampem AmoakoNancy AckamJohn-Paul OmuojineMichael Ntiamoah OppongAbena Gyawu Owusu-AnsahMohammed Kabiru AbassGeorge AmofaElizabeth OforiMichael FrimpongFreddie BaileyDavid Hurst MolyneuxRichard Odame PhillipsPublic Library of Science (PLoS)articleArctic medicine. Tropical medicineRC955-962Public aspects of medicineRA1-1270ENPLoS Neglected Tropical Diseases, Vol 15, Iss 6, p e0009454 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270
spellingShingle	Arctic medicine. Tropical medicine RC955-962 Public aspects of medicine RA1-1270 Yaw Ampem Amoako Nancy Ackam John-Paul Omuojine Michael Ntiamoah Oppong Abena Gyawu Owusu-Ansah Mohammed Kabiru Abass George Amofa Elizabeth Ofori Michael Frimpong Freddie Bailey David Hurst Molyneux Richard Odame Phillips Caregiver burden in Buruli ulcer disease: Evidence from Ghana.
description	<h4>Background</h4>Buruli ulcer disease (BUD) results in disabilities and deformities in the absence of early medical intervention. The extensive role of caregiving in BUD is widely acknowledged, however, associated caregiver burden is poorly understood. In this paper we assessed the burden which caregivers experience when supporting patients with BUD in Ghana.<h4>Method/ principal findings</h4>This qualitative study was conducted in 3 districts in Ghana between August and October 2019. 13 semi-structured interviews were conducted on caregivers of BUD patients in the local language of Twi. Data was translated into English, coded into broad themes, and direct content analysis approach was used to analyse results. The results show the caregivers face financial, psychological and health issues as a consequence of their caregiving role.<h4>Conclusion/ significance</h4>This study found significant caregiver burden on family members. It also highlighted the psychological burden caregivers experience and the limited knowledge of the disease within endemic communities. Further research is needed to quantify the caregiver burden of BUD at different economic levels in order to better understand the impact of possible caregiver interventions on patient outcomes.
format	article
author	Yaw Ampem Amoako Nancy Ackam John-Paul Omuojine Michael Ntiamoah Oppong Abena Gyawu Owusu-Ansah Mohammed Kabiru Abass George Amofa Elizabeth Ofori Michael Frimpong Freddie Bailey David Hurst Molyneux Richard Odame Phillips
author_facet	Yaw Ampem Amoako Nancy Ackam John-Paul Omuojine Michael Ntiamoah Oppong Abena Gyawu Owusu-Ansah Mohammed Kabiru Abass George Amofa Elizabeth Ofori Michael Frimpong Freddie Bailey David Hurst Molyneux Richard Odame Phillips
author_sort	Yaw Ampem Amoako
title	Caregiver burden in Buruli ulcer disease: Evidence from Ghana.
title_short	Caregiver burden in Buruli ulcer disease: Evidence from Ghana.
title_full	Caregiver burden in Buruli ulcer disease: Evidence from Ghana.
title_fullStr	Caregiver burden in Buruli ulcer disease: Evidence from Ghana.
title_full_unstemmed	Caregiver burden in Buruli ulcer disease: Evidence from Ghana.
title_sort	caregiver burden in buruli ulcer disease: evidence from ghana.
publisher	Public Library of Science (PLoS)
publishDate	2021
url	https://doaj.org/article/8777bd0f51cd4bb3802b8f743f6d6769
work_keys_str_mv	AT yawampemamoako caregiverburdeninburuliulcerdiseaseevidencefromghana AT nancyackam caregiverburdeninburuliulcerdiseaseevidencefromghana AT johnpaulomuojine caregiverburdeninburuliulcerdiseaseevidencefromghana AT michaelntiamoahoppong caregiverburdeninburuliulcerdiseaseevidencefromghana AT abenagyawuowusuansah caregiverburdeninburuliulcerdiseaseevidencefromghana AT mohammedkabiruabass caregiverburdeninburuliulcerdiseaseevidencefromghana AT georgeamofa caregiverburdeninburuliulcerdiseaseevidencefromghana AT elizabethofori caregiverburdeninburuliulcerdiseaseevidencefromghana AT michaelfrimpong caregiverburdeninburuliulcerdiseaseevidencefromghana AT freddiebailey caregiverburdeninburuliulcerdiseaseevidencefromghana AT davidhurstmolyneux caregiverburdeninburuliulcerdiseaseevidencefromghana AT richardodamephillips caregiverburdeninburuliulcerdiseaseevidencefromghana
_version_	1718413691974582272

Caregiver burden in Buruli ulcer disease: Evidence from Ghana.

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