Open health data: Mapping the ecosystem

Background Governments around the world own multiple datasets related to the policy domain of health. Datasets range from vaccination rates to the availability of health care practitioners in a region to the outcomes of certain surgeries. Health is believed to be a promising subject in the case of o...

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Autores principales:	Roel Heijlen, Joep Crompvoets
Formato:	article
Lenguaje:	EN
Publicado:	SAGE Publishing 2021
Materias:	Computer applications to medicine. Medical informatics R858-859.7
Acceso en línea:	https://doaj.org/article/88b54c9946aa4d5881052379ac0f8978
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spelling	oai:doaj.org-article:88b54c9946aa4d5881052379ac0f89782021-11-10T22:33:34ZOpen health data: Mapping the ecosystem2055-207610.1177/20552076211050167https://doaj.org/article/88b54c9946aa4d5881052379ac0f89782021-11-01T00:00:00Zhttps://doi.org/10.1177/20552076211050167https://doaj.org/toc/2055-2076Background Governments around the world own multiple datasets related to the policy domain of health. Datasets range from vaccination rates to the availability of health care practitioners in a region to the outcomes of certain surgeries. Health is believed to be a promising subject in the case of open government data policies. However, the specific properties of health data such as its sensibilities regarding privacy, ethics, and ownership encompass particular conditions either enabling or preventing datasets to become freely and easily accessible for everyone. Objective and methods This paper aims to map the ecosystem of open health data. By analyzing the foundations of health data and the commonalities of open data ecosystems via literature analysis, the socio-technical environment in which health data managed by governments are opened up or potentially stay closed is created. After its theoretical development, the open health data ecosystem is tested via a case study concerning the Data for Better Health initiative from the government of Belgium. Results Creation and assessment of an open health data ecosystem consisting of stakeholders, interests, information policies, and data preparation activities. Conclusions The policy domain of health includes de-identification activities, bioethical assessments, and the specific role of data providers within its open data ecosystem. However, the concept of open data does not always fully apply to the topic of health. Such several health datasets may be findable via government portals but not directly accessible. Differentiation within types of health data and data user capacities are recommendable for future research.Roel HeijlenJoep CrompvoetsSAGE PublishingarticleComputer applications to medicine. Medical informaticsR858-859.7ENDigital Health, Vol 7 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Computer applications to medicine. Medical informatics R858-859.7
spellingShingle	Computer applications to medicine. Medical informatics R858-859.7 Roel Heijlen Joep Crompvoets Open health data: Mapping the ecosystem
description	Background Governments around the world own multiple datasets related to the policy domain of health. Datasets range from vaccination rates to the availability of health care practitioners in a region to the outcomes of certain surgeries. Health is believed to be a promising subject in the case of open government data policies. However, the specific properties of health data such as its sensibilities regarding privacy, ethics, and ownership encompass particular conditions either enabling or preventing datasets to become freely and easily accessible for everyone. Objective and methods This paper aims to map the ecosystem of open health data. By analyzing the foundations of health data and the commonalities of open data ecosystems via literature analysis, the socio-technical environment in which health data managed by governments are opened up or potentially stay closed is created. After its theoretical development, the open health data ecosystem is tested via a case study concerning the Data for Better Health initiative from the government of Belgium. Results Creation and assessment of an open health data ecosystem consisting of stakeholders, interests, information policies, and data preparation activities. Conclusions The policy domain of health includes de-identification activities, bioethical assessments, and the specific role of data providers within its open data ecosystem. However, the concept of open data does not always fully apply to the topic of health. Such several health datasets may be findable via government portals but not directly accessible. Differentiation within types of health data and data user capacities are recommendable for future research.
format	article
author	Roel Heijlen Joep Crompvoets
author_facet	Roel Heijlen Joep Crompvoets
author_sort	Roel Heijlen
title	Open health data: Mapping the ecosystem
title_short	Open health data: Mapping the ecosystem
title_full	Open health data: Mapping the ecosystem
title_fullStr	Open health data: Mapping the ecosystem
title_full_unstemmed	Open health data: Mapping the ecosystem
title_sort	open health data: mapping the ecosystem
publisher	SAGE Publishing
publishDate	2021
url	https://doaj.org/article/88b54c9946aa4d5881052379ac0f8978
work_keys_str_mv	AT roelheijlen openhealthdatamappingtheecosystem AT joepcrompvoets openhealthdatamappingtheecosystem
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Open health data: Mapping the ecosystem

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